The Foxs Lady

Hi I also live in Adelaide and would love to meet some TNBC ladies!

My story is in short, I was diagnosed with TNBC in Feb 2011, underwent mastectomy then 6 cycles of chemo. I then discovered I am BRCA 1 positive so underwent hysterectomy and removal of ovaries, then has other breast removed with expander reconstruction.

Since then I have developed decreased bone density withospeoporosis which I have to take medication for. The chemo also damaged my heart so have ongoing issues there.

I am now having surgery this month for the aneuysm in my brain. Luck me.

Some days I feel like I can not win.

Love to meet some other TNBC ladies in Adelaide

Love Catherine

hi Leanne

All the best on 30th when you have implants. Thanks for the advice I will let the nurses take charge. Hopefully there will be a time when we can catch up.

Sandi (smead) xoxo

Hi Deanna, sorry it has taken me so long to respond I'm not very good with the social networking thing as yet. Great to see that you are a BC survivor, it gives me hope. I may be able to catch up with you sometime in the near future, still having chemo at the moment, 2 more to go and radiotherepy for 6 weeks. My older son is just about to move to St Marys so I maybe up that way from time to time. Not sure how to request you as a contact, so if you know how maybe you could request me for future reference. Debbie 

Hi Deanna, sorry it has taken me so long to respond I'm not very good with the social networking thing as yet. Great to see that you are a BC survivor, it gives me hope. I may be able to catch up with you sometime in the near future, still having chemo at the moment, 2 more to go and radiotherepy for 6 weeks. My older son is just about to move to St Marys so I maybe up that way from time to time. Not sure how to request you as a contact, so if you know how maybe you could request me for future reference. Debbie 

My temp had dropped when I arrived at hospital, I was wearing a pain patch, because of the injection in the stomach on day 3 which was to build up the w/b cells, they still keeped me there and did blood cultures. So where are you up to with your treatment now? Deb

Sorry to be slow - just saw your question.  After discussions with my breast surgeon (and a family history)  it was my decision to have the double mastectomy, and my surgeon agreed - but it was my choice.  After chemo, my Oncologist explained that tnbc usually recurs in the soft tissues, and recommended the hysterectomy as I had already had a large cyst and an ovary removed a few years ago.  He also recommends regular colonoscopies.  I am now promoted to 12 month checkups and in remission.  Wishing you all the best.  Michelle x

Yes I think of the IF in capital letters. I try to look after myself. I am doing more exercise than I ever have before. I remain overweight. But I am trying. Maybe I will be lucky and maybe the IF will never happen.

I make compromises and I live for now. I am planning the dream holiday but it can't happen for almost 2 years because my son will do the HSC next year. Family is everything to me; my health and their interests have to go hand in hand.

I do what I can. I am sure I will be here for some years to come.

Yes I think of the IF in capital letters. I try to look after myself. I am doing more exercise than I ever have before. I remain overweight. But I am trying. Maybe I will be lucky and maybe the IF will never happen.

I make compromises and I live for now. I am planning the dream holiday but it can't happen for almost 2 years because my son will do the HSC next year. Family is everything to me; my health and their interests have to go hand in hand.

I do what I can. I am sure I will be here for some years to come.

Yes I think of the IF in capital letters. I try to look after myself. I am doing more exercise than I ever have before. I remain overweight. But I am trying. Maybe I will be lucky and maybe the IF will never happen.

I make compromises and I live for now. I am planning the dream holiday but it can't happen for almost 2 years because my son will do the HSC next year. Family is everything to me; my health and their interests have to go hand in hand.

I do what I can. I am sure I will be here for some years to come.

Hi Leanne

Would love to catch up if able when you are in Adelaide in Nov. My treatment is being done at Flinders as I 'm about 1.5 hrs south of adelaide but as I work in the city Flinders is on my way home! I get surprised by each of our different treatments as I had a partial mascetomy not even suggested full mascetomy. I will be having 6 cycles of FEC followed by 6 wks of radiotherapy and hope to work when I can - although oncologist wants me to take 2 weeks off following 1st cycle. I will do what I can, when I can :)  I am being  referred for genetic counselling so if I go for testing more surgery may be required. For now am focussing on start of chemo on14/10 - am putting together a care pack for me based on tips from all the lovely ladies on this site. I'm going to the LGFB workshop this Tuesday where I hope to pick up so more tips. 

Keep in touch as would really like to meet someone from Adelaide for catchup. All the best - Sandi (smead) xoxo