Forum Discussion
magicmum
14 years agoMember
Who me ?
"Come back for another scan, there's a grey area"
That was just over 4 weeks ago, and I thought "who, me ?" I was so sure it was just a bruise from when I had fallen some weeks before, and then they started scanning in a different spot . . .
*It's very small" "we've caught it early " "you'll be fine"
There's a little part of my head that just won't let me believe those things right now.
I have a wonderful surgeon who has done the wide excision and the sentinel node biopsy (results next Tuesday) and a fabulous support network including my family, my collegues at work and my old Nursing Mothers group - we've been friends forever, nearly 30 years, and their love is astounding.
I am talking positively to myself every day, filling myself with good thoughts, moving forward. Everything so far has been very smooth, and fast. But that fear of the unknown is inescapable in the middle of the night - what if it is already somewhere else ? Is my slightly upset tummy just nerves, or something sinister ? How do I know that my aching legs are just menopausal ? How will I stop myself from bombarding my doctor wih requests for cancer scans on every part of my body ?
How do you cope with that ? Can anyone offer any thoughts ?
120 Replies
- magicmumMember
On day one I made a paper crane, and I have made one every day since. I will keep making one all the way through until I get to the end of my treatment. At the moment they are sitting on the top of the windows but I think I'm going to run out of space ! I might make a chain and hang them from the ceiling in my new craft room which my gorgeous husband has been renovating for me. It's a angible sign for me of moving forward, of progress and success and renewal. And aside from that, they're very pretty !
- magicmumMember
On day one I made a paper crane, and I have made one every day since. I will keep making one all the way through until I get to the end of my treatment. At the moment they are sitting on the top of the windows but I think I'm going to run out of space ! I might make a chain and hang them from the ceiling in my new craft room which my gorgeous husband has been renovating for me. It's a angible sign for me of moving forward, of progress and success and renewal. And aside from that, they're very pretty !
- TonyaMMember
Great news! You are definitely a winner in the cancer world.What a relief to have clear nodes,that's the biggy.
Tonya xx
- chipmunkMember
Hi Keitha
Thats fantastic news. Yes, now you will know what needs to be done.
Keep posting away.
Happy days for you. Love Julie XX
- chipmunkMember
Hi Keitha
Thats fantastic news. Yes, now you will know what needs to be done.
Keep posting away.
Happy days for you. Love Julie XX
- chipmunkMember
Don't be sorry. Its all normal to feel the way your are.
Yes, night time and 3am in the morning, does make you think of the most silliest things.
We are all keeping our fingers and toes crossed for you.
take care Love Julie XX
- magicmumMember
Is this what it feels like to win a lottery ? I think so.
Clear nodes, clear margins on my 9mm tumour. E & P + and just waiting till Wed next for HER2 status. My wounds are healing well, just a bit lumpy and bruised of course.
I wept with relief, my husband was confused ! Says he can't understand women crying when they are happy ! I haven't cried for 3 weeks, it just overflowed. I know there is a long road ahead - but it has a map now, and a destination of sorts. And I know it may return. But I'm a winner today, so I can be a winner again. I feel so lightheaded, I feel so fortunate. I LOVE my surgeon. He did say that he just couldn't take credit for the pathology ! But I told him that he should for the lovely surgical job.
Wow!
I will be back again SOON with a MILLION questions about radiation and, possibly, drugs if I am prescribed for the HER2 status. I know that you will have the answers for me.
Thank you all for the lifeline, the companionship, the sense of community. What a wondeful thing the Net is !
loads of love and joy
Keitha
- magicmumMember
Thanks ladies, I am trying. Floundering right now but as you say once I know what's what I reckon it will be better.
Chin is up this morning. Only 4 hours to go now.
Keitha
- Anna-MarieMemberHi magic mum, The waiting is horrible for sure but there is also a sense of relief to have the answer and then know what to expect. I think the fear of the unknown is hardest. Having said that in my journey I fluctuate between telling myself " I can do this" to crumbling into tears over everything! I think this is normal even tho I feel abnormal at times. A journey like this threatens our need to be in control of our lives. Most of the health stuff is out of our control but I have found it helpful to take charge of what I can. Even doing a household chore feels like an achievement. As does Taking care of some of my kids needs. The most stabilizing thing for me in this journey is my relationship with God. I find the Bible a great comfort as it reminds me I am not alone in the suffering and there is a purpose in everything. I have been trying to daily find something to be thankful for. One thing we can all be grateful for is how advanced and accessible modern medicine is today. Im sure you will make it through just one speed hump at a time. I encourage you to be gentle with yourself and allow yourself to grieve over the heartache of it all. That's just as important as trying to be positive as you can too. Wishing you all the best, Anna-Marie
- justtrinaMember
Magicmum.... no need to apologise..that's what we are here for.. to support each other through this thing that we all have in common. We're been there... and you get through it. The waiting is the hardest.. as are the nights when our brains just wont shut off..
How do you stop yourself from asking your doctor for cancer scans on every part of your body? Don't - ask him. He may even offer just to put your mind at ease... Tell him how anxious you are... but again be assured in my experience they test.. test and test again.... just ask what they are for and go with the flow (easy for me to say now... I spent my first six weeks curled up on an anxiety ball, second guessing everything) But as others have said once you have your treatment plan and start on it things settle down.
take care and be assured there are people out here thinking of you and wishing you the best.
Trina