Forum Discussion

Dodo's avatar
Dodo
Member
1 month ago

Worried I’ll overdose on salt!

Hello, I’m new here. I’ve only had one round of chemo (last Tuesday) and I’m completely weirded out by my mouth turning into a foreign entity! The only thing that seems to give me any sense of my old self is salty liquid. I’m talking stock powder dissolved in boiling water - it’s now one of the few ‘foods’ that gives me any joy! 
I’m trying to eat a balanced diet, but finding it hard to do with zero appetite and a rebellious mouth. Worried I’ll overload my system with salt! Help!

8 Replies

  • HiDodo​ I hope you are doing okay with your chemo.
    Yes I lost taste and had a changed appetite during and for a while after chemo. At first I really wanted Japanese food, mainly the vinegar rice packs wrapped in seaweed, or a version of rice porridge called congee. Eventually I lost my appetite and found it hard to think about food, I was inclined towards the salty foods like Jatz biscuits, cheese, bone broths, soups and soda water. 
    I hope you can keep up your nutrition. My cholesterol and my liver function numbers were a bit unusual by the time I finished treatment and they’re only now (1 and 1/2 years later) settling down. 
    Sending you all good wishes. 

    • Dodo's avatar
      Dodo
      Member

      Thanks,Tri​ - that’s very helpful info. Yeah I get you on the Japanese salty goodness! I might have to seek out those vinegar rice packs you mentioned. 

      • Tri's avatar
        Tri
        Member

        HiDodo​ i forgot to mention that  I had quite a few issues with mouth ulcers and thrush during my chemotherapy. Combined with the weird taste in my mouth it really affected my interest in food. It wasn’t until I was a few months in when I started using the Biotene mouth wash and discovered that if I rinsed about half an hour before my evening meal I could eat. 
        With the appetite, I also had to be careful about not losing too much weight in case it threw out the chemo dose (I did end up having it adjusted down). 
        Those little rice packs are called “onigiri” ☺️

  • Ah, the unexpected joys of chemo. Some chemotherapies are, to quote my oncologist, hard on soft tissue - eyes, mouth, nose. For me that meant a bloody nose and taste buds gone west. I could not taste most foods - the conventional wisdom is something spicy (salt may count!) but that didn't work for me. The few things I could taste were all mild - like egg and avocado! Everything else was soggy cardboard. The good news is that it rarely lasts longer than the chemo. And it could be worse, a colleague had taste buds that made everything she put in her mouth taste burned!  Best you can do is continue to eat well even if it gives no pleasure ( your body will be grateful, promise) and convince yourself that too much salt for what I hope is a relatively short time isn't too bad. Count down the weeks! Best wishes.

    • Dodo's avatar
      Dodo
      Member

      Thanks so much! That’s very helpful. Yep, I’ll defo be counting down the weeks!

  • Mez_BCNA's avatar
    Mez_BCNA
    Community Manager

    Dodo​  Thankyou for starting the conversation - sounds very tricky at the moment. While we wait for others to share their own lived experience, we thought you may find the below resources useful: 

    We hope the above supports you and perhaps also have a chat with your breast care nurse re any further tips and advice. BCNA's Helpline team (1800 500 258) will be back on Monday if you have any questions regarding the information above.

    • Dodo's avatar
      Dodo
      Member

      Thanks heaps! I’m learning so much - really appreciate it!