Forum Discussion
I feel like Ive won the lottery!!
Have just spent the whole day having CT scans and Bone scans to see if this monster has spread.
IT HASNT. IM ALL CLEAR!!!
IM IN SHOCK!!
I have a bit of arthritis happening because Im getting old but thats all!!!
just need to get through my mastectomy and axillary clearance tomorow then I think I will feel like Ican begin to see a faint glimmer of a light!!
Thanks to you all for letting me whinge and sook and no doubt ill be doing more than that once Chemo starts xxx
81 Replies
- I wish you could come to the mater on Wednesdays cas. Then we could be there together. Xxx
- Oh cas :-( I'm crying with you. God I wish I could give you a gentle hug. It's just all so unfair. I wish we didn't live so far apart because I could be there for you and try to help :-(
I don't even know what they are going to give me and I'm not going to worry about it until it happens. First things first. My treatment so far is all back to front. One surgeon wanted to do chemo first, CT scan, bone scan, then surgery. The surgeon that I chose said no way I'm playing with a tumour of that size, I'm cutting the breast off now and we will look at other problems after that. Hence why I am just going for scans this week coming.
Jodie, I read the positive ones because they give me hope and encouragement. Stay positive. I'm going to phone the Cancer Council on Monday and find out about wigs. I'll let you know what I learn. My breast care nurse advised me to get a wig made before my hair falls out.
CasThis is what I'm wanting to hear Peggy Sue. Thank you. I can do tired, I can do pain but I hate the tedium of nausea. I'll take whatever they suggest for anti nausea. I used to wake up from anaesthetics and vomit for hours. Now I tell them before anaesthesia and they give me something for it. I wake up and just feel thirsty. Hopefully you won't feel sick Jodie. I'm quite able to tell my body what to do (except for not producing cancer) so I'm teaching it now to not feel sick after chemo.
Cas- At the risk of sounding like a broken record, I too didn't have much problems with nausea. Of course I felt queasy on some days after AC (similar to FEC) but I found anything ginger helped a lot with that. Ginger infused tea, ginger ale, even ginger cookies. You'll find that the meds they give you are really excellent nowadays and your oncologist can adjust meds if you need a boost. I wasn't nauseas at all on Docetaxel (similar to Taxol). Hydration is really important too, as said, drink loads of water. I didn't have any problems with mouth sores either. I ate an ice-pol during my infusions which I think helped with that. But do use a mouth wash (alcohol free) or make your own from salt or bicarb, I used it at least twice a day. Biotine gum I found was good too. As mentioned here before, not knowing is the worst so after your first one, you'll be fine. Love Janey xxx
- At the risk of sounding like a broken record, I too didn't have much problems with nausea. Of course I felt queasy on some days after AC (similar to FEC) but I found anything ginger helped a lot with that. Ginger infused tea, ginger ale, even ginger cookies. You'll find that the meds they give you are really excellent nowadays and your oncologist can adjust meds if you need a boost. I wasn't nauseas at all on Docetaxel (similar to Taxol). Hydration is really important too, as said, drink loads of water. I didn't have any problems with mouth sores either. I ate an ice-pol during my infusions which I think helped with that. But do use a mouth wash (alcohol free) or make your own from salt or bicarb, I used it at least twice a day. Biotine gum I found was good too. As mentioned here before, not knowing is the worst so after your first one, you'll be fine. Love Janey xxx
- At the risk of sounding like a broken record, I too didn't have much problems with nausea. Of course I felt queasy on some days after AC (similar to FEC) but I found anything ginger helped a lot with that. Ginger infused tea, ginger ale, even ginger cookies. You'll find that the meds they give you are really excellent nowadays and your oncologist can adjust meds if you need a boost. I wasn't nauseas at all on Docetaxel (similar to Taxol). Hydration is really important too, as said, drink loads of water. I didn't have any problems with mouth sores either. I ate an ice-pol during my infusions which I think helped with that. But do use a mouth wash (alcohol free) or make your own from salt or bicarb, I used it at least twice a day. Biotine gum I found was good too. As mentioned here before, not knowing is the worst so after your first one, you'll be fine. Love Janey xxx
As I look back to the beginning of chemo, I will admit to cravings, I drank lots of ginger beer, and really craved cinnamon donunts....I would get hubby to get them, I would break them up and eat little bits. Noiw i know that both of these things were not really good for me, but my wonderful breast care nurse, siad to me, take this time for yourself, and it you want those things, have them. You will get back, to your usual diet in good time. Although I always ate healthy foods, I am much more conscious about it now. My philsophy was expect the worse, and I was surprised that it was not as bad, as I had imagined. I had my routine before and after chemo.
Radiation for 6 weeks, I did get red and sore towards the end, but with some great Gel o net (dressings) that cleared up quickly. Now on arimidex.for the next 5 years. Again not quite what I imagined, only a pain having to go every day, and getting that special arm up above my head..
Time will pass quickly, and you will be here reasurring another newly dianosed lady.
- Thanks Deanne xxx I'm down today :-( one week post mastectomy, drain still in, port in next week then chemo the week after. I just need a few "Normal" days where I can go out to the shops without dragging my drain bag :-( before the hard yards start and just be me well as close to being me. One of my close friends is about to stat chemo again as there are now spots on her liver. She is amazing and I don't know how she does it. She is a hero to me and I feel so bad whinging :-( I guess once the first infusion is done, ill know a bit more and will know what side effects ill have. I also wish my soft form breast would arrive so I can put a bra on And feel semi female. Jodie xx
- I think you will find that taxol will be nausea free and if you follow medical advice and the advice from women here you will be right. There is a great post on here called things that helped you through your journey or something like that. It has some terrific tips. I am about to have number 13 of 25 radiotherapy treatments and am finding this a breeze compared to Chemo. I am using gel and cream to keep my skin right and so far just have a bit of a tan developing. It is great to be able to go out and about more without the worry of low immune system because of Chemo effects. Life is definitely improving! :)
