Forum Discussion
arpie
6 years agoMember
That's a real bugger, Deanna - but good to hear it is the slow growing one & caught early. Good that no organs involved. You are sounding positive & upbeat which is terrific. I have a ukulele buddy who was diagnosed last year BC mets in her ribs (16 years after diagnosis) & she's been told she will die 'with it' not 'from it' - so another slow growing one.
One of my best kayak fishing buddies was diagnosed with BC mets in her left hip just 2 weeks ago, 15 years after her original BC diagnosis, surgery & treatment - but they think they'll be able to get it all out with a hip replacement tho she still needs chemo & rads afterwards. She has surgery next week in Brisbane. She lives on her own ....but luckily had moved into a house with no steps just 2 years ago - and hopes her kids will be able to take a week off work to stay with her (consecutive weeks) to see her thru, after the surgery. Sadly, it will badly impact her quality of life as she'd been on the road kayak fishing around Australia - and won't know if she can get back to it :( But knowing her - she will do what she has to do to get back onto the yak, as it is her passion. (Even more than me!) I really feel for her, as I love my kayak fishing too. She's won many women's divisions in the kayak fishing series thru Qld, NSW and Vic and even gone to Tassie to compete there!!
That is VERY interesting - your observations about your sinus/wet cough & phlegm - and it has nothing to do with the seasons! I had the exact same thing in the lead up to my own diagnosis! I know I've mentioned it here on the blog before. For a good 6 months prior to diagnosis, I had an 'eternal cough/bronchitis' producing HEAPS of phlegm (specially in the mornings) and ended up on prednisone to try & stem it, after antibiotics did nothing. Mine started off as ordinary phlegm, then went to my chest & was green hence the antibiotics - but as soon as I'd 'got over it' it started again! They now say I have COPD - but I don't take any meds for it as it isn't 'bad'! I haven't had any nasty ones since diagnosed Jan 2018 - tho I had a bad reaction to phenergan just last week when I had a runny nose & took some to dry it up & hopefully get some sleep! It didn't work! I was very agitated & up & down all night. It dried up the nose tho!
I still have an annoying 'every day cough' that drives my husband MAD! Always worse in the morning (gagging sometimes when coughing & spluttering in the shower, producing lots of small amounts of 'normal' phlegm!) I really think the act of getting out of bed in the morning aggravates it (gravity perhaps?) I even had my phlegm analysed in case something was hiding in it that no-one knew about, but it was clear.
I am pretty sure others had had nasty coughs in the lead up to their original diagnosis as well.
All the best with your ongoing treatment xx
One of my best kayak fishing buddies was diagnosed with BC mets in her left hip just 2 weeks ago, 15 years after her original BC diagnosis, surgery & treatment - but they think they'll be able to get it all out with a hip replacement tho she still needs chemo & rads afterwards. She has surgery next week in Brisbane. She lives on her own ....but luckily had moved into a house with no steps just 2 years ago - and hopes her kids will be able to take a week off work to stay with her (consecutive weeks) to see her thru, after the surgery. Sadly, it will badly impact her quality of life as she'd been on the road kayak fishing around Australia - and won't know if she can get back to it :( But knowing her - she will do what she has to do to get back onto the yak, as it is her passion. (Even more than me!) I really feel for her, as I love my kayak fishing too. She's won many women's divisions in the kayak fishing series thru Qld, NSW and Vic and even gone to Tassie to compete there!!
That is VERY interesting - your observations about your sinus/wet cough & phlegm - and it has nothing to do with the seasons! I had the exact same thing in the lead up to my own diagnosis! I know I've mentioned it here on the blog before. For a good 6 months prior to diagnosis, I had an 'eternal cough/bronchitis' producing HEAPS of phlegm (specially in the mornings) and ended up on prednisone to try & stem it, after antibiotics did nothing. Mine started off as ordinary phlegm, then went to my chest & was green hence the antibiotics - but as soon as I'd 'got over it' it started again! They now say I have COPD - but I don't take any meds for it as it isn't 'bad'! I haven't had any nasty ones since diagnosed Jan 2018 - tho I had a bad reaction to phenergan just last week when I had a runny nose & took some to dry it up & hopefully get some sleep! It didn't work! I was very agitated & up & down all night. It dried up the nose tho!
I still have an annoying 'every day cough' that drives my husband MAD! Always worse in the morning (gagging sometimes when coughing & spluttering in the shower, producing lots of small amounts of 'normal' phlegm!) I really think the act of getting out of bed in the morning aggravates it (gravity perhaps?) I even had my phlegm analysed in case something was hiding in it that no-one knew about, but it was clear.
I am pretty sure others had had nasty coughs in the lead up to their original diagnosis as well.
All the best with your ongoing treatment xx