Hi guys just wondering everyones experience with zoladex? I’ve been on it for a month and last three days i just can’t stop crying.. I have arthritis in my neck and that’s been the worst it’s been in a long time for last 10 days and I’m just not sure if it’s the drug or the fact I’ve been running on adrenaline and working hard with horses to keep me busy after op and radiation etc for 3 months and finally just hit a hole... I think I’m die to start tamoxifen soon as well ... Off to oncologist tomorrow for 2nd injection and will also talk to him but just wondering what people have experienced. Thanks 😊

Thanks everyone. Possibly appears I’m just a bit run down and failing to keep my S$&t together 😂🤦♀️Fingers crossed my neck has nothing to do with it and hopefully will ease up soon. It’s been a 10/10 pain with a day or two relief here and there. Just got home from riding the horses and dreading the hour drive to do injection. Just want a nap! I keep most of my emotions to myself and I really try amd put on a brave face and just suck up the pain but it does get me down so it kind of helps to put it in words here I think so thanks for replies ... I’m glad everyone who has posted seems to be doing well, you are all so positive so thank you 🥰

Hi everyone. I’m feeling very grateful to have found this post! I start radiation next week, and my first injection of zoladex two days later. I skipped chemo, and was offered zoladex or tamoxifen. I asked for a pro and con list of each and it came down to - tamoxifen side effects are easier (except weight gain- that seems to be much higher with T) but there is a small risk of a new uterine cancer forming. Zoladex is much stronger and it’s a horrible needle, but no risk of future cancer (drug related) and has higher % success of suppressing cancer return. Did anyone else get this similar pro con list? Oh, and I was told that if the zoladex side effects were unbearable, I could go down to tamoxifen which wound feel easier in comparison, but if I didn’t like T, there was no way I would go over to the injection instead. It seemed to make sense at the time but as the date gets closer I’m getting so nervous......also I’m having esterimine (daily tablet) with the zoladex. Has anyone heard of this?Thanks everyone and sending hugs to you all- you all sound so brave with all the battles you are each winning.

Hello @Newbie3312,I was on Tamoxifen for five months then had to switch to Zoladex plus Letrozole two months ago. The initial sudden drop or disruption of hormones on any of these drugs is tough. I had severe joint pains, bad insomnia and mood swings in the first weeks on Tamoxifen. It gradually settled down. The switch to Zoladex was fairly uneventful, probably because I had already been on the Tamoxifen. I have noticed joint soreness on Zoladex,/letrozole, but keeping active helps to keep it at bay. I hope you feel better soon. :)

Hi, im not on tamaxofin only zolodex and that is consistent with my symptoms. Ive been on 2 months and happened both months to date.Some hormone emotions like normal cycle too.Hope it helps. Michele

@NelSky I had spotting first month of zoladex and started tamoxifen a month ago. I haven’t had a period since first month of zoladex I’m in month 4 now 😊

Zoladex | BCNA Online Network

23 Replies

FLClover
Member
5 years ago
Hello @Newbie3312

I’m on Zoladex, I had my third injection a couple weeks ago. I was initially worried about side effects, but have to admit I’ve been feeling quite free and wonderful not having 7 day periods, and PMS that sometimes lasts 2 weeks prior to period starting. So I caught myself actually enjoying it 😮. I do have the occasional hot flush, but they’re short and not very frequent. I do also have moments when I just wanna cry, and I do cry, and I get angry and throw tantrums, but it’s not connected to the Zoladex. It’s just the whole bc thing, daughter not listening, shitty covid situation that gets to me at times. And the fact I still need to deal with getting the bc, even though I’ve accepted it and am mostly ok and moving on with life and generally happy. Now, I did have my first Letrozole tablet today, so we’ll see. I’m hoping not much changes 🤞. And I do have a left shoulder that’s in massive pain, but I think it’s due to a bad sleeping position.
Good luck with your injections, I hope the emotions ease up.
Mon Xxx
iserbrown
Member
5 years ago
I had no problems with Zoladex apart from one hiccup in 2 years. I think your thought process of adrenaline and working hard are possibly contributing to how you are feeling. You have been through a lot and need time to reflect and take it all in. Fatigue is normal and perhaps pushing yourself has brought on the emotions!

https://www.bcna.org.au/health-wellbeing/physical-wellbeing/fatigue/

Best wishes with treatment
Dory65
Member
5 years ago
Hello @Newbie3312,

I was on Tamoxifen for five months then had to switch to Zoladex plus Letrozole two months ago. The initial sudden drop or disruption of hormones on any of these drugs is tough. I had severe joint pains, bad insomnia and mood swings in the first weeks on Tamoxifen. It gradually settled down. The switch to Zoladex was fairly uneventful, probably because I had already been on the Tamoxifen. I have noticed joint soreness on Zoladex,/letrozole, but keeping active helps to keep it at bay. I hope you feel better soon. :)

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