Forum Discussion
Di_BCNA
16 years agoMember
Get Connected Day!
This is the Get Connected post, which is a place where you can introduce yourself if you'd like to widen your connections.
What to do...
Comment to this post (use the comment form at the bottom of the page) with a short note about yourself and who you're looking to connect to. Easy!
If you see someone with experience similar to yours, who you'd like to connect to, then just click their username (in their post) and you will end up on their profile page. Then all you need to do is look on the left side of the page under their picture and you'll see an "add contact" link and follow the prompts.
Why connect to others?
One of the good things about connecting to others, is that all of their blog posts will show up on your homepage in a reading list. So if you haven't visited the site in a few days, you'll still see what everyone is up to!
Important note
Remember to check your own privacy settings on your "edit" page. There's no need to reveal anything personal or private, but if you want others to connect to you, you should make some of your My Profile settings "public" so others can find out a bit about you (eg. 'my story', 'about' me' and 'breast cancer experience').
If you're not sure what to do, you might like to read this post on how to change your privacy settings.
Have fun!
Di
165 Replies
- VivWMember
Sorry to hear your news Tanya, all I can say is take someone else with you to your appointments, get your Breast Care Journey pack, you can order it through this site. Ask as many questions as possible and get all options (depending on your type of cancer).
Don't worry about the wedding you can get married later under a tree in a park. Put yourself first.
All the best with your appointments.
Viv
- Hi, my name is Tanya and I'm a 39 yr old mum of 5 who was just diagnosed this week. Will meet with the specialist next week and am scared as. The worst thing about all this is I'm finally getting married in 3 weeks from today after 7 years of planning and saving and then as a family we are supposed to be going on a cruise to Fiji 2 weeks after the wedding. I have no idea where this diagnosis is going to put our plans, and I think that is the hardest part so far for me....waiting for answers. From Monday to today my whole life has changed and I guess I'm still in shock. My doctor doesn't know if the specialist will wait till after the wedding to do surgery, and if he does will I be recovered enough to go on the cruise. Silly stuff I know considering what I'm facing.
- Hi, my name is Tanya and I'm a 39 yr old mum of 5 who was just diagnosed this week. Will meet with the specialist next week and am scared as. The worst thing about all this is I'm finally getting married in 3 weeks from today after 7 years of planning and saving and then as a family we are supposed to be going on a cruise to Fiji 2 weeks after the wedding. I have no idea where this diagnosis is going to put our plans, and I think that is the hardest part so far for me....waiting for answers. From Monday to today my whole life has changed and I guess I'm still in shock. My doctor doesn't know if the specialist will wait till after the wedding to do surgery, and if he does will I be recovered enough to go on the cruise. Silly stuff I know considering what I'm facing.
- HeidihoeMember
When my friend had lung cancer they did Pet scans to see where it had spread in the body. If you have too many scans they actually give you cancer over time.
When I had cancer they did a iodine uptake and watched where it was taken up in my body, to see the spread.
Ask your Dr or anyone you come across at hospital, clinics, etc and see what they say. Tests are expensive and have an effect on the body so unnecessary tests are not going to be done by dr's if they don't think you need them
Hope I helped
Heidi
Good Luck with it all
xxx
- HeidihoeMember
Take care Adrianne and love your small son every day with passion, they are what we live for
Family
Friends
Loveones
XXXX
- HeidihoeMember
I really loved your note back Julie to ShirlO
I hope people here can help you in your journey
They are wonderful souls
Take Care
xxxx
- Julie59Member
Many thanks for your reply and offer to connect me to somebody who you think may be of assistance.
My late Mum's name was Shirley, so how ironic that the first person to contact me is named Shirl. You must be an angel sent from above to guide me on this journey.
I've been told by others that if nothing else, you make some lifetime friends from this bloody disease that tries to take a hold of our bodies.
Best Wishes - Julie X
- VivWMember
Lumpectomy back on 30/4, IDC 20mm stage 2, grade 2, ER+, PR+, HER2 neg, clear margins and lymph nodes clear. Apparently the best results considering.
I would strongly reccomend to everyone to get all your reports and have a good read, and talk to someone else. I wasn't put in touch with bcna until I was about to start radiation. These blogs are such a fantastic source of information. WE ARE NOT ALONE IN OUR THOUGHTS.
Big fear now is recurrence, higher with just having lumpectomy. No one told me that. Should I have recurrence in same breast reconstruction more difficult because of radiation.
VivW
- VivWMember
Lumpectomy back on 30/4, IDC 20mm stage 2, grade 2, ER+, PR+, HER2 neg, clear margins and lymph nodes clear. Apparently the best results considering.
I would strongly reccomend to everyone to get all your reports and have a good read, and talk to someone else. I wasn't put in touch with bcna until I was about to start radiation. These blogs are such a fantastic source of information. WE ARE NOT ALONE IN OUR THOUGHTS.
Big fear now is recurrence, higher with just having lumpectomy. No one told me that. Should I have recurrence in same breast reconstruction more difficult because of radiation.
VivW
- ShirlOMember
Hi Julie, you certainly have a lot on your plate at the moment and it doesn't help much living in a new area.
I will connect you with one of our Community Liaisons Mandy Forteath who lives in Launceston. If she can't help you with the info you need she will be able to put you in touch with someone who can.
Will be thinking of you as you travel on this new and confusing journey. Stay on line, there is so much support given to everyone .... one thing about this bloody disease we make and keep friends for life
Love .. Shirl x0x