Forum Discussion
Oncologist visit yesterday, am being pulled off Arimidex for 6 weeks..
Hey everyone!
I had my Oncologist visit yesterday as I had a reminder last week, I did call and say I didnt need to go as I have surgery in a week haha...the lovely Secretary laughed and said NO youre coming in. So he was pleased to hear of my surgery as we laughed as I said I wasn't haha! So we discussed how things were going and particularly as Im on Arimidex and he's decided to pull me off it for 6 weeks and wants me to journal and log all things that are apparent right now...and that way he said he can work out if it is the Arimidex or just Menopause. He does this with some of his patients because sometimes its the medication and sometimes turns out all the side effects are in fact menopause and unrelated to the medication. If it is the medication he will look at changing to a brother or sister of it LOL which I didnt know there was, but he said I couldnt do Tamoxifen as it wasnt effective. He was aware of the latest news from the Breast Cancer Foundation on the findings of Tamoxifen not working in 1/3 of cases and how its learnt to grow inspite of it and replicate. He agreed it seems to be the case and did say that my recurrence could have been attributed to that....BUT I also had radiation too...so he CANNOT EXPLAIN IT...apart from Cancer is SNEAKY...WOW that gave me confidence after having undergone life changing treatment wih Chemo in my recurrence 2015 LOL.
He also said if you have high Oestrogen levels on Tamoxifen, do not be alarmed!!! it simply means it is working, and not that you are higher risk of recurrence.
Thank God for a sense of Humor!!!! Yippee!!! Oh but have to go back on Arimidex at 6 weeks. Eventhough Im like I have surgery next week how the hell am I going to track my side effects dealing with that!! :/
I had my Oncologist visit yesterday as I had a reminder last week, I did call and say I didnt need to go as I have surgery in a week haha...the lovely Secretary laughed and said NO youre coming in. So he was pleased to hear of my surgery as we laughed as I said I wasn't haha! So we discussed how things were going and particularly as Im on Arimidex and he's decided to pull me off it for 6 weeks and wants me to journal and log all things that are apparent right now...and that way he said he can work out if it is the Arimidex or just Menopause. He does this with some of his patients because sometimes its the medication and sometimes turns out all the side effects are in fact menopause and unrelated to the medication. If it is the medication he will look at changing to a brother or sister of it LOL which I didnt know there was, but he said I couldnt do Tamoxifen as it wasnt effective. He was aware of the latest news from the Breast Cancer Foundation on the findings of Tamoxifen not working in 1/3 of cases and how its learnt to grow inspite of it and replicate. He agreed it seems to be the case and did say that my recurrence could have been attributed to that....BUT I also had radiation too...so he CANNOT EXPLAIN IT...apart from Cancer is SNEAKY...WOW that gave me confidence after having undergone life changing treatment wih Chemo in my recurrence 2015 LOL.
He also said if you have high Oestrogen levels on Tamoxifen, do not be alarmed!!! it simply means it is working, and not that you are higher risk of recurrence.
Thank God for a sense of Humor!!!! Yippee!!! Oh but have to go back on Arimidex at 6 weeks. Eventhough Im like I have surgery next week how the hell am I going to track my side effects dealing with that!! :/
18 Replies
- All the best for Monday, Mel - sending you lots of strength and a big hug xxx
- Hahahaha yes a good cry :smiley:
- Crying it a good thing Mel you know that ..... it allows our body to get rid of stressors this is a good cry right ;)
- Awwwww OMG Alice!!!! DAMN!!! Like I need another reason to cry right now.....uuugh!!!! Thank you for your kindness and being so selfless xx Hugs
for you Melinda- Harley thats interesting and possibly you are right, it may take a while so here's hoping! @"Hopes and Dreams" I'll definitely let you know how it all pans out and if there is any change, I too am super interested because its either Chemo, Arimidex or Menopause or all 3 or maybe 2 at least I can rule this one out! Alice Hugs to you too!! Thank you! and Brenda thanks for the wishes :) xo
- Sending you hugs and energy to deal with the next phrase Melinda :D <3
- All best wishes for your surgery on Monday Mel. <3
- I'm really interested in hearing how much different you feel off Arimidex Mel. I sort of have the opposite problem. I've been taking Arimidex for 6 months and feel no different. A tiny bit stiff in my joints but this goes away with exercise. I'm post menopausal already had some hot flushes before going on HRT pre cancer diagnosis. Since I stopped taking HRT I am getting a bit of heat at night but not too bad. I had a blood test a few weeks ago to check all my levels and I see my GP in a week to go through them. I'm just afraid Arimidex isn't working. Getting side effects would give me more peace of mind.
Enjoy the Arimidex break Melinda, I hope it makes a difference to you. Jane xx - Yes, feel like an old lady walking on hot coals sometimes! That's me! It's horrid however it's comforting to know it is others as well...............goodness it keeps on giving!
Wishing you a smooth recovery
Take care xx
