Forum Discussion

Christine_Marie's avatar
Christine_Marie
Member
12 years ago

Update & follow up:)

Hello to everyone:) hope all is going well for everyone... Just thought I would let you all know how I'm going... So I had my follow up with the gynecologist last week & she seems to be happy that all went well & extremely happy that the hysterectomy was done in time before the nasties had set in, so I'm feeling pretty lucky :) I am so glad my doctors made me have that ultrasound & biopsy However she did say the healing process is taking longer because I'm on tamoxifen!!! so I asked her if I could go off it so I can heal quicker & she just laughed at me & said a Big fat NO..... Anyway tamoxifen for me is not so great:( I have so much Nausea everyday & the hot flushes are out of control, just insane.... I have tried a few things like half of tablet & staggering it & nothing seems to help...so tired because the Hot flushes are waking me up constantly ... I feel like I have a bad case of morning sickness.. That's the only way l can describe it.... I just want to ditch this part of the journey right now... So my gyno has referred me to the menopause clinic to see if they can help me out...is there anyone else having this much trouble with Tamoxifen ???? On a lighter note! I finally got my income protection approved at long last..my first payment went in last Friday wahoo I feel rich:) they back paid me from dec through to march..they did say before they pay me anymore I have to prove my hysterectomy is in relation to my breast cancer...I thought to myself ! are they for real??? So now I have to give them permission to go into my files at KEMH.... They really make it hard for you, its taken them six months to give me 3 months of wages.... No wonder people give up!!!So anyone who is applying for their income protection, don't give up & keep at them as much as they are at you!!!!, Until next time.....take care everyone:) & big((((hugs))) to you all:) Christine:) xox
tamoxifen

10 Replies

  • sonzy's avatar
    sonzy
    Member
    12 years ago

    Ok Deanne. Finger crossed I'll still keep feeling ok. Interesting that stress seems to contributed to your symptoms. 

    Thanks for the info.

    Sonya

  • Deanne's avatar
    Deanne
    Member
    12 years ago
    The nausea was there straight away for a few days. Now it comes and goes if I get a bit stressed about anything. The hot flushes also come and go but I had been having them since chemo pushed me into sudden menopause. It's great that you are going well so far. I really hope that continues. I really don't think that my side effects are a problem. There are quite a few ladies on here that find they have no trouble with Tamoxifen. Good luck. Deanne xxx
  • sonzy's avatar
    sonzy
    Member
    12 years ago

    Hi Deanne

    I have only been on Tamoxifen for 10 days. So far so good, but I'm sure there are side effects coming. Do you remember how long it took for yours to kick in?

    Sonya

  • mgndam1603's avatar
    mgndam1603
    Member
    12 years ago

    You just reminded me Deanne, funny how things slip from the brain, I had to pay $120 to my GP every time my paperwork had to be completed.

    That can't be claimed either its just money out the door. However they were very good at getting it done no issues and because I couldn't always drive they posted the paperwrok off for me.

    So funny my husband and I had piles of paperwork all on the dining room table that had to be collated, doctors certificates, test results, my Position description from work etc, I also had multip-le insurance to work with as I had income protection and loan insurance so 2 different companies.

    Donna

  • Christine_Marie's avatar
    Christine_Marie
    Member
    12 years ago

    Wow you have a full on 6 months ahead of you Sarah...I hope it all goes well for you:) Yes they wanted to know if I could walk on uneven ground & how much weight I could lift, some of the question are really silly, I couldn't apply for insurance until after 90 days of being off work & they pay 75% of my wage..... Hopefully they will keep paying me until I'm ready to go back to work:) take care Sarah... Christine:) xox

  • Christine_Marie's avatar
    Christine_Marie
    Member
    12 years ago
    Yes I do think it is the tamoxifen!! I have been skinny all my life & so I know that's not the problem..I did put on a little weight through not being so active... but that is slowly coming off... I guess your right we are having to live with side affects of tamoxifen & hopefully theses affects should die down.... Hoping the menopause clinic can help me out..... I'm so glad you didn't have any issues with your income protection & they happily paid you... I just hope they keep paying me..... Take care Donna:) Christine:) xox
  • Christine_Marie's avatar
    Christine_Marie
    Member
    12 years ago
    I hate it when you know your entitled to this insurance & they try to Bork you with lots of paper work & authorisations, one form had to be completed by my GP & that cost me $85...I think this is why people give up..I kept saying to my hubby just forget it there not going to give me anything...he just kept at them.....that's my man lol... Now that I have some peace with some income:) hopefully all these tamoxifen side affects will settle down...I was scared in the beginning of having to take it only because I didn't understand it properly, so thanks to you Deanne & a couple of others on here, you educated me on it & mentally prepared me for it...I know this gives me a better chance of keeping me cancer free....I just hope I come good soon.... I try not to sweat the big stuff....I have simplified my life & enjoy the little things I have in my world....thanks Deanne...take care:) Christine:) xox
  • Christine_Marie's avatar
    Christine_Marie
    Member
    12 years ago
    I think some of these people from insurance need some education lessons on the affects of what cancer actually does to a persons life emotionally, physically & financially I nearly did give up, but my husband said no way we are going to fight this just like you are fighting breast cancer & when he is onto something, he is like a dog with a bone lol...god bless him:) Gosh Robyn I have tried to count mine but kept loosing count, because I am having so many of them... glad I'm not the only one having these problems & when you say you haven't had much sleep because of them I can synthesise with you there, I wake up exhausted... all I can say is that I hope they settle down soon for us... The nausea happens when I have food!! I have to sometimes go into deep breathing mode to keep it all down... I try not to let it take control of me & some days are harder than others, I just want to get back to normal but I think this is my new normal for now :) my naturopath has a natural alternative to this but, I'm not confident enough...I hope things are going well for you with your osteoporosis:) take care Robyn.... Christine :) xox
  • mgndam1603's avatar
    mgndam1603
    Member
    12 years ago

    I did have the nausea for the first few weeks and then it settled, not so the hot flushes and at times night sweats. My doctors have told me to try and loose weight as this should help but I know others that are slender and still have them so I think its just something we have to live with.

    I was lucky I think with my income protection, once I was set-up and had the initial paperwork and test results all sent my payment went through no problems, each month I sent off a form that was signed by my GP stating my ongoing case and it was paid. When I had my Oophrectomy there was no issue at all my GP stated it was for precautioary reasons and they accepted that.

    Good luck wiht it all.

    Donna

     

  • Sarah54's avatar
    Sarah54
    Member
    12 years ago

    I am having a double mastectomy July 3rd and I have to fill out yet another form not before July 15th as to why I cannot work and tell them my syptoms and their severity! They already have my careplan for 6 months dated and stamped by my oncologist, I have 6 weeks of daily radiation starting in Aug and also another cycle of 6 chemo's...........I think this mob's second language is English. Oh not to forget I have to answer "how many swats I can do" and what I do on most days............at home!

    I am sending some graphic photos this time! Yes keep at it and they happily take your preminum for years, they owe us and not the other way round.

    Good Luck

    SarahX