Forum Discussion
JodieWall
12 years agoMember
I feel like Ive won the lottery!!
Have just spent the whole day having CT scans and Bone scans to see if this monster has spread.
IT HASNT. IM ALL CLEAR!!!
IM IN SHOCK!!
I have a bit of arthritis happening because Im getting old but thats all!!!
just need to get through my mastectomy and axillary clearance tomorow then I think I will feel like Ican begin to see a faint glimmer of a light!!
Thanks to you all for letting me whinge and sook and no doubt ill be doing more than that once Chemo starts xxx
81 Replies
- Janey235MemberAt the risk of sounding like a broken record, I too didn't have much problems with nausea. Of course I felt queasy on some days after AC (similar to FEC) but I found anything ginger helped a lot with that. Ginger infused tea, ginger ale, even ginger cookies. You'll find that the meds they give you are really excellent nowadays and your oncologist can adjust meds if you need a boost. I wasn't nauseas at all on Docetaxel (similar to Taxol). Hydration is really important too, as said, drink loads of water. I didn't have any problems with mouth sores either. I ate an ice-pol during my infusions which I think helped with that. But do use a mouth wash (alcohol free) or make your own from salt or bicarb, I used it at least twice a day. Biotine gum I found was good too. As mentioned here before, not knowing is the worst so after your first one, you'll be fine. Love Janey xxx
- Janey235MemberAt the risk of sounding like a broken record, I too didn't have much problems with nausea. Of course I felt queasy on some days after AC (similar to FEC) but I found anything ginger helped a lot with that. Ginger infused tea, ginger ale, even ginger cookies. You'll find that the meds they give you are really excellent nowadays and your oncologist can adjust meds if you need a boost. I wasn't nauseas at all on Docetaxel (similar to Taxol). Hydration is really important too, as said, drink loads of water. I didn't have any problems with mouth sores either. I ate an ice-pol during my infusions which I think helped with that. But do use a mouth wash (alcohol free) or make your own from salt or bicarb, I used it at least twice a day. Biotine gum I found was good too. As mentioned here before, not knowing is the worst so after your first one, you'll be fine. Love Janey xxx
- peggysueMember
As I look back to the beginning of chemo, I will admit to cravings, I drank lots of ginger beer, and really craved cinnamon donunts....I would get hubby to get them, I would break them up and eat little bits. Noiw i know that both of these things were not really good for me, but my wonderful breast care nurse, siad to me, take this time for yourself, and it you want those things, have them. You will get back, to your usual diet in good time. Although I always ate healthy foods, I am much more conscious about it now. My philsophy was expect the worse, and I was surprised that it was not as bad, as I had imagined. I had my routine before and after chemo.
Radiation for 6 weeks, I did get red and sore towards the end, but with some great Gel o net (dressings) that cleared up quickly. Now on arimidex.for the next 5 years. Again not quite what I imagined, only a pain having to go every day, and getting that special arm up above my head..
Time will pass quickly, and you will be here reasurring another newly dianosed lady.
- JodieWallMemberThanks Deanne xxx I'm down today :-( one week post mastectomy, drain still in, port in next week then chemo the week after. I just need a few "Normal" days where I can go out to the shops without dragging my drain bag :-( before the hard yards start and just be me well as close to being me. One of my close friends is about to stat chemo again as there are now spots on her liver. She is amazing and I don't know how she does it. She is a hero to me and I feel so bad whinging :-( I guess once the first infusion is done, ill know a bit more and will know what side effects ill have. I also wish my soft form breast would arrive so I can put a bra on And feel semi female. Jodie xx
- DeanneMemberI think you will find that taxol will be nausea free and if you follow medical advice and the advice from women here you will be right. There is a great post on here called things that helped you through your journey or something like that. It has some terrific tips. I am about to have number 13 of 25 radiotherapy treatments and am finding this a breeze compared to Chemo. I am using gel and cream to keep my skin right and so far just have a bit of a tan developing. It is great to be able to go out and about more without the worry of low immune system because of Chemo effects. Life is definitely improving! :)
- JodieWallMemberThanks gina xxx where can I get the coconut oil? I'm having the port put in under twilight. Is that painful?
- JodieWallMemberThanks gina xxx where can I get the coconut oil? I'm having the port put in under twilight. Is that painful?
- gina_raccMember
Hi Jodie
Have felt with you all the way butr as already mentioned, knowledge is power!
I wasn't careful enough with my first port - it went in so easily, no pain & I was doing my usual yoga. Think this might have been the cause of the wound not healing as it never infected just wouldn't close. It worked well. Now with my second one in, I'm trying hard to take it easy & let other people do things. I'm not good at asking my help & as my husband says, he's not a mind reader. I have to ask! so this one is healing well & working well!
I did the chemo awareness course at HOCA & it was a good preparer for chemo. I have not had any dramas with nausea, have felt queasy occasionally but a cup of tea & something simple to eat & I'm fine. Also trying to keep up the walking.
Before, during & after chemo I drink litres of water to keep flushing the body. Was also told to go to the toilet when you need to, do not hold on. It means getting out of bed heaps of time during the night & was difficult during winter but I did it!
Also I'm eating very healthly - lots of greens, fruit, cutting out excessively sweet things, meat, fish & chicken. I've always tried to stick with organic food even before this BC journey. Apart from the metallic taste that developed in my mouth, i didn't lose my appetite.
I'm using coconunt oil on my skin (& scalp now) find its very soothing especially with the rashes & very natural. Smell like coconut ice for while but it does seem to disappear. I don't feel greasy or oily after a minute or 2.
Oh, rinshing & gargling 3-4 times a day. I use bicarb of soda, some use salt. But again, no ulcers & if a sore throat has started, it goes fairly easily.
Hope this is some help. You'll get there, just don't panic :)
Hugs Gina
- JodieWallMemberI'm having 3 rounds of FEC then taxol (taxel?) weekly for 12 weeks. I'm a googler and have read many people's experiences :-( . I know I shouldn't be reading but can't help it. Then I'm having radiation because they want to do everything for added insurance. I'm guessing that's a good thing? Xxxx
- JodieWallMemberI'm having 3 rounds of FEC then taxol (taxel?) weekly for 12 weeks. I'm a googler and have read many people's experiences :-( . I know I shouldn't be reading but can't help it. Then I'm having radiation because they want to do everything for added insurance. I'm guessing that's a good thing? Xxxx