Forum Discussion
the_Foxs_lady
13 years agoMember
The Foxs Lady
I'm feeling very isolated as a TNBC in my area.
To my knowledge there is one other (a recent diagnosis who is now going head long into intensive treatment).
I have physically met three survivors.
I know that there are more out there but I find women with hormonal breast cancer have no concept of TNBC.
Looking forward to connecting with others...........
I was diagnosed grade 3 stage 3.
66 Replies
- DebstarMember
Hi Deanna, sorry it has taken me so long to respond I'm not very good with the social networking thing as yet. Great to see that you are a BC survivor, it gives me hope. I may be able to catch up with you sometime in the near future, still having chemo at the moment, 2 more to go and radiotherepy for 6 weeks. My older son is just about to move to St Marys so I maybe up that way from time to time. Not sure how to request you as a contact, so if you know how maybe you could request me for future reference. Debbie
- DebstarMember
Hi Deanna, sorry it has taken me so long to respond I'm not very good with the social networking thing as yet. Great to see that you are a BC survivor, it gives me hope. I may be able to catch up with you sometime in the near future, still having chemo at the moment, 2 more to go and radiotherepy for 6 weeks. My older son is just about to move to St Marys so I maybe up that way from time to time. Not sure how to request you as a contact, so if you know how maybe you could request me for future reference. Debbie
- DebstarMember
My temp had dropped when I arrived at hospital, I was wearing a pain patch, because of the injection in the stomach on day 3 which was to build up the w/b cells, they still keeped me there and did blood cultures. So where are you up to with your treatment now? Deb
- Michelle_RMember
Sorry to be slow - just saw your question. After discussions with my breast surgeon (and a family history) it was my decision to have the double mastectomy, and my surgeon agreed - but it was my choice. After chemo, my Oncologist explained that tnbc usually recurs in the soft tissues, and recommended the hysterectomy as I had already had a large cyst and an ovary removed a few years ago. He also recommends regular colonoscopies. I am now promoted to 12 month checkups and in remission. Wishing you all the best. Michelle x
- JoFMember
Yes I think of the IF in capital letters. I try to look after myself. I am doing more exercise than I ever have before. I remain overweight. But I am trying. Maybe I will be lucky and maybe the IF will never happen.
I make compromises and I live for now. I am planning the dream holiday but it can't happen for almost 2 years because my son will do the HSC next year. Family is everything to me; my health and their interests have to go hand in hand.
I do what I can. I am sure I will be here for some years to come.
- JoFMember
Yes I think of the IF in capital letters. I try to look after myself. I am doing more exercise than I ever have before. I remain overweight. But I am trying. Maybe I will be lucky and maybe the IF will never happen.
I make compromises and I live for now. I am planning the dream holiday but it can't happen for almost 2 years because my son will do the HSC next year. Family is everything to me; my health and their interests have to go hand in hand.
I do what I can. I am sure I will be here for some years to come.
- JoFMember
Yes I think of the IF in capital letters. I try to look after myself. I am doing more exercise than I ever have before. I remain overweight. But I am trying. Maybe I will be lucky and maybe the IF will never happen.
I make compromises and I live for now. I am planning the dream holiday but it can't happen for almost 2 years because my son will do the HSC next year. Family is everything to me; my health and their interests have to go hand in hand.
I do what I can. I am sure I will be here for some years to come.
- smeadMember
Hi Leanne
Would love to catch up if able when you are in Adelaide in Nov. My treatment is being done at Flinders as I 'm about 1.5 hrs south of adelaide but as I work in the city Flinders is on my way home! I get surprised by each of our different treatments as I had a partial mascetomy not even suggested full mascetomy. I will be having 6 cycles of FEC followed by 6 wks of radiotherapy and hope to work when I can - although oncologist wants me to take 2 weeks off following 1st cycle. I will do what I can, when I can :) I am being referred for genetic counselling so if I go for testing more surgery may be required. For now am focussing on start of chemo on14/10 - am putting together a care pack for me based on tips from all the lovely ladies on this site. I'm going to the LGFB workshop this Tuesday where I hope to pick up so more tips.
Keep in touch as would really like to meet someone from Adelaide for catchup. All the best - Sandi (smead) xoxo
My oncologist said go home and do what you want to do. Don't overdo it. Don't put anything off though that you want to do. Recover.
I did everything that they said. I said to my GP all I want is to be told that it is gone and it has gone away.
He reached across and said, you know it won't go away.
I was grade 3 stage 3 on diagnosis.
My oncologist said if it comes back (and I liked the IF part), then we are talking of prolonging life. The surgeon said that we can prolong life for up to 14 years so far.....but you could make it a record and go longer.
Who knows? God alone knows.
It caught me by surprise the first time.
I won't be caught next time. IF it comes back I will be so ready for it if....but once again I work on IF.
In the interim, I am recovering....slow process.
I will be doing all I can to get my body back into the best condition.
Until I got on this site, I had met 3 women who were long term NED with TNBC. That part was daunting, but no on this website, I am seeing more of them.
My oncologist said go home and do what you want to do. Don't overdo it. Don't put anything off though that you want to do. Recover.
I did everything that they said. I said to my GP all I want is to be told that it is gone and it has gone away.
He reached across and said, you know it won't go away.
I was grade 3 stage 3 on diagnosis.
My oncologist said if it comes back (and I liked the IF part), then we are talking of prolonging life. The surgeon said that we can prolong life for up to 14 years so far.....but you could make it a record and go longer.
Who knows? God alone knows.
It caught me by surprise the first time.
I won't be caught next time. IF it comes back I will be so ready for it if....but once again I work on IF.
In the interim, I am recovering....slow process.
I will be doing all I can to get my body back into the best condition.
Until I got on this site, I had met 3 women who were long term NED with TNBC. That part was daunting, but no on this website, I am seeing more of them.