I've suffered from fluid retention since the last Taxol and it gives me aching legs towards the latter part of the day. I started taking Letrozole about 3 weeks after chemo so have been on it for 4 weeks now. I'm still getting the aching legs (and still have the oedema). I am wondering if it's that or pain from the Letrozole. Everyone seems to indicate that the drug gives them aching joints in the morning - mine is not centred on the joints but the whole leg and it's later in the day (although, bizarrely, the soles of my feet are sore at the heel when I get out of bed). Has anyone experienced this from Letrozole? I'll be seeing the onc on Thursday but any info from other's experiences would be appreciated.

@Sister I have been been on Letrozole now 13 months - joint pain yes oedema no so may be lingering from chemo.Btw I have tended to have oedema most of my life in lower legs esp in warmer weather - drinking a lot of liquid oddly enough helps as does walking.Celery is good too in season but be careful with diuretics natural or otherwise as they hurt my kidneys.

@sister ask your onc about taking some frudix - I took it for 2 weeks and it sorted out my chemo odema and I haven’t had any problems since xo

We must have started our hormone inhibitors at about the same time @Sister . I'm on the Arimidex , luckily no oedema so far for me Hooe it settles for you. Xxx

Sometimes i have aching heels, knees that feel like they are swollen but aren't and the whole hip, knee, ankle and hands joint ache. The last time i had aching legs my electrolyte levels were down so i made sure i had some hydralyte. It seemed to work...maybe it could be that?

Make a list of all the side effects that you are having @Sister - so your Onc is aware of ALL of them- maybe number each one with a pain/annoyance level 1-5?!I was on Letrozole for 2 months before changing to Exemestane & was hurting all over - but particularly hands & feet (ball of the foot specifically.) Hips as well. But my legs were OK & no oedema.I hope it settles for you, soon. xx

Aches and Letrozole | Online Network

Finch
Member
7 years ago
We must have started our hormone inhibitors at about the same time @Sister . I'm on the Arimidex , luckily no oedema so far for me
Hooe it settles for you. Xxx
kmakm
Member
7 years ago
No, sorry @Sister. I have joint ache all day and night, but not heel ache. No swelling, but my legs in general can sometimes feel generally sore late in the day. K xox
Artferret
Member
7 years ago
Sometimes i have aching heels, knees that feel like they are swollen but aren't and the whole hip, knee, ankle and hands joint ache. The last time i had aching legs my electrolyte levels were down so i made sure i had some hydralyte. It seemed to work...maybe it could be that?
arpie
Member
7 years ago
Make a list of all the side effects that you are having @Sister - so your Onc is aware of ALL of them- maybe number each one with a pain/annoyance level 1-5?!

I was on Letrozole for 2 months before changing to Exemestane & was hurting all over - but particularly hands & feet (ball of the foot specifically.) Hips as well. But my legs were OK & no oedema.

I hope it settles for you, soon. xx
Sister
Member
7 years ago
Thanks, everyone. From the sounds of things, I do think that I'm still going through the side effects of chemo with maybe a twinge or two from the Letrozole. I see the onc on Thursday and I will go with my usual list of side effects (I'm sure he loves them!) and questions.
Kiwi_Angel
Member
7 years ago
@Sister that’s what u pay them large amounts of money for ;)
Vangirl
Member
7 years ago
Tagged for @"Bon Bon"
Romla
Member
7 years ago
@Sister I have been been on Letrozole now 13 months - joint pain yes oedema no so may be lingering from chemo.Btw I have tended to have oedema most of my life in lower legs esp in warmer weather - drinking a lot of liquid oddly enough helps as does walking.Celery is good too in season but be careful with diuretics natural or otherwise as they hurt my kidneys.
Kiwi_Angel
Member
7 years ago
@sister ask your onc about taking some frudix - I took it for 2 weeks and it sorted out my chemo odema and I haven’t had any problems since xo
Sister
Member
7 years ago
I'm going to ask for something - I can't even wear a bra without it cutting in.