TNBC

Hi @Avagomum and @Gal I am also TNBC I finished active treatment in Jan 18 and only see the breast surgeon now every 6 months  and have yearly mammogram n ultrasound  and  breast MRI  every year.  It is very scary sometimes when a new ache or pain arrives I feel like my GP thinks I am a hypercondrac as I always go and see him when something new pops up . I find keeping busy stops the reocurrence  thoughts coming in to my head but they are still there sometimes.  Take care 😀

Makes perfect sense to me @Gal
I think we are in such a routine while receiving treatment and then after treatment finishes we go, umm, what do I do now.
Ive focused on staying in the moment, enjoying the little things.  I paint 🤔 ( let’s just call it abstract painting), I put paint on the paintbrush then whack it onto the paper. 
I sew clothes for my grandkidlings , I sing ( even tho I can’t hit the correct note) in a group twice a month, it’s a fun thing to do.  Mindfulness has been fantastic. I guess I keep myself comfortably busy, enjoying what I do. The occasional ( oh shit ) blimp does surface and this group is wonderful and very supportive during those moments. 
Sending big hugs your way @Gal ❤️

Totally making sense. Many of us feel that way. Including me.

There's a whole section here for this. Have a look:  https://onlinenetwork.bcna.org.au/categories/now-what-the-highs-and-lows-of-survivorship

Big hug @Gal. I'm told it gets better. One day soon I hope. K xox

I am TNBC diagnosed August 2018. Had a lumpectomy in September 2018, clear margins and lymph nodes. My tumour was 2cm stage 1B grade 3, had 6 cycles of  TC chemo every 3 weeks then 30 rounds of Radiation.  I finished my radiation on the 17th of April 2019. I handled radiation really well better than I thought I would. I feel really good not to many side affects just numb feet and sore knees and elbow. I think that is from chemo. I try not to think of a reoccurrence but it creeps in when I least expect it. I feel a little lost at times after treatment has finished due to not going to hospital etc. feels a little strange. I guess for me I feel like yes I have had my operation and I will get better but it's not like that it was cancer not a back operation if you know what I mean. I hope I am making sense.Xxx

I’m TNBC diagnosed October 2018.
Had a a partial mastectomy and two lymph nodes removed, clear margins and lymph nodes, Grade 3 stage 1.
Currently having Chemotherapy, still another 13 Infusions to go then 6 weeks of radiation.
We just have to try and stay positive, and knowing that we will be monitored closely for a few years, so if there was a reoccurrence it will be acted on quickly.
No one knows what the future brings in life wether we have had BC or not.
Lets just live life as best we can
Sending everyone cyber hugs xoxo

I finished Chemo for TNBC in January and radiation therapy 2 weeks ago. I too often think about re-occurrence. I try to put it at the back of my mind. My first post treatment mammogram and ultrasound is not until May. I’m sure as I get closer I’ll think about it more. I keep reminding myself I was only stage 1 (grade 3) with clear nodes. But then a little voice reminds me the first time was a surprise, what if it’s somewhere else? I guess it’s natural to worry, it’s all so new too. It doesn’t help that they’re are reminders of cancer everywhere. I’m lucky that I have people around me for positivity. Xxx

@Avagomum  Hi and welcome to this forum.  It is a great place on those days when your spirit needs lifting, or just to ask questions from people who just get it and have been there before you and understand what you are going through.  As you will see there is a lot of humour and laughs along the way. ( God who would have thought you would get that on a Breast cancer forum hey. )  Like yourself I am one of those 15 % who have TNBC  and I can totally relate to what you are saying.  I think once you are going through active treatment you just concentrate on that bloody big mountain we all have to climb but once we get to the top it's like " Shit I've got here, What now "    So many of us on this forum worry about recurrence and I also know too well the statistics for TNBC but those thoughts do get better with time.  I think once you finish your treatment also seems to be the time you take a deep breath and take time for reflection on what you have gone through and also seems to be when those pesky little bubbles of "What if " pop up .  So many of our friends and family are like "great its all finished now" but its not and never will be. There is no easy answer but try to live life.. One of the lovely members on here mentioned she downloaded the "Insight" app and I did the same thing and absolutely love it for those bad days when you need some quiet meditation. I also have thrown myself onto my exercise bike each day ( not a pretty sight ) and have been out fishing another big passion. I think the trick is to take one small step at a time.  Enjoy the small things like, I love it at night when the fireflies are outside my bedroom window and the moon is coming up, I also love smelling my Frangipani tree before I walk into my house.    It's the little things one day at a time.   big hugs to you. xo

Thanks @SoldierCrab,
I feel pretty weird at the moment, sort of in between wanting to know but not wanting to know. On Friday I managed to rustle up some courage to ask the Onc about my chance of recurrence, hence my “oh shit” mode. 
I still haven’t had the courage to look at my cancer results yet.  12 months ago I was told 75 mm, grade 3, stage 3, with lymph node involvement and that’s all I needed to know, oh , and also how do we fix my “shitty titty”.  I’m not really ready to explore why I’m at high risk. It’s way too confronting for me and even tho I’ve completed my treatment, I think I still have my head stuck in the sand. 
The TNBC Facebook group is great. 👌

Thanks for  your support SoldierCrab
Have a fantastic holiday 

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Thanks @arpie, 
Keeping busy seems to be the key to keeping the worry away. Your Uke performances sound like they are lots of fun for all involved.  
 I think I was so focused on being positive throughout my chemo treatment,  that I didn’t acknowledge that it might come back until after my treatment was finished and then I thought, “what’s stopping the cancer!”.  Then I thought “shit”,I’ve got cancer😳, then I thought to myself “self, you’ve had cancer!”.   The thought of it returning is ‘blah’.
Youre right tho Arpie, music is very therapeutic, I’m thinking I’ll put on some music and do some gentle boogie with my vacuum cleaner, that  will tackle the cleaning and exercise at the same time. 

Thank you for your support arpie 
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hi Avagomum, 
sorry you find yourself in this shit fest called TNBC 

I am away from work so typing on my phone which I am not good at... so excuse any mistakes. 

Have you got a good Breast Care Nurse ? it might be worth sitting with her and discussing in depth the reason why the Onco has said high risk .... all TNBC is higher risk of Recurrence as I understand it ... 
but Saying that I am now 6.5yrs NED (no Evidence of Disease) 

Ask any questions.... 
If you wish there is an Australian group for TNBC on facebook. 
https://www.facebook.com/groups/1166665270079659/ ;  I am part of the admin of that group. Lots of ladies some like me with NED some with Mets some with recurrence but a great supportive group. 


I am presently away on holidays so hence my use of phone... 
Happy to answer any questions if I can. 

Soldiercrab