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cranky_granny's avatar
4 years ago

Genetic test Now after nearly 5 years

Well here i go again. This will be a bit long winded
The woes of the waiting game. 
Saw the Oncologist this time round Told her the guy I saw last time was a bit unhelpful. 
now because so many siblings and a parent having suffered cancer it appears its worth looking into. 2 brothers, dad plus 2 paternal cousins. When i was diagnosed only my little brother had colorectal cancer, Since passed. Then Dad oesophageal he lasted a year. And then another brother with prostate cancer with bone Met. 
Hope its all coincidence. Time will tell. 
To top it off my blood tests weren’t impressive 
so after the genetics comes back I’m off for a CT scan and bone scan and another blood test 
My colonoscopy/gastroscopy wasn’t the greatest no cancers but polyps removed from the duodenum through  plus inflammation from the oesophagus through to where ever. And now have to see another specialist. 
according to Oncologist the digestive problems aren’t related to my treatment
does the complications ever end. I know my sacral  lesion has been a more of a pain or maybe the stress of life is just making it harder to deal with all the side effects of this shit show. 
Sorry to rave on but it’s better out then in 
Here is where i know I won’t be judged. 
Also thank goodness for Friday funny’s 

  • @arpie haven’t had the latest round of tests done they start on November 8th. 
    Bone scan and CT scan then off to get the blood test on 14th the oncologist on the 18th for the results. Still waiting for genetic results. Maybe no news is good news.
     It has been Tough. Im heading to Taree to see my other sister as soon as we are allowed. Its been a long 18 months. Thats for sure. 

  • Coming up to 3 months since genetic blood test and still no results 
    to make everything worse no written report again with my bone scan or the CT scan they did yesterday morning
    its like talking to a brick wall with these people to pass on the reports to me. 
    have booked in with my GP to get him to get up them. Anxiety going through the roof over results. 
    Someone said today maybe no news is good news. Obviously they haven’t been there or done this shit show of MBC 

  • Hi @cranky_granny
    I have the same problem with tests, but I have my doc and oncologist clued in and they send me a copy of every result, even if they do need reminding sometimes!

    The waiting is one of the hardest bits in all this. Everything takes time and it can be incredibly frustrating. Most people just don't get how stressful it can be.

    I hope you get your results soon. 
    Best wishes xxx 
  • @Sue_w
    Just back from GP not the results i wanted from bone & ct and now off to ultrasound this afternoon at 3pm then back to GP tomorrow for results 
    oncology next week to find out where too from here
    such is life. Glad i went to gp at least i know and not waiting another week on tenterhooks might sleep tonight 
  • Oh @cranky_granny, I  wish you all the best! Glad you got some results back, I hope the rest are good for you.
    Take care xxx

  • That is FANTASTIC NEWS! Great to hear @cranky_granny :)