Forum Discussion

Kiwi_Angel's avatar
7 years ago

On the Tamoxifen Train

Finally bit the bullet and took my first tamoxifen today. Took it without food and no nausea so that’s something. Will just have to see how this next phase goes!!

16 Replies

  • Hypervigilance is helpful during some states of cancer treatment, I'm not so sure when it comes to hormone treatments. I mean that in the nicest way, but it worries me sometimes that concern about possible side effects can become a really intrusive thing. 

    There are things that you do need to monitor closely, things which can be really dangerous, but I'm not sure that getting wound up about every possible issue that may, or may not, eventuate does anyone any favours.

    This is just an observation from personal experience; those who finish chemo with a raft of aches and pains seem to struggle to recuperate once hormone treatments start doing what they are designed to do--shut down all those lovely, youth sustaining juices. I don't think the AIs have made me worse, I think they have stopped me getting better. That has been a miserable experience which has multiple flow on effects but it's only speculation that the AI is responsible for everything. Personally, I blame the TC for the pain and the vagueness because that's where I ended up when the poisoning stopped. Too late to do anything about that now. The only way to find out what is causing the damage is to stop taking the medication. At the moment I'm reluctant to do that, if I take that action and nothing improves, I think it might be the last straw.
    I had zero side effects with Tamoxifen. But then, it didn't seem to work that well for me--no pain no gain?
  • Hey @"Kiwi Angel".

    Not too bad so far.  The flushes seem to be staying away so far, so Yay!  Mind you that could be because it was -2 yesterday and has been  freezing every night but I think they may have subsided after the last break. 
    It normally takes about 6 weeks with me for it to really ramp up so we shall see.  I often get a few pain and twinges that kind of feel like something is going on in there but nothing too annoying in that respect.   I haven't really had any problems with nausea either..........got every other bloody thing though LOL.  I have my fingers and toes crossed for you.  

    xoxoxo
  • Just started to get weird stomach pains this afternoon that are kind of like period pain - Im hoping totally unrelated and will go away.
  • @kmakm. Had to be done - couldn’t put it off any longer. How r u going @kezmusc??