Forum Discussion
Back to being Terrified
Here I am girls..... Oncologist appointment tomorrow, bloods drawn Tuesday. Tomorrow is D Day - TM Results Day - Have they increased further?? what is going on in my body??? & once again I have dropped into a heap of OMG OMG OMG how can this be happening to me again, isn't what I have already been thru enough?? I can feel the tears ready & building behind my eyes just waiting for something totally stupid to set them flowing...
23 Replies
- Hi @Brenda5 - thanks for your update with your Dad - always helps to get info from others and hear their stories as opposed to pharma notes & clinical data.
My sister (who lives in Central West NSW on a property) has given me hemp oil for salad dressing, hemp seeds & protein powder for smoothies & hemp oil for topical application on bony met sites.
I am looking at doing detox with power smoothie/shots then followed by 6 week course of THC (cannabis) oil shots, which my sister & her naturopath have said the same thing - will help with movement and pain (& possibly less reliant on pain meds).
Best wishes to your Dad & his upcoming scans xx - My dad is on Zoladex, injection lasts 3 months, Denomosaub injection which lasts 6 weeks (I think) and also just finished 10 rounds of Docetaxel chemo (one of the same ones I had for breast cancer). He turns 77 in a week but is responding well to the treatment. Scans net month to see how its going. He is also on cannabis oil which is amazing for his movement and pain.
- A whole new world of drug names, specialists, aches and pains we were oblivious of previously! Who'd thought we would need to become so conversant on ovary shutting down drugs when we are dealing with the breast?
- Omg.... yes @iserbrown i am, my goodness all these drugs are confusing....
- Are you thinking of Zoladex?
- Nah sorry @Share i have been racing home to correct myself... i realised pretty quickly that i had given you incorrection info... all the bloody drugs starting with X gggrrr.... Xeloda is the drug that shuts down your ovaries... i was on that before i gad them removed..
Hi @Cate64 - my appointment is 9am next Monday 6th March.
Yes, I have been given details about loads of moisturiser (Moo Goo) for hands & feet & socks to bed also (better once this humidity ceases in Sydney !)
I too am having the bone strengthening injection bi-monthly but I only know it as Xgeva (Denomosaub).
http://www.drugs.com/xgeva.html
Enjoy your w/e - happy running xxx
- Hi @Share... Xoladex is the bone injection & Xeloda is oral Chemo.
I am day 7 of Xeloda, taken am but obviously not pm yet... Have been putting lots of moisturiser on my feet before bed & covering them with socks & keeping up lots of moisturiser on my hands....
I will not allow this to stop my running, its what keeps me sane on this journey!!!!
What day is your appointment??? Yes, @Cate64 - there is a party going on & we are not invited !!
I am thinking that this will be the next recommendation from my oncologist.
Can I confirm that Xoladex is different to Xeloda ?
My dear Mum was taking Xeloda for only 4 months when she developed such dreadful hand/foot syndrome (could barely put weight on her feet to walk) and felt incredibly tired and ill (mind you, she was 77 at time time !). She did not continue with the treatment and sadly passed away 6 months later.
This memory of course is the ongoing fear for me :(
Energy, love & light to us both for next week xx
- @Share them darn pesky TM's.... who the heck do they think they are, partying in our bodies without permission??? I am really sorry you are on the watch, sending big hugs.
I to, am seeing my Oncologist next week...... Meanwhile I am taking Xoladex to hopefully arrest the partying TM's..
