I have just started on 20mg of tamoxifen but I get zero sleep on it. I have had breast cancer previously and took 10mg tamoxifen and coped quite well, this time however my oncologist wants me on 20mg. It seems like a double edged sword, if I am not sleeping I can take more drugs to help me sleep. I do not want to go down that path. It was eight years between my two cancers so I figure the 10 mg must of done something but my doctor is now saying either tolerate the 20mg or take nothing. Any other ladies been down this path? My decision at the end of the day I suppose if I take anything or not, but have to live with that decision also. It is 2.18am, this is day five of no sleep

Can relate to that, first time round was bad enough, confronting it again for a second time and going through the process all over again with the same mental torment, the mood swings, the changes in relationships etc it seems to go on and on

F*@#$ F*&^%ng Tamoxifen!!!!!!!!!!!!!!!!!! That pretty much sums up my thoughts about it.. 8 weeks back on it for the fourth time and here we go again with the head malfunction. Fantastic, just what I need three days before my scans. Would have been nice to have my brain intact to get through that day. Sorry for rant and shouty swear words.

Understand where you are coming from completely, rang my specialist this morning and asked if I could go down to 10 mg and try that instead of stopping treatment, he has agreed to that and we have come to an agreement that if this still does not agree with me then I stop altogether. I have tried Arimidex, Aromasin, Femara and tamoxifen, at the end of the day I have to weigh up the quality of my life and affect it has on my family opposed to taking these drugs which are lethal to me. Good luck and love to anyone on these

Kesmusc, good luck with your scans next week, scary when they come around, always set you on edge until you get all clear

I mentioned cannabis oil on the post for Letrozole. The FB group was also talking about it helping with sleep problems due to medication

Dosage os Tamoxifen | BCNA Online Network

25 Replies

Pink
Member
7 years ago
Thank you, ultimately our choice but at the same time want to give ourselves the best opportunity for a healthy life, although cancer changes everybody forever I think
Pink
Member
7 years ago
kmakm
Member
7 years ago
Very difficult @Pink, you have my sympathy.
Pink
Member
7 years ago
Thanks for your reply kiwi angel I have appointment today with GP so will speak to her about melatonin. I am questioning whether these medications they prescribe are beneficial or detrimental, certainly not easy for those who are taking and suffering with them. The specialists and oncologists are doing what they know to do but I often wonder if they were to take these drugs whether they may change their hard core attitude about them. Not feeling very charitable about this at the moment, too sleep deprived. Admire all ladies out there going through same.
Kiwi_Angel
Member
7 years ago
@Pink I have been on that dose for about 6 weeks now and the main problem for me is sleep disturbance. I have a sleeping tablet every Thursday night (the end of my working week) and I got a script for melatonin 2mg which I take every night and it does seem to help a lot. I still wake up but I’m able to generally get back to sleep pretty quickly where as before melatonin if I was awake that was it for the night. Also ordered some 10mg melatonin online from iherb but I haven’t tried that yet. xoxo

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Dosage os Tamoxifen

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