To cut a sad story short, battled and i thought i won. Was due for my 6mnth check up, but three weeks ago got a sore shoulder then lymphadema then a black red swollen chest on mastectomy scar. Arm has swollen to capacity wasnt draining. Barrage of tests pet scan last friday result yesterday. Massage lymphnode invasion tumours wrapped around nerves as pain is shocking. Told very aggressive, offered chemo more radiation and maybe i will see christmas. A wave of white knuckle terror. Sadness guilt shock and a million “what am i going to do” things tushed through my head. Im a very strong oositive person but at that moment i was a blithering mess. I never thought it wS going to get me. I really didnt. I was very vigilant in my approAch to everything. Came through chemo (heavy dose as triple neg and wAs very aggressive) did 16 rounds chemo. 25 radiations. mastectomy. Came through relatively well . Just getting my life back. We had to sell our home because of my cancer. Just moved in 4 weeks ago. Still unpacking for god sake. Finally decided to retire and live my life for me. Embraci g the new me and flourishing then wham. All done and dusted. I would love yo hear a ray of sunshine from someone. Has anyone beat the 6 mnth prediction with anything remotely similar. Ie. aggressive tumours, nodes etc i would love to hear from you. Thank you girls x

Hi there @Me2. I was diagnosed with TNBC May 2016 aged 43 no lymph nodes involved scans all clear stage 2a grade 3 (3cm tumor) negative for the gene and 8 rounds of chemo no rads as I took the affected boob off then did i the other as a preventative (is your story similar) ?? . So responding to your post has taken me some time as it close to home for me. Please know we are all here for you and you definitely need to stay positive that’s for sure. I would give you the money for the immunotherapy trestment if I had it love. Like you this shitty disease has buggered us and so many others financially too. Have you talked to your friends about a go fund me page or similar? Perhaps your local community can help you with this with a fundraising event ?? It totally sucks that’s you’d even have to pay for it in the first place I have heard about the trials for TNBC and I think from memory @SoldierCrab might have some info or a link to that.? Not sure if it’s the one you’ve mentioned or not but she might be able to shed some light for you. Hang in there love that fat lady has not sung her song yet she hasn’t even taken to the stage Biggest hug to you love. Margie xx

@Me2 So so sorry you've got this devastating news .Cant help you with good news about your specific situation .My mum was given a time line for bowel cancer and lived way longer ,also my elderly father has managed to still be here despite being told he wouldn't make Christmas 2 years ago . Keep fighting & I wish you all the very best in life . Thinking of you !Many hugs xx

Dear @Me2, Very very sorry about your news. Hope those time lines stretch waaaaay out and you have good times ahead.

Dear @Me2 HUG. HUG. HUG HUG. I wish there was something I could say or suggest that would make you feel better. I can tell you that my mother-in-law was told 4 months and she lasted 11 months and was really good right up until the end. What a devastating blow. I know you are hurting and crushed at the moment, but if at all possible I hope they find some relief for you arm and you have lots of moments of sunshine, joy, laughter, giggles, love and kooky fun with those special people all around you. Thinking of you.Nadine

Thank you Primex, they have said i may be eligable for a trial. I am triple negative with no braca gene. They wanted triple neg with 1or2 braca. I have been told i may be considered. Immunotherapy. However cost is $60,000. We’ve had to sell our house already because of my disease, i cant raise that kind of money. I have peace of mind knowing my husband is now debt free, for the first time jn our lives so the last thing im going to do is to give him more. Its really very sad. As im sure everyones story is. As everyone keeps saying to me, “done give up” and that i surely wont. Life too precious. ❤️

6mnths to live | Online Network

Kiwi_Angel
Member
7 years ago
@Me2. I’m so, so, so sorry. Wish there was something I could do to make it better. All I can do is offer support and love xoxo
Me2
Member
7 years ago
Thank you so much kiwi, ive got a lot of love around me. Hope it works. Had such a tough run in my life was praying for a break. Fight might not be done yet.
tigerbeth
Member
7 years ago
@Me2 So so sorry you've got this devastating news .Cant help you with good news about your specific situation .My mum was given a time line for bowel cancer and lived way longer ,also my elderly father has managed to still be here despite being told he wouldn't make Christmas 2 years ago . Keep fighting & I wish you all the very best in life . Thinking of you !
Many hugs xx
Kiwi_Angel
Member
7 years ago
@Me2 so glad u have lots of love and support around u. I too have heard stories of people that were given a timeline and are still going. I’m sure u will fight this xox
arpie
Member
7 years ago
BUGGER BUGGER BUGGER That's a really nasty call @Me2. I hope your swelling & pain can be controlled & that you will be able to do what you want, when you want. All going well, you'll be able to prove them wrong - I sincerely hope so.

Thinking of you big time - and sending big virtual hugs xxxx
Zoffiel
Member
7 years ago
If people being on your side helps, we may be able to wish and hope some more time for you. It's terrible news @me2. Mxxx
Me2
Member
7 years ago
Thank you so much ladies, its amazing how much these wishes encourage me. Ive always been the carer now im finding it very hard to be cared for. All positives help. Many thanks ❤️
iserbrown
Member
7 years ago
http://onlinenetwork.bcna.org.au/group/2-living-with-metastatic-breast-cancer

Can't comprehend how you must be feeling. The link above is to a private group that, if you haven't joined yet, may give you contact with others in a similar predicament.

Take care
Romla
Member
7 years ago
God what can I say to you @Me2? It’s a bloody tough call after a bloody rough ride. Do what you think and feel is right for you . We are here to listen and support when you need us and even when you don’t..XO

PS Kipling wrote once about “ filling the unforgiving minute with 60 seconds of distance run “ Go for it !
Sister
Member
7 years ago
Thoughts are with you.