Forum Discussion
Di_BCNA
16 years agoMember
Get Connected Day!
This is the Get Connected post, which is a place where you can introduce yourself if you'd like to widen your connections.
What to do...
Comment to this post (use the comment form at the bottom of the page) with a short note about yourself and who you're looking to connect to. Easy!
If you see someone with experience similar to yours, who you'd like to connect to, then just click their username (in their post) and you will end up on their profile page. Then all you need to do is look on the left side of the page under their picture and you'll see an "add contact" link and follow the prompts.
Why connect to others?
One of the good things about connecting to others, is that all of their blog posts will show up on your homepage in a reading list. So if you haven't visited the site in a few days, you'll still see what everyone is up to!
Important note
Remember to check your own privacy settings on your "edit" page. There's no need to reveal anything personal or private, but if you want others to connect to you, you should make some of your My Profile settings "public" so others can find out a bit about you (eg. 'my story', 'about' me' and 'breast cancer experience').
If you're not sure what to do, you might like to read this post on how to change your privacy settings.
Have fun!
Di
165 Replies
- ShirlOMember
Hi Cynthia, well that's another hurdle you've lept over ... well done. I'm glad everything went well for you.
while you are recouperating just listen to your body, it will tell you what to do.
Cheers ... Shirl
Hi Kaz. Thanks so much for your reassuring words and best wishes. ?? ??I? ???????????????was ready for the surgery by the time it came around ?y?e?s?t?e?r?d?a?y? and ?t?o?d?a?y? ??I? am quite chirpy and have good movement. I am very tender in the left breast area, as to be expected, but not on any pain killers much - maybe a bit of Panadol if needed, but mostly I don’t need it. I won’t get the results from what the pathology tests say until Fri next week (10th Sep). The hospital experience was good and everything ran smoothly??. ??
I am delighted that I only have one wound. It is an L shape quite close the left nipple (from about 11’oclock to 5 o’clock) where they removed the lump as well as the sentinel node/s. ??I am very glad about that from a scarring point of view and also for healing, I won’t have to worry about messing around with a wound under my arm. Also I was worried about losing the shape of my breast and looking lopsided or deformed on one side afterwards. But things look really good so far, so I am very pleased about that too, except I do have to wear very un-sexy bras for the next 3 months???!
I’m home now and feeling dopey and tired. So have settled into bed with the laptop, a book and a movie – so ???????m?y? ??h?u?s?b?a?n?d? ????????????says everything’s normal!
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???T?h?a?n?k?s? ?a?g?a?i?n? ?f?o?r? ?y?o?u?r? ?m?e?s?s?a?g?e?.
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- AnonymousNot applicable
Thanks Di, that's great!
- w_a__kazMember
Nice to meet you. How wonderful BCNA is. I have just come back from "boot-camp" in Melbourne and am a new recruit liason officer. Am very excited to be part of such a wonder family. You sound very busy like most of us mums but like me love to give back hope and support to others through their journeys. Congratulations and consider me another new friend, Kaz
- w_a__kazMember
Sorry you have to go through this again, I wish you well. I have seen the BCNA Hopes and Hurdles free pack and it's a wonderful source for woman going through secondarys, if you havent been told about it you can order it through this site or phone- 1300 887 340. It has a wonderful suggestion to you saying- "Take one step at a time. Breaking things down into smaller pieces might make them more manageable". I thought this was great advice not just through our cancer journey's but to all difficult things thrown our way.
We will be thinking of you, chat soon, Kaz
- Di_BCNAMember
Hi Celeste, thanks for the feedback. At the moment the site generates notifications when there's activity on a post or thread where you've participated (and as you noticed, that includes your contributions! :). I agree you don't need to be notified of your own activity and we'll check how easy or difficult it is to turn that off.
In the meanwhile, if you want to, you can turn off the notification for each activity subscription that the site generates. There's a good description (with screengrabs) in the user instructions on the help page (see page 14), so that would be the best place to look. But in summary, just go to view profile > edit > subscriptions. Click on the 'manage' link next to the one you want to change and on the next screen you can make it temporarily inactive or unsubscribe all together.
If you don't want to receive notifications at all, you can do that on the edit > password & subscriptions page (there's a good explanation for that in the user guide, too), but that means you won't get any notifications at all.
Regarding the conference, you're most welcome to join the group. If you'd like more info on the Conference itself, then the conference info page is here: http://www.ywcaustralia.org.au/index.php?option=com_content&view=article&id=17&Itemid=23.
Hope that helps, but let me know if you need anything else.
- AnonymousNot applicable
Hi Di, thanks for the warm welcome! I do have a question that you might be able to help me with...whenever I post a comment/reply (whatever) I get an email telling me I've done so! I'm happy to receive emails re any posts from other people but not from myself!!..LOL! Can you please tell me how to switch this off? Also regarding the 2nd National Conference for Young Women with Breast Cancer, can you tell me what is considered "young"? I was diagnosed at 40 years of age (in 2008) and was thinking of joining the online group, but wasn't sure.
Thanks Celeste
- AnonymousNot applicable
Hi Mel, my name is Celeste and I am also new to the site! I was sorry to read that you've had to start treatment again....damn pesky cancer! I guess all you can do is take it one day at a time, and take comfort in the fact that you got through it first time around.
Anyway, just wanted to say hello.....from one newbie to another!
Take care, Celeste
- Di_BCNAMember
Hi Cynthia and welcome. Just ask if you need a hand with anything relating to the network. :)
Hello. First, thank you to Moira1, ShirlO and Tanya for their kind words to me already. I introduced myself earlier without realising there's a weekly forum to do so. So I will do two introductions for the price of one!
My name is Cynthia. I am 46, very married, child-free (with a cat). I was just diagnosed last week with invasive ductal carcinoma and am due for surgery on Wednesday coming (1st September). I will have a lumpectomy + sentinel node biopsy. The closer my surgery comes the more sad I feel at the impending loss of the shape and size of my breast. I would like to hear from anyone else who's had a lumpectomy and hear about your response to it and how your breast turned out afterwards. Looking forward to hearing from you. Thanks. Cynthia