Hi magic mum,
The waiting is horrible for sure but there is also a sense of relief to have the answer and then know what to expect. I think the fear of the unknown is hardest. Having said that in my journey I fluctuate between telling myself " I can do this" to crumbling into tears over everything! I think this is normal even tho I feel abnormal at times. A journey like this threatens our need to be in control of our lives. Most of the health stuff is out of our control but I have found it helpful to take charge of what I can. Even doing a household chore feels like an achievement. As does Taking care of some of my kids needs. The most stabilizing thing for me in this journey is my relationship with God. I find the Bible a great comfort as it reminds me I am not alone in the suffering and there is a purpose in everything.
I have been trying to daily find something to be thankful for. One thing we can all be grateful for is how advanced and accessible modern medicine is today.
Im sure you will make it through just one speed hump at a time. I encourage you to be gentle with yourself and allow yourself to grieve over the heartache of it all. That's just as important as trying to be positive as you can too.
Wishing you all the best,
Anna-Marie