Forum Discussion
magicmum
14 years agoMember
Who me ?
"Come back for another scan, there's a grey area"
That was just over 4 weeks ago, and I thought "who, me ?" I was so sure it was just a bruise from when I had fallen some weeks before, and then they started scanning in a different spot . . .
*It's very small" "we've caught it early " "you'll be fine"
There's a little part of my head that just won't let me believe those things right now.
I have a wonderful surgeon who has done the wide excision and the sentinel node biopsy (results next Tuesday) and a fabulous support network including my family, my collegues at work and my old Nursing Mothers group - we've been friends forever, nearly 30 years, and their love is astounding.
I am talking positively to myself every day, filling myself with good thoughts, moving forward. Everything so far has been very smooth, and fast. But that fear of the unknown is inescapable in the middle of the night - what if it is already somewhere else ? Is my slightly upset tummy just nerves, or something sinister ? How do I know that my aching legs are just menopausal ? How will I stop myself from bombarding my doctor wih requests for cancer scans on every part of my body ?
How do you cope with that ? Can anyone offer any thoughts ?
120 Replies
- magicmumMember
Just home from Chemo #1. All went smoothly. No bad effects at time of infusion even from the Taxotere, the sister watched me closely for 15 mins and was very pleased. Aside from the cold icy fingers and eating 3 cups of ice chips I spent a relatively pleasant day with some other lovely ladies in a beautiful room with big windows surrounded by a pretty garden. Morning and afternoon tea, a nice lunch and my husband sat with me and made me laugh.
Maybe I'll keep on being lucky and have minimal side effects all through ? That would be good.
Anyway, I'm GLAD today went by so well and the unknown is not to be feared now. Ahhhhh.
Keep on keeping on girls.
Keitha
- magicmumMember
Exactly the sort of feedbakc I was looking for - I hate it when my head gets itchy from wooly hats so it sounds like I'd be the same with a wig ! I'm glad it;s winter as I won;t mind the hats and scarves, and I will try a wig just in case I need something for work.
I love headcovers.org - some really nice ones !
Thanks !
Keitha
- magicmumMember
Oh sweetie, I feel so bad being a misery guts when my surgery paled into comparison. I hope it all goes so well for you, and that they find you have no nodes involved, or minimal - and that you get a HER2 negative. It IS the unknown thing for us, it's so hard.When I'm feeling sensible I know that it's pointless over-worrying - it is what it is, and worrying won;t stop it or fix it. You just get the best advice, follow it and then hope for the best. Worrying causes stress and stress can be a danger all on its own.
We'll get there together, we'll hang on together. In a year, in 5 years, in 10 years we'll laugh and wonder why we were worried. And we'll be able to help others where we are now.
Breathe.
Have a look on the Net for the chillout song by Ze Frank - it really helps.
Chin up girl, we can do it.
love and hugs
Keitha
- magicmumMember
Oh sweetie, I feel so bad being a misery guts when my surgery paled into comparison. I hope it all goes so well for you, and that they find you have no nodes involved, or minimal - and that you get a HER2 negative. It IS the unknown thing for us, it's so hard.When I'm feeling sensible I know that it's pointless over-worrying - it is what it is, and worrying won;t stop it or fix it. You just get the best advice, follow it and then hope for the best. Worrying causes stress and stress can be a danger all on its own.
We'll get there together, we'll hang on together. In a year, in 5 years, in 10 years we'll laugh and wonder why we were worried. And we'll be able to help others where we are now.
Breathe.
Have a look on the Net for the chillout song by Ze Frank - it really helps.
Chin up girl, we can do it.
love and hugs
Keitha
- magicmumMember
Oh sweetie, I feel so bad being a misery guts when my surgery paled into comparison. I hope it all goes so well for you, and that they find you have no nodes involved, or minimal - and that you get a HER2 negative. It IS the unknown thing for us, it's so hard.When I'm feeling sensible I know that it's pointless over-worrying - it is what it is, and worrying won;t stop it or fix it. You just get the best advice, follow it and then hope for the best. Worrying causes stress and stress can be a danger all on its own.
We'll get there together, we'll hang on together. In a year, in 5 years, in 10 years we'll laugh and wonder why we were worried. And we'll be able to help others where we are now.
Breathe.
Have a look on the Net for the chillout song by Ze Frank - it really helps.
Chin up girl, we can do it.
love and hugs
Keitha
- cocoMember
Hi Magicmum,
Can certainly understand your nerves. I feel like I am in high school again waiting to get my rubella needle and constantly going to the end of the line and now I find the line is finally at the end and I am next to get my bilateral masectomy. There is no more time, but in some ways that is such a good thing, cause this period of my life is in limbo and is stretching out endlessly. At this stage the type of cancer I have has not been defined other than to be invasive, So I don't know how concerned to be, crazy I know cause cancer is cancer and I should be concerned but should I be overly worried or just slightly concerned? So far on my journey my diagnosis has gone from bad to worse, so I am kind of expecting this to continue, but I would love it if after surgery they say well two rounds of chemo and that should do the trick and you can go about living your life the way you planned again.
I really want to know about the unknown. Good luck with all that you are dealing with my thoughts and prayers are with you. Lots of love Sue
- cocoMember
Hi Magicmum,
Can certainly understand your nerves. I feel like I am in high school again waiting to get my rubella needle and constantly going to the end of the line and now I find the line is finally at the end and I am next to get my bilateral masectomy. There is no more time, but in some ways that is such a good thing, cause this period of my life is in limbo and is stretching out endlessly. At this stage the type of cancer I have has not been defined other than to be invasive, So I don't know how concerned to be, crazy I know cause cancer is cancer and I should be concerned but should I be overly worried or just slightly concerned? So far on my journey my diagnosis has gone from bad to worse, so I am kind of expecting this to continue, but I would love it if after surgery they say well two rounds of chemo and that should do the trick and you can go about living your life the way you planned again.
I really want to know about the unknown. Good luck with all that you are dealing with my thoughts and prayers are with you. Lots of love Sue
- cocoMember
Thanks Justrina, I have year 2 so it was quite difficult telling them. I sent a letter to my parents but I thought it would be unfair for them to have to tell the children what was in my letter so I told them three minutes to three on Friday afternoon what they would find out from their parents. We all cried, it was heart wrenching, but I also told them we would have a celebration day and I would come and visit them which they liked. I miss them very much but needed time for me and to prepare mentally for what lies ahead. Hopefully I will go back before the end of term 4, but we will just have to wait and see.
Best wishes,
Sue (coco)
- TonyaMMember
Your school sounds fantastic coco.What great ideas to raise money for breast cancer but have fun at the same time.I'm glad you are having time off for your treatments-one less stress to worry about if you are feeling crook. On the wig conversation;-I bought a very expensive human hair wig and I hardly wore it. It was good to have for special occasions but I could only wear it for several hours before it drove me nuts.It was hot and itchy and what's more,I felt self conscious that peolpe could tell it was a wig(silly ,I know).Chemo may bring on the dreaded menopause hot flushes and THAT makes a wig unbearable.On the upside,it's winter which makes head gear more tolerable.As soon as spring hit,my wig was put away.If you go for a human hair wig then you have to wash it and maintain the style -more fuss than your own hair! In hindsight,I probably would have gone for a good,but cheap acrylic one just to have on hand.I mostly wore cute caps and cotton bandanas from www.headcovers.org cos my scalp got so irritated with other headstuff.Good luck girls.
Tonya xx
- magicmumMember
I'm struggling to fight the butterflies tonight. It's so easy to tell myself to keep positive, but as Tuesday draws closer the dread is creeping in. Part of me wants it to be here NOW, to get it over with so I the unknown becomes known. Part of me - like all of us - wants this all to be some kind of nightmare that isn't happening.
:(
Start my steroids in the morning. It's all too real.
Keitha