Hi Kari. Your story is my story. I originally had eighteen three weekly infusions of Herceptin in 2013 after original diagnosis. Then, when diagnosed with metastatic breast cancer in the spine in April 2016, I've been on Herceptin/Perjeta every three weeks and have been told that this will go on indefinitely. Like you, I do wonder about long term side effects. I have six monthly echocardiograms and so far so good.
This combo of drugs is seen as being the 'youbeaut' treatment for HER2 positive cancer so I guess you have to weigh up the pros and cons and hope for the best. To be honest, I feel the same about the other medication I'm on - Xgeva and Letrozole. On the one hand, you're trying to extend your life as much as possible but then you wonder if your treatment will one day cause another problem that you have to deal with.
Good luck with your treatment.
