Forum Discussion

Shorelle's avatar
Shorelle
Member
8 years ago

Having trouble just coping

Hi , Im new to this group and after ready some stories I am greatful for my early diagnosis, well not that early stage 2a. But still I know I am in a better odds position that lots of others. Im a mum of 3 little girls 5, 6 and 8 with a husband who would be useless without me and Im really really scared. I have just finished 4 rounds of chemo and decided to book in for bilateral mastectomy end of sept. Im just not coping still with the diagnosis and cant see how this is ever going to stop taking over my mind. I was such a happy strong person and now Im a wreck. 

26 Replies

  • Crankiness is sometimes the only way to cope but as someone who is a pretty happy person most of the time, I sympathise with your feelings of radical change and hating it. But hard as it is to do, you are the person who can reclaim your happiness. You have been diagnosed early enough to make a real difference. You have made decisions about treatment, good for you. So the next step is to realise that this is not your life, it is just a bit of your life and you may look back on it in time as a very small part of your life. It's not a particularly good part, and if you have been in the habit of being the decision maker, there will be times when that role has to be renegotiated (or just dropped for a while). Your husband would really be useless if you weren't there at all, so now is a chance for him to step up. Give him a chance, it won't be perfect but then few things are and definitely not bc. Relaxation (hard with three small ones I know), occupying your mind with other things, or getting some counseling (talking to a stranger can be hugely liberating!) can all help rebuild your positive sense of yourself.

    Fear can build on fear - particularly if you keep it all inside. So talk here, there are lots who will totally understand. You are not a wreck, just very fearful of being one. We all know that feeling well. But many of us didn't become wrecks and we have recovered our lives, our sense of fun (yes, it can happen!) and optimism. Deep breaths, keep calm, you too can do this.

  • Hi Shorelle - sorry you've had to join us but it sounds like you are well into treatment.  Not sure how much exploring within the BCNA site you have done but there are groups and one for Young women which you may find beneficial.  Your young family suggests you are certainly younger than me! 
    It is all doable just that the roller coaster has a few bumps along the way and some us get on and off, dust ourselves down, occasionally rant and rave on here as we all get it and don't judge, get back on and try our darnest to come up trumps!

    Use the search bar up the top in the discussion page and you will find a multitude of different posts that may assist you.  Hopefully you've got a good support network around you with family and friends and you've received your My Journey Kit from BCNA.  The staff @BCNA will help you through if you need anything!    Take care and hugs xx

  • Ah, Shorelle, there are many reasons we don't want this disease. Mine came back in my armpit (Cancer in the armpit? Really? WTF?)

    I can't dwell on it as far as worrying about it coming back. I used to say that what doesn't kill you makes you stranger, now I think it just hangs around in the background and has another go later. There it is again, the black humour and cynical outlook that drives some of us.

    As far as fair is concerned, meh. Little kids getting cancer is not fair. Innocent people getting slaughtered in pointless wars isn't fair. People dying of preventable diseases because they are too poor to afford basic medicine, that is really not fair. A recurrent cancer in a middle aged woman who has had the benefit of a wild and wide life in one of the most privileged countries in the world. No, probably not 'fair', but I've had a pretty good run. We will see what happens, but I can assure you, if I didn't think my experience would be somehow helpful to others, I probably wouldn't discuss my disease very often.

    You can move on. Things are a new normal, but you can move on. Marg xx

  • Thank you for your words. I think you are right the toughest trees fall the hardest has been a way to explain myself. I was so healthy happy positive and tge change in my is sad. The whole thing is sad. Did your bc come back in your breast even after mastectomy? Thinking of you. Just when you had passed your 10 year mark too. That is really unfair. It seems it never really goes away.  
  • Hi @Shorelle, it's a bloody long process all of this and I think just get through one day at a time. I agree with @Zoffiel, I think happier people may find it harder. Personally, I have had a shit three years so what's one more thing. It will get easier I believe. All  the best.
    Lisa 
  • Hey  @shorelle  I've just, today, had my portacath removed after having to go through the whole bloody process again. I had a double mastectomy with reconstructions at the end of 2006 and had a recurrence, with all the associated drama, last year.

    You know, it does get better. I'm not suggesting that it all just goes away, but that physical feeling of fear that follows you around does lose a bit of energy and lags behind a bit. It catches up every once in a while, but if you just keep putting one foot in front of the other, one day at a time you can start to feel you are outpacing it 

    I've got no evidence apart from experience to support this, but I think sometimes BC is harder for people who have previously had a sunny disposition. Perhaps those of us who are crankier and generally less cheerful are used to being pissed off and feeling like shit. I don't know.

    Good luck with your upcoming surgery. I firmly believe that the process of making those sorts of decisions is far and away the toughest part of BC treatment. If you have been through that, you have done the worst bit. It is bloody exhausting, but you are getting there. Keep going. Marg XXX