MandaMoo
13 years agoMember
Being a Voice
It's been a while since I blogged but I have been thinking lately about the small voice of those of us who are living with advanced BC.
So I thought I would try to blog a little more regularly to b...
I have had an interesting day - I did a session at the Gawler foundation and Ian had us contemplating our death - the actual dying. I sobbed all the way through - I still have issues there to deal with quite obviously. Everyone in the group responded differently - how unique we are.
I am busy living though and fulfilling dreams and doing crazy things. I am sad though too as today another from my support group passed away - she had only been to a couple of meetings before becoming very unwell. The third lady since I joined the group early this year. Another girl I know has been diagnosed with a recurrence and is awaiting scans to see if there are secondaries. It seems it never ends.
I am trying to normalise the concept of death in our household so that the children, while they may feel sad about it, will not fear it (as I do) - we had a very interesting dinner discussion this evening and my eldest was in tears but it was a great learning opportunity and a chance for me to reinforce that I am doing everything I can to live well for as long as possible and that my illness is not their fault. I don't know how long I have - I hope it is a long time. I hope there is something to keep me going like I am now for a long time. Who knows what may happen in the meantime. I have to transform the fear.
It is interesting that my post resonated with other ABC girls - perhaps I am not so out there in my thoughts - rollercoaster and crazy as they can be.
Tomorrow I will go to my support group and we will grieve another member, we will support those having a rough time and inspire each other with our zest for life. That's what we do.
To my husband and children - I could never tell you too much how much I love you (even if I am cranky because you take too long to brush your teeth and put your pjs on - that's the kids not hubby!)
A xx