Tamoxifen sweats! How do you manage your smell?!

@LMK74,
Don't you just love it when doctors tell you something doesn't cause the side effects your getting when you bloody well know exactly what it is. ????  I had severe brain fog, couldn't think stratight and most days couldn't remember my own name.  Their answer, on no its not the Tamoxifen.  Go off it and was vastly improved, on it again shocking.  Same as you, a quick google and lots of people having the same problem.  I guess it's just all in our head and they know better right? Phooey

@LMK74 

Sad to read your side effects, how debilitating!  Have you tried or considered a Physio for Bladder?

This link is Melbourne based but gives good information
https://www.thewomens.org.au/health-information/continence-information/urinary-incontinence

Otherwise I found this for Brisbane

https://activerehab.com.au/services/continence/womens-health-continence/

Hope the info helps and you get some strength back again in this area

Take care

@LMK74 I'm so sorry Lisa. Letrozole/menopause has irritated my bladder but nothing like that. You poor thing. Sending you a big hug, K xox

Hi ladies, I have been taking oxybutynin/ditropan for 5mg twice a day for around 9 months. I'm on it for OAB/overactive bladder thanks to arimadex and zoladex and being forced into menopause. It does help with hot flushes but there is a down side for me at least. I'm chronically fatigued all the time, my brain is like fog to the point I can't think straight. Severe dry mouth. Told my oncologist this and she said it's not that. I disagree as if you read user reviews of this drug it's a common side effect. Obviously everyone reacts different but I took myself of it for a week and guess what? Some of that foginess lifted as did some of the tiredness and dry mouth. If I don't take it I piss myself and wake up in the night wet. I hate what breast cancer has given. At 45 I feel like an old lady.
I'd be interested to know how anyone else taking oxybutynin feels since on it.
Cheers Lisa 

If you're going to get deodrant go onto the nourishedlife website and try out no pong deodrant paste or black chicken. Both very effective however if you have sensitive skin choose the sensitive skin option. It is however a paste but the bicarb kills the bacteria that causes odor!

Oh yes @arpie, I sure am (10 - 15 a day). I'm attempting to enrol in the QUE trial so can't mess with anything at the moment. Howevet if for any reason I don't qualify, and at the end of the trial, I will be speaking to my oncologist about it. They are brutal and I am utterly fed up with them. Almost two years of them now. I am OVER it...

The tamoxifen was causing my hot flushes. This is the study the oncologist referenced when prescribing the Oxybutynin: https://www.ascopost.com/issues/january-25-2019/oxybutynin-for-managing-hot-flashes/

@kmakm - this Oxybutynin sounds interesting that @Sydneygal has just mentioned ...... are you still getting those hot fluses as regularly as last year?

@Sydneygal  - welcome to the forum!  It is tips like yours that helps us all help each other xx . Feel free to put a new thread up, telling us your story to date .... we all have a story to tell.

take care & all the best xx

My oncologist has just put me on very low dose Oxybutynin for the hot flushes. Half an hour after taking the first dose the hot flushes stopped. I’ve just had my first two nights sleep without waking up from being too hot.

@Mightystar yes the hot flushes are just awful, I am about 10 months in and must say that I have started to get used to them, even though as the weather is warming up I feel like I’m getting more sweaty now.  I like other ladies have mentioned just carry a deodorant spray with me everywhere and have found that wet ones/ wipes are a good thing just to freshen up if your out or at work.  I also find a really good body scrub/loofah really seems to revitalise your skin from that stinky sweaty feeling