Hi all, I first want to say how grateful I am to everyone for sharing their stories here, they often help when I'm struggling. That said I'm finding things particularly hard at the moment. I was originally diagnosed oct 2019, her2+ er-, with large lump and lymph node involvement. I had ac then Taxol, 2 lumpectomys to get clearance and then radiation along with herceptin until Jan this year. I had a good response to treatment (pathological complete response). But this year I'm finding it so much harder! I was okish last year with a few little hiccups but this year I find myself so much more depressed with life and I don't get why. My son who is 7 has developed quite severe anxiety especially when it comes to me this year and it just seems to be getting worse no matter how much support we get him and how much energy I pour in to him.And now this week, I reported to my breast care nurse some tenderness I had in my boob. I had told the surgeon about it on Nov when I saw him but he just said it was radiation side effects. This week the nurse felt my breast and said it was probably just scar tissue that is pulling now I am doing more exercise but recommended an ultrasound. The ultrasound showed some abnormality in the ducts near my scar tissue so now they want to biopsy which I'm having done tomorrow. I'm trying to stay calm and think that it's all fine until I know otherwise but I'm finding it hard. I don't know how my young kids will cope if it is the worst? My son is already struggling so much. I guess I just am hoping people can tell me good news stories of when they got a biopsy post cancer and it turned out to be ok.

Thank you so much @arpie @Cath62 and @MicheleR for your messages. I really appreciate the support. The biopsy went ok, the usual pain and discomfort and seeming oblivion from the radiology staff as to why this might be distressing. I have a telehealth appt with my breast care nurse on Monday so I'm crossing my fingers that the results will be back by then and will be all ok. I'm just trying to tell myself that it's going to be nothing (I figure there is no point thinking the worst). I'm feeling emotionally drained which is making parenting tough but I'll get through. I hear you @arpie about the wait times! I can't imagine how hard it would be to rural and the extra delays! Congratulations on both of yours being ok.@Cath62 and @MicheleR my son is seeing a psychologist and we are trying to get extra supports for him. And I've just been linked back in with the hospital psych for me. And my gp and I have a plan to try to tackle my depression and a line in the sand when we give up on this one and go straight to the drugs. So hopefully I will start to see some light soon. Thank you again. I'll let you know how I go

Oh bugger @Lythe - I am so sorry to read this - definitely not the news you wanted to hear. :( I can only imagine how you are feeling right now ..... I know how I would be feeling - totally devastated. :( Please talk with the team here and/or your breast care nurse to access the necessary support to help you get thru this. Scream and shout all you like here ... let it all out and we will also help you thru this. Xxtake care xx. I know that you are feeling totally gutted and hope you have a good support network around you xx You CAN do this xx

All the best for your biopsy today, @Lythe ... I had 2 call backs on my anniversary reviews, so know what you are feeling only too well. Xx Mine were both clear, but the delays (being rural) had me screaming and shouting at the radiology places .... so just more unnecessary stress than was needed. :(take care - we’ve got fingers and toes crossed for good results! Xx if you find the stress is ‘getting to you’ and the family, please talk with the BCNA hotline or your breast care nurse on coping mechanisms xx

Dear @Lythe,Hope your oncologist and surgeon talk to each other!from jennyss in Western NSW

Well, I came down with a cold just after my first treatment so I have been battling that. I skipped my 3rd round to try and get on top of it but it's still lingering so we went ahead anyway on monday with the paclitaxel, herceptin and pertuzamab. They also swabbed me again to test for everything but I came back negative for all the common virus and bacterial infections. I just have to ride it out I guess. I am super exhausted but I'm not sure how much is the drugs and how much is the cold. I thought when I started treatment again it would be like starting at the beginning but it's been more like starting at dose 13. I've had acne and diarrhea and soooo much fatigue. But! To end on a note of positivity, there has been definite signs of shrinkage and the onc is happy that there is signs of good treatment effect. I will have an ultrasound in a month or so so verify it looks like it's heading in the right direction. So, while things suck right now, this will pass and there will be some better days ahead

New boob abnormality | BCNA Online Network

25 Replies

Lythe
Member
5 years ago
Thank you everyone. It's a tough week. I got prescribed some Avanza which has the bonus/negative that it makes me incredibly drowsy. It's good because I'm finally getting some sleep but bad because I feel like I'm never waking up! But that will settle after a little bit I'm sure. I always have big reactions to medications.

I managed to get a PET/CT scan sorted for tomorrow so they will have those results by Monday afternoon when I see the surgeon. I'm just crossing my fingers and toes that it's just a localized recurrence. I guess we will just have to see.
Locksley
Member
5 years ago
@Lythe sending you a hug. xxx
Giovanna_BCNA
Member
5 years ago
Hello @Lythe I am sorry to hear the news that your cancer has returned in your breast. How devastating for your and your family. Dont hesitate to call our helpline on 1800 500 258 if you need to speak with a nurse for information and or support. Wishing you well with your upcoming treatment. Take care of you,
MicheleR
Member
5 years ago
Hugs x
FLClover
Member
5 years ago
So sorry @Lythe 😢. Please make sure you have support, so ask the onc if they can provide you with a counsellor if you don’t already have one. Come back here if you need a vent and chat. You’ll be ok, just take it as easy as you can ♥️
arpie
Member
5 years ago
Oh bugger @Lythe - I am so sorry to read this - definitely not the news you wanted to hear. :( I can only imagine how you are feeling right now ..... I know how I would be feeling - totally devastated. :(

Please talk with the team here and/or your breast care nurse to access the necessary support to help you get thru this. Scream and shout all you like here ... let it all out and we will also help you thru this. Xx

take care xx. I know that you are feeling totally gutted and hope you have a good support network around you xx You CAN do this xx
Lioness25
Member
5 years ago
@lythe I’m so sorry to hear that. Yes, definitely look to see if there’s something else out there that can help. Hopefully they caught the cancer early and are able to stop it in its tracks. Sending you lots of virtual hugs and positivity xoxo
Lythe
Member
5 years ago
I got the results today and unfortunately it wasn't the good news I was hoping for. It is the same type of cancer back in my breast. I see the surgeon next week (he is away this week) and I'm guessing surgery, pet/ct scans and starting the whole thing again. I've got an appt with the gp tommorow to talk anti depressants (for me). I can't have effexor because I had an allergic reaction to it many years ago but we will look at others that are around. I just am a bit of a basket case right now.
Lioness25
Member
5 years ago
Hi @Lythe,

I’m sorry to hear you are struggling and also about your son. I hope you received some good news today re your test results.

At my first yearly check up I had what they called a change in my breast tissue. They did a biopsy and thankfully i didn’t have to wait too long for the results and that it came back clear.

I have also struggled with Anxiety for quite some time. I was seeing a therapist for a few years. My anxiety kept manifesting in all different ways. Not least of all I would wake up first thing in the morning and feel it wash straight over me. It wasn’t until I was at work one day and my heart was beating strangely that I freaked out (was worried I might end up having a heart attack or something) and went to see a GP just to be safe. They ended up telling me that I should go on Effexor (which I wasn’t taking at the time). The added benefit being that it would also help with my hot flushes.
I have to say, for me, the Effexor has been a life saver. But probably not something you want prescribed for your son given how young he is. Perhaps he might benefit from seeing a psychologist?
Sending lots of positive thoughts your way xo
PV123
Member
5 years ago
Hi @Lythe

Sorry to hear that you have to go through the stress again. I also had her+ /. Er+ BC diagnosed in September 2019 last year. I have been called back for further ultrasounds / tests in the past due to having dense breast tissue. A friend of mine was called back for biopsy when something abnormal came up on the mammogram. Biopsy showed a cyst, nothing abnormal.

Thinking of you, sending you hugs

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New boob abnormality

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