Having a moment

Question

Sorry just having a moment 😞😞😞😞So in July 2017 I was diagnosed with breast cancer in my right breast, I had a mastectomy,underwent chemo and radiation treatment. I lost my Dad and my brother in that time as well.In October 2018 I meet an amazing plastic surgeon and started reconstruction, I was so happy , even though every time they filled up the expander it felt like my skin would rip, it was so nice not to have a big hole in my chest .. so last week I went in to have my final part of reconstruction done and my journey was going to be over..&nbsp;After the surgery, I was doing great my new boob is sensational 🤣🤣 then I started getting pain in my arm and hand , I lost all feeling in my fingertips and they &nbsp;didn’t have blood flow, rushed to a different hospital, CT scan and tests done, I had a mayor blood clot in my arm .. rushed back into surgery it’s all sorted now but the blood clot was caused by me taking Tamoxifen...&nbsp;ive always been told that this is the drug that will save my life and prevent the cancer coming back so I put up with the joint pain and night sweats .. and now this ..I’m on blood thinners and I can’t have &nbsp;tamoxifen anymore, probably won’t get the feeling in my fingertips back and it will take months to repair the nerve damage in my arm ...life can be really cruel ...Thanks for letting me vent💕

sister · Answer

Shit!&nbsp; Vent away!&nbsp; Sometimes things are just so hard.

allyjay · Answer

Hi there @Annetted...sorry to hear of the latest development for you. I have been on blood thinners, heparin, clexane and mostly warfarin for over twenty years now. Long before the breast cancer, diagnosed in 2016, I have had pulmonary embolisms as well as dvt's. Two in my right arm at different times, the result now being on very high levels. My INR target is 3.5 - 4, which is very high. Without the warfarin, at such high levels, I run the risk of another embolism, possible fatal, and with my blood so "runny", the risk of a major bleed, also potentially fatal. I am on letrozole, and have been for almost 18 months now. My large multidisciplinary medical team explain the different options with their associated risks, and then we make the decisions. Once this clot has dissolved, you may perhaps need to remain on thinners, but ask about restarting the AI therapy, perhaps with letrozole or similar, depending on if you have passed menopause or not. Best of luck and sending a big (((hug))).

kezmusc · Answer

Hi @Annetted,That just truly stinks.&nbsp; Vent away. So sorry.&nbsp; As the other ladies have said, ask about a different drug maybe.&nbsp;It's not fair the way they promote these HT drugs as the be all and end all and if you take them the thing wont come back.&nbsp; They can't promise that for a start and it puts the fear of god into people when they can't take them for whatever other reasons.Wishing you a speedy recovery with your arm and fingers and hopefully they can work something else out with another drug.All the best lovelyxoxoxoxo&nbsp;

kmakm · Answer

That is truly shitty Annette, I'm so sorry. Can you take an AI? K xox

brenda5 · Answer

I took 100mg of aspirin daily when I was on Tamoxifen, just in case. Hopefully life is getting back on track for you now. &lt;3

Forum Discussion

Having a moment

Related Content

Having an Aha moment!

Having breasts removed

Must-haves for chemo

Have the beginnings of a cold and have chemo today

My moment

Recent Discussions

Duration of endocrine therapy in premenopausal Australian patients

Tamoxifen and dizziness

Tamoxifen

Breakthrough bleed after first dose???

Early Breast Cancer Treatment Decision

Disclaimer:

Foundation partner	Major partners