Forum Discussion
Dodo
8 months agoMember
Worried I’ll overdose on salt!
Hello, I’m new here. I’ve only had one round of chemo (last Tuesday) and I’m completely weirded out by my mouth turning into a foreign entity! The only thing that seems to give me any sense of my old...
Tri
8 months agoMember
HiDodo I hope you are doing okay with your chemo.
Yes I lost taste and had a changed appetite during and for a while after chemo. At first I really wanted Japanese food, mainly the vinegar rice packs wrapped in seaweed, or a version of rice porridge called congee. Eventually I lost my appetite and found it hard to think about food, I was inclined towards the salty foods like Jatz biscuits, cheese, bone broths, soups and soda water.
I hope you can keep up your nutrition. My cholesterol and my liver function numbers were a bit unusual by the time I finished treatment and they’re only now (1 and 1/2 years later) settling down.
Sending you all good wishes.
Dodo
8 months agoMember
Thanks,Tri - that’s very helpful info. Yeah I get you on the Japanese salty goodness! I might have to seek out those vinegar rice packs you mentioned.
- Tri8 months agoMember
HiDodo i forgot to mention that I had quite a few issues with mouth ulcers and thrush during my chemotherapy. Combined with the weird taste in my mouth it really affected my interest in food. It wasn’t until I was a few months in when I started using the Biotene mouth wash and discovered that if I rinsed about half an hour before my evening meal I could eat.
With the appetite, I also had to be careful about not losing too much weight in case it threw out the chemo dose (I did end up having it adjusted down).
Those little rice packs are called “onigiri” ☺️- Dodo8 months agoMember
ThanksTri - yep chemo #1 gave me a raging case of oral thrush (ugh, it was so yuk!), so oral hygiene is something I’m being super diligent about. My sister told me about Biotene as well (she’s a dental hygienist), so I’ll defo buy some. I’ll try your method of rinsing before eating - anything to be able to get some food in me! Chemo #2 is this Wednesday, so I’m madly trying to ‘enjoy’ food now while I can still sort of taste it.