Hi Possum, I was diagnosed with metastatic lobular breast cancer late 2012. Apparently it's not as common as ducal cancer and is easily missed. Mine had spread to my ovaries with small spots in the bones. After chemo, surgeries and radiotherapy it was controlled with Arimidex for 3 years. CT scans in February showed that it has now spread to the peritoneum and omentum, the apron of rich fatty tissue that covers the abdominal organs. I believe this is typical of lobular breast and ovarian cancers. Now on Abraxane chemo.
While it hasn't gone the usual route of lungs and liver I expected, some of our cancers like to travel to more exotic destinations. It seems not many people know about this one as you've found out. My onc tells me that there are more alternative treatments out there, mainly chemo and hormone therapies. He's optimistic anyway, and as long as I'm still vertical and above ground, I try to be too.
This is a long winded way of saying there's always someone out there who is on the same journey and this group is a good way to find them. Hugs to you and your Mum, Jeannie