Forum Discussion
BAD NEWS PLEASE HELP ABSOLUTELY DISTRAUGHT
Hi I posted yesterday and today received devastating news that my her 2 ER positve breast cancer has gone to my liver.Please does anyone have this and can anyone tell me am I going to die quickly can I get my life insurance so I can bring my children back from overseas. I am numb.Can I live or is this it? What treatment can I expect to be offered to me. Thank you for reading my post.
44 Replies
- @Sam09 Just wondering how you are going.
HI there @Sam09 - please don't ever, ever say or think that you are pathetic and don't feel as though you need to excuse yourself !
To receive a bc diagnosis is frightening enough but then to be told that it is secondary with mets in your liver is so confronting and shakes you to the core..
You feel as though your life plans have been taken away from you.
Whilst I have not had chemo this time around, I cannot speak about the effects of paclitaxel but Kayvie, Primek and Afraser have all given different accounts of the side effects they felt.
I had 6 x rounds of chemo 3 weeks apart in 2003 and found that there would be some days where I felt like I had been hit by a truck but I was fortunate enough that I was able to go for walks and take my 5 and 2 year old sons to the park.
So, walk your little puppy on days you feel well enough to.
The fresh air may even help with your general spirit.
I believe that the most recent study is that if you are able to, it is best to keep active immediately following chemotherapy. The wonderful BCNA Admin ladies could confirm this.
Sending you hugs and light.
Sheryl xxx
- Hi Sam
I am having weekly pacitaxel and agree with primek that this is doable. Side effects are mild- a little reflux, bloody nose at times and a little fatigue. I walk my dogs every day and can carry on with most things. I was very fit pre diagnosis and am sure this helps during treatment.
I found the thought of chemo terrifying (fear of the unknown) but once underway the fear and anxiety eased.
Your feelings are completely justified - think we have all been there.
Use your enthusiasm and determination to focus on the future- you can do this!!!
Big hugs x - Reactions to chemo vary immensely - like primek I got a bit of a bloody nose on weekly taxol and some issues with fingers and toes. I never had nausea from either of my chemo cocktails nor had any side effects from herceptin. It's much harder to do than to say but if you can try some relaxation techniques it may help - the body has a great capacity to respond to anxiety with aches and pains, I get them every year before my annual tests! I too would recommend starting - doing what you can to be back in charge of your life is a great boost. We can do surprising stuff - scared or not. Best wishes.
- Hi Sam, You can do this!!!! And keep your plans for the future - Even if your plans have to be modified goals are always good to have. I think shocked is the word you were thinking of - definitely NOT pathetic! So take time to come to terms with this (have a cry, scream, vent) and then gather that strength (you know the enthusiasm that makes running so good) grab it and use it to help you cope and continue to enjoy your running and walking your puppy. And keep coming here so we can give you virtual hugs Xx
- PS...you have every reason to feel sorry for yourself and see no future. But once treatment starts and the tumors shrink you will have hope and plans again. x
- I had weekly paclitaxol and it was totally doable. You get a bit miserable having to have it, but really side effects are bearable. A bit of reflux. A runny nose about cycle 2 to 3. A bit more delicate skin. Feeling a bit tired. Sometimes you might have some aches in your joints but mostly you will be able to walk your dog and get on with things. The herceptin...just a bit tired. They monitor things as you go and adjust as you need. The doses are weight dependent so don't worry about only being small. We were all petrified pre chemo. I remember balling my eyes out in the shower the morning of my 1st...and sometimes in between. But you can do this. You are stronger than you think. Why wait? It will just make your nerves worse. They'll give you a premed to reduce any side effects beforehand and run it slowly. You could call tomorrow and say..yes lets do this sooner. Hope all goes well. Kath x
- Hi Lovely Ladies,
Well today was my onc appointment. My liver mets are 10 at 26mm each and inoperable. She gave me 12 weeks at the aggressive growth it has had in a short time with out treatment. Im numb... Her opinion was she was pleased I qualify for pacilitaxel with pertuzumab and trastuzumab. Lucky me... Start Monday if I will do it she tried to pursuade me to start tomorrow but I am pettrified to say the least. Suddenly today I had left hip pain and strange sensations in my left leg and foot and this scared me greatly too.... Please ladies can you tell me what to expect if I have this treatment. I am so scared of the side effects and do not want to give up walking my puppy or exercising will I be able to live a normal life. I need to know this before I decide on treatment. Thank you in advance.. I wish.... I could wake up from this nightmare. All my plans for the future are gone . Exuse me.... I am pathetic feeling sorry for myself which is very unlike me... - Hi Sam, dont EVER feel like 'I told you so' or that you deserve it' none of us do. I too have family issues. I rang each of my 6 siblings personally to let them know what was happening (in January) & I havent heard anything from some of them. Its hard to deal with, one is even a highly qualified nurse. Just do what YOU feel you need to do & we are all hear if needed XXX
- Hi @Sam09 please give BCNA a call tomorrow on 1800 500 258 (thank you @Brenda5 ) we have a telephone service that is there for you to use.
