Forum Discussion
kmakm
7 years agoMember
After a break, Letrozole, continued...
Drug holiday over, today I started taking Letrozole again. At night this time. Don't know that it will make any difference but worth a try.
If/when (she said optimistically) the side effects return, I'll start my curcumin trial.
It's been really really good to be pain (and dandruff) free for a few weeks. I feel it's given me a boost, and more strength to continue.
If the side effects don't settle down my oncologist was quite keen to put me onto Tamoxifen. From what I've read here I'm not so sure. Better the devil you know...?
If/when (she said optimistically) the side effects return, I'll start my curcumin trial.
It's been really really good to be pain (and dandruff) free for a few weeks. I feel it's given me a boost, and more strength to continue.
If the side effects don't settle down my oncologist was quite keen to put me onto Tamoxifen. From what I've read here I'm not so sure. Better the devil you know...?
328 Replies
- RomlaMember@Flaneuse the Herbs app by mskcc which is recommended by BCNAcan give you the contraindications and extensively so on the professional site.
I think it’s time I gave curcumin a go as well.I am on Letrozole and have been since 1/8/17 .I managed reasonably well but since January seem to have developed tendon/ nerve issues. I went to the GP who diagnosed tennis elbow after xrays showed nothing.She put me on Voltaren Gel for 2 weeks which has been very effective at treating discomfort . I took myself off to the physio and have had two visits after reading online it was a recommended option and tbh was dissatisfied with GP who didn’t examine the arm at all.Friends have been urging all manner of things from cortisone injections which I gather aren’t medically popular these days to chiropractics.
My issues are tingling/ numb fingers in the morning - manageable with movement , pain/aching in right forearm which is distressing and later in the day a burning feeling in the palm of my right hand.As a right hander it has limited my activities as I have been told to rest it.
I have read online that they are now acknowledging some issues with tendons and nerves due to AIs including carpal tunnel.I also read that Letrozole is the preferred drug for er+ postmenopausal women.
It is a quandary but feel it’s time I visited my oncologist to discuss as well as talk further to my physio and change GP .I gather MRI is the correct diagnostic tool for nerve/ tendon issues and may ask about that.I know I cannot cope with another 3 and a half years of this IF Letrozole is the cause.I acknowledge there can be other causes and maybe it is just all tennis elbow of unknown origin but am suspicious. - kmakmMember@iserbrown Thank you!
- Kiwi_AngelMember@kmakm I was taking panadol osteo every night for my joint pain (admittedly it’s not as bad as yours) but I didn’t want to keep taking it and so I have been taking a curcumin tablet daily and that work well most days. I hope u have luck with it. xoxo
- iserbrownMemberKate - since it's exe hope it works!
- kmakmMemberThank you @Deanne and @Blossom1961! :)
- Blossom1961MemberGood look @kmakm. For some people Curcumin is a wonder herb. Awesome if you fit into that category. Love Didi xxx
- DeanneMemberGood luck with the Curcumin @kmakm. I hope it works for you. It seemed to relieve my hand pain almost immediately and worked well until I developed tendon issues with my thumb.
- kmakmMember@Flaneuse My first oncologist said that some of her patients had reported success with it. I'm giving it a go! If it works I'll look at importing it.
- FlaneuseMember@kmakm I was planning to ask pharmacist to look at my list of medications and see if there are any contraindications re curcumin and suggest what benefits there might be. My GP just shrugged off the question. But if it's exe ... mm.
- kmakmMemberI've started my curcumin trial today. I'm taking Bioceuticals Theracurmin as the lovely Tom The Pharmacist said it was the one that had the best uptake by the body. Hope it helps. But boy, it's exe...