Letrozole for the next 10years..

Thanks @Locksley. I am in the carers group re my aging parents and now Colin too. We are positive for him as it is early and hasn't spread. But loosing a kidney isn't great.

Thanks @iserbrown. Waiting is hard.  We have done this many time. 5 malignant cancers for me and Colin had tonsil cancer 15 yrs ago. At least we know processes I guess.

I realised my lil pill is peach colour (to be precise) not pink 🍑 

@Afraser Whoop! You are almost at the 10 years mark! I am on day 2 lol

@Locksley @Cath62 I am taking it at night after dinner. The instructions says some people may be nauseous after taking it and I had enough of that during chemo. I am also hoping to sleep off anything else (hot flushes permitting)!

@Cath62 I am sorry to hear about Colin. Sending you a hug!

With my mother initially I wrote it down and put it in a place she always looks first thing in the morning (she’s still on chemo then radio but similar re needing medication reminder), and initially I text her each morning to remind her until it became a habit. In my journey with chronic health conditions I found tricks like setting an alarm on daily that I’d rename as ‘meds’ so it wasn’t visible to the household but a prompt for me, or use the prompt of preparing school lunch with the meds near the chopping board behind the Vegemite so it was a clear daily prompt (especially as my son rarely prepares food outside of microwave/toaster). Another friend has her meds next to her toothbrush in the vanity which she finds helps as a prompt for her to take meds in the morning or straight before bed whilst discreet from family/guests. Maybe one or a mix of these ideas can work for you. Hth

Thank you @GenK. Great ideas there! 

I keep mine near where I serve up dinner, so I can't 'miss them' - I have taken them at night with dinner for YEARS - but more recently I started taking them in the morning - but I think I will go back to the evening again, as I've been a bit achy again recently.  Taken at night, I believe they 'work their magic' and you shouldn't notice the aches so much as you should be in bed!

I put them all in the one box (each packet it totally different, so you can't take one twice by accident) and I've added my 1/2 Minax as well to the box, so everything is in the one packet.  (Tho if you go to hospital, you need to take the complete box with you or they won't accept them!)

Locksley said:

@Cath62 your up early.   I found when I was taking it in the morning I would have a lot of joint pain and difficulty moving for the day. 

By taking it at night I figure I'm asleep well mostly asleep so hopefully not too impeeding on the next day.   

I am so slow when I walk I cant walk fast enough for any cardio for exercise or weight loss.  If you were to see me move you would assume I'm 25 years older than I am.

I'm currently having leg pain, foot and heel pain, I still have some neuropathy in my toes.  My legs are twitching.   Once my sleep apnoea is sorted my dr is going to investigate restless leg syndrome.   Sometimes I wonder when will it ever end.

But then I remember all I have overcome and I am happy to be here so I shuffle forward.  

Magnesium tablets is very good for restless leg. Hope that helps

@Julez1958 I have put an alarm in my phone to take the pill - at a time when I know it is easier for me to walk to the kitchen drawer and gulp it down 

Jesus just Bern to oncologist for script for letrozole which I start taking after radiation.
My god the side effects more than I thought blood clots,gums n teeth list is endless.

Deep breath, you may never get some of them! 9.5 years on Letrozole, no
blood clots, no gums or teeth problems, no aching joints, no hot flushes. It has had some side effects, but so far manageable and the end of taking those little peach coloured pills is in sight! For many it’s a balancing act between some side effects and the (unseen) good it may be doing to keep cancer away. One may outweigh the other. Bottom line, you can always stop but I think it’s worth finding out how Letrozole affects you specifically before deciding against the possible benefits. Best wishes. 

Yes agree - try it and see what if any side effects you get and then discuss with your oncologist  what might be fine to counteract them.
Best of luck 🌺