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Rapunzel's avatar
Rapunzel
Member
8 years ago

I don't know what I'm feeling

Hi
I know I am extraordinarily lucky. My breast cancer was caught by my bi-annual mamagram thanks to BreastScreenSA. I have never been more tentative and scared while I did the whirlwind of a secondary scan, biopsy, etc. and then had to go back a few day's later for the results. I can still remember that the lady doing the ultrasound suddenly went a little 'still'. I got a cold feeling in my stomach which didn't go away until the doctor sat me down days later and told me I had cancer. 
I know that in some ways I have hit the jackpot in that it was caught really early.  I know that it was only a Grade 1, 1.5 mm, and I only had to have a lumpectomy, or wide local excision. I am also really, really lucky that I don't have to have chemo, but must have radiotherapy. I've just had the CT scan and will start radiotherapy in a couple of weeks.
But I am still worried, scared, not willing to put up with idiots anymore, a bit teary and weepy at times. Some days I feel like a fraud, that I don't feel sick at all, just very, very tired.  My work was a casual job only and have said all the right things but I know they need someone in the office doing the job, they're only a small firm, so realistically there will come a time when they just can't keep going with the lovely fill in lady they have now.  My husband has been awesome, so supportive, but now I'm struggling with my libido.
There are so many people on here who have had it so much worse than me but I can't help feeling like I just want to scream like a toddler and be utterly, utterly selfish.  "It's not fair!!".  It really isn't fair, not for anyone on this site, but right now I feel like it seriously isn't fair for me, in spite of getting off comparatively lightly.  Sorry to sound like a sooky whiney person but today, right now, it's a bad day.

14 Replies

  • I can recommend screaming in the car, you can really get stuck into it. Preferably while no-one else is in there.  Marg
  • @Rapunzel. Im so sorry you have had to join this emotional rollercoaster of breast cancer.  Im a 15yr survivor now been living with mets to the liver for past 5yrs.  What you are feeling is completely normal some days you will cope great and its early days but don't beat yourself up about having bad days, cry yell do what ever you have to do but always remember this one thing no matter how bad a day you may be having today, tomorrow is always a new day and I have learnt with numerable bad days that 24hrs can make a huge difference to your outlook.  I wish you the very best vent away as much as you need even start writing a blog that helped me a lot over the years.

    hugs xx
  • Hi @Rapunzel, I'm so sorry you have to be on this breast cancer rollercoaster. It certainly is not fair!! No matter how big or small your cancer is, no matter what treatment you have, you are still going through a big shock. Everybody has their own way of dealing with things and their own way of facing what's ahead.  Your feelings are valid. You may be feeling scared, anxious, maybe even angry about what is ahead.  Even if you don't feel sick your cancer has affected you mentally and physically as will the process of treatment.  You are not alone.  These are your emotions and feelings, let them out.  BCNA is a safe place for you to let those feelings flow and to receive the support you may need.

    My husband keeps telling me how lightly I got off with my own cancer experience.  I get very mad at him for saying and thinking so.  It was not a walk in the park, there was so much anxiety and worry about what was happening to me or what was about to happen to me and my cancer therapy.  Being diagnosed with breast cancer is not fun, surgery is not fun, recovery is not fun.  Bad days happen, it's ok. Be kind to yourself, be gentle and do something nice for yourself, let your body rest.  I've had similar days to you thinking I'm not really sick but my mind and my body were feeling the effects of the stress of it all.  Some days I distract myself by going out and buying yarn, (I'm a crocheter) other days just a walk around the neighbourhood admiring the Autumn leaves and peoples gardens helps.  Sometimes staying at home and binge watching something on tv is great for escaping on those bad days.  Today I'm home taking things easy and am baking. Things will fall into place for you I'm sure.

    So good that you caught it early. Good luck with Radiation, I'm sure it will go smoothly for you.  Just remember to keep hydrated and use your sorbolene cream to look after your skin.  After radiation I would cut up an Aloe Vera plant and rub the gel on my skin which was soothing and helped to stop my skin burning.

    Take care, Lisha xx