Forum Discussion
Who me ?
"Come back for another scan, there's a grey area"
That was just over 4 weeks ago, and I thought "who, me ?" I was so sure it was just a bruise from when I had fallen some weeks before, and then they started scanning in a different spot . . .
*It's very small" "we've caught it early " "you'll be fine"
There's a little part of my head that just won't let me believe those things right now.
I have a wonderful surgeon who has done the wide excision and the sentinel node biopsy (results next Tuesday) and a fabulous support network including my family, my collegues at work and my old Nursing Mothers group - we've been friends forever, nearly 30 years, and their love is astounding.
I am talking positively to myself every day, filling myself with good thoughts, moving forward. Everything so far has been very smooth, and fast. But that fear of the unknown is inescapable in the middle of the night - what if it is already somewhere else ? Is my slightly upset tummy just nerves, or something sinister ? How do I know that my aching legs are just menopausal ? How will I stop myself from bombarding my doctor wih requests for cancer scans on every part of my body ?
How do you cope with that ? Can anyone offer any thoughts ?
120 Replies
I like that ! Warriors indeed, and we will win.
Happy to have you along on the blog. I find it so helpful to write down what I'm feeling, I don't know how it helps but it does. And hearing other stories puts a perspective on my own - I glad that my good experience gives you hope, that's great. Just keep on with the positive thoughts, push away the fears and bad ones. I'm SURE it's working.
HER2 neg is wonderful, way to go. You will come through just fine.
Keep on keeping on.
Keitha (magicmum)
Hi MagicMum. Thanks so much for your blog. It has been like reading a novel full of heroines :-) I have been able to follow not only your story but also the other ladies (warrior princesses) who have posted support. I cant believe how much we have in common! I too have four grown children and recieved my diagnosis just one day before you - 13mm DCIS with E+P positive - however my HER2 was negative (which is a positive fact, isnt it). My sentinel nodes showed microscopic metastis in one of the two nodes removed so that I too must have 4 cycles of T/C chemo, 5 weeks of radiation and 5yrs of hormone therapy. My first session of chemo is this Friday July 6 and I feel heartened to read of your positive experience from yesterday. It gives me hope! I look forward to comparing notes with you as we go. Thanks for being so strong and thanks to all who make us stronger :-)
I've had a good day so I just KNOW you are going to as well. I am keeping all fingers and toes crossed my love, keep that positive thought going. The migraine is for sure nerevs and stress. I had a headache last night too but it didn't turn into migraine thank heavens.
I will hold you in my thoughts all day, please let me know how you go. Think good thoughts, think wellness, think "I'm beating this little sucker !!"
loads of love
Keitha
Hey Julie, Thanks for you lovely wishes of support. Keep crossing your fingers for Keitha and I. Just a few hours to go until my surgery and beginning to feel very nervous.Will no doubt post more as the hours unwind.
Best wishes and much love,
Sue
Hey Julie, Thanks for you lovely wishes of support. Keep crossing your fingers for Keitha and I. Just a few hours to go until my surgery and beginning to feel very nervous.Will no doubt post more as the hours unwind.
Best wishes and much love,
Sue
Hey Julie, Thanks for you lovely wishes of support. Keep crossing your fingers for Keitha and I. Just a few hours to go until my surgery and beginning to feel very nervous.Will no doubt post more as the hours unwind.
Best wishes and much love,
Sue
So glad to hear all went well for you Keitha, I have one day left until my surgery and have so many things I need to do tomorrow. Can't believe that in 48 hours everything will be different, but happy to start treating it all at last.
I had a migraine today probably due to the stress of everything. Feeling a bit washed out but luckily I was able to take strong medication and sleep it off. Keep posting updates Keitha I love finding out where you are at, it is somewhere I know I will be soon.
Take care, best wishes and lots of love,
Sue
Just home from Chemo #1. All went smoothly. No bad effects at time of infusion even from the Taxotere, the sister watched me closely for 15 mins and was very pleased. Aside from the cold icy fingers and eating 3 cups of ice chips I spent a relatively pleasant day with some other lovely ladies in a beautiful room with big windows surrounded by a pretty garden. Morning and afternoon tea, a nice lunch and my husband sat with me and made me laugh.
Maybe I'll keep on being lucky and have minimal side effects all through ? That would be good.
Anyway, I'm GLAD today went by so well and the unknown is not to be feared now. Ahhhhh.
Keep on keeping on girls.
Keitha
Exactly the sort of feedbakc I was looking for - I hate it when my head gets itchy from wooly hats so it sounds like I'd be the same with a wig ! I'm glad it;s winter as I won;t mind the hats and scarves, and I will try a wig just in case I need something for work.
I love headcovers.org - some really nice ones !
Thanks !
Keitha
Oh sweetie, I feel so bad being a misery guts when my surgery paled into comparison. I hope it all goes so well for you, and that they find you have no nodes involved, or minimal - and that you get a HER2 negative. It IS the unknown thing for us, it's so hard.When I'm feeling sensible I know that it's pointless over-worrying - it is what it is, and worrying won;t stop it or fix it. You just get the best advice, follow it and then hope for the best. Worrying causes stress and stress can be a danger all on its own.
We'll get there together, we'll hang on together. In a year, in 5 years, in 10 years we'll laugh and wonder why we were worried. And we'll be able to help others where we are now.
Breathe.
Have a look on the Net for the chillout song by Ze Frank - it really helps.
Chin up girl, we can do it.
love and hugs
Keitha
