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Brenda5's avatar
Brenda5
Member
9 years ago

Tamoxifen to blame for my eye troubles?

I've have been on Tamoxifen for about 8 months and am 54. In the last couple of weeks my left eye has suddenly gone like a mosaic of snow flakes in vision (comes and goes) and my optometrist found a blood clot blocking one of the veins behind my eye. It looks on her screen like an embryo of an egg, you know with the red spot in middle of a vein?
She flew in to a panic, wrote a scribbled referral to my GP who on Friday afternoon was off at golf so I saw another GP in the same building who didn't really have a clue what to do so she rang the emergency Dr at the general hospital who said they don't have an eye specialist there and we would have to travel from Burrum Heads to Brisbane to get it looked at. Brisbane was supposed to ring us with an appointment but to date they never did. It greatly upset both me and my husband as it sounded like I had a clot and was going to die or something which I am not. I got on to a private specialist in Hervey Bay who said the earliest appointment is end of January. Still with me?
Anyway, I have found what it is. Central retinal vein occlusion or CRVO. There doesn't seem to be any curing treatment, just management. I also looked up side effects of Tamoxifen which do list eye troubles in their side effects. Since I have low not high blood pressure and no heart troubles and my cholesterol levels although elevated slightly were not in the too high category I am thinking the eye trouble is from Tamoxifen?
I will get on to my oncology specialist tomorrow for an appointment and see if we can switch from Tamoxifen to something else which hopefully will not effect my eye.
Has anyone else had eye troubles like mine on Tamoxifen?

22 Replies

  • Hi Brenda,

    I was on Tamoxifen for 4yrs, but didn't have any eye troubles at all. I have however had eye troubles since finishing Chemo...in a panic went to the Optometrist a few months ago as my eye sight has deteriorated dramatically and Im only 48yo. She said that it is age only and not attributed to Chemo or any medications in my instance. Certainly scary what youve just gone through I agree!!! Certainly check with the oncologist. I must admit cannot wait to be DRUG FREE!!!! Makes you question alot of the medications and treatments we are put through in terms of side effects etc., Im looking alot more into natural medicine, lots of things help. xoMelinda 
  • Hi Brenda, Have not had anything but have definitely noticed my eyes are a lot drier on Tamoxifen. I wear contacts at work and now constantly carry eye drops for them so I can replenish the moisture whenever needed. I had read before I started taking Tamoxifen that it can cause eye issues and that monitoring was recommended.