Forum Discussion
6mnths to live
To cut a sad story short, battled and i thought i won. Was due for my 6mnth check up, but three weeks ago got a sore shoulder then lymphadema then a black red swollen chest on mastectomy scar. Arm has swollen to capacity wasnt draining. Barrage of tests pet scan last friday result yesterday. Massage lymphnode invasion tumours wrapped around nerves as pain is shocking. Told very aggressive, offered chemo more radiation and maybe i will see christmas. A wave of white knuckle terror. Sadness guilt shock and a million “what am i going to do” things tushed through my head. Im a very strong oositive person but at that moment i was a blithering mess. I never thought it wS going to get me. I really didnt. I was very vigilant in my approAch to everything. Came through chemo (heavy dose as triple neg and wAs very aggressive) did 16 rounds chemo. 25 radiations. mastectomy. Came through relatively well . Just getting my life back. We had to sell our home because of my cancer. Just moved in 4 weeks ago. Still unpacking for god sake. Finally decided to retire and live my life for me. Embraci g the new me and flourishing then wham. All done and dusted. I would love yo hear a ray of sunshine from someone. Has anyone beat the 6 mnth prediction with anything remotely similar. Ie. aggressive tumours, nodes etc i would love to hear from you. Thank you girls x
52 Replies
- @Me2
So sorry to hear your latest diagnosis, how shocking for you. Let's just hope that they have it wrong & you continue fight & live on for some time. It's good that you have support around you as that helps so much. I hope you aren't in pain, but now you have retired you really need to put yourself first & enjoy life as much as possible.
Best wishes in your ongoing battle. - Yes thank you i will Primex. Im waiting to see if im a candidate before i get involved. Thank you for your time .
- Sometimes they consider costs under special circumstances. It might be worth asking. X
- Thank you Primex, they have said i may be eligable for a trial. I am triple negative with no braca gene. They wanted triple neg with 1or2 braca. I have been told i may be considered. Immunotherapy. However cost is $60,000. We’ve had to sell our house already because of my disease, i cant raise that kind of money. I have peace of mind knowing my husband is now debt free, for the first time jn our lives so the last thing im going to do is to give him more. Its really very sad. As im sure everyones story is. As everyone keeps saying to me, “done give up” and that i surely wont. Life too precious. ❤️
- What devastating news for you and your family. I don't know how they can even give you a time line but I guess they think they have to guess.
My father had terminal lung cancer at time of diagnosis. He was given weeks. With palliative radiotherapy only he lived 12 months. So I'm hoping for you that you will respond to treatment like he did.
Have they offered clinical trial options? Just wondering if that option is available to you too.
Know we are thinking of you. X - @Me2 so sorry that you have been given this news. Crossing my fingers and toes that you stretch the timeline out further.
Xoxo - Hi @Me2,
I have sent you a private message.
wendy55 - @Me2 i have no words that could possibly comfort you. Its so heartbreaking. Live the life you want to live whilst you can and lets hope months turn to years.
TRIKKI2 xxxx - @Me2, I'm also so very sad to read this. My heart breaks for you! As others have said, try to fill each day with special moments, take time to things you have always wanted to do, and surround yourself with those that love you! I truly believe that while there is life, the te e is hope...and believe me, we are all hoping and praying for you! Big hugs xx
- Hugs hugs hugs . Big tight ones . Xxxxxxx
