Being a Voice
It's been a while since I blogged but I have been thinking lately about the small voice of those of us who are living with advanced BC.
So I thought I would try to blog a little more regularly to b...
Forum Discussion
Hi MandaMoo,
Thank you so much for putting into words what it quite often feels like to have abc. I have moments too where I feel like I want to shake people and say do you realise how lucky you are? It's not often I feel this way, but sometimes it can just be an off the cuff remark from somenone and it stirs up these feelings. I don't want to sound judgemental either, but I think it's normal for us to feel these emotions. Your feelings about bucket lists and photographs I can really relate to as well!
We are far too young to be going through this, not that anyone at any age should be going through this. I'm only 37, living with abc, I hope and pray to be with my husband and family for a very long time. It is hard to be young and sorting out the end of your life. I am already putting into place my palliative care plan - which I hope won't be needed for a very long time, funeral plan, making sure our life insurance is all set, wills etc. It does give me peace of mind to know I am putting everything in place and that if I dereriorate rapidly, my husband and children won't have any added stressors.
It is all these things that makes me feel that sometimes life just isn't fair! But then my children do or say something funny, I pull myself into the present and just say to myself, I am here and now, life is precious. :)
Thank you again xoxo