Forum Discussion

such_is_life's avatar
14 years ago

Where"s The Love

Hi all,  I am sorry to be a bit negative and it might be that I am having a bad day but here goes, I was diagnosed back on the 20th of March the day the wonderful Jim Stynes left this earth, I have had to wait all this time just to see a surgeon and it will still be a couple of weeks till my hopefully nipple sparing bilateral mastectomies with immediate tissue expanders,(wanted to go straight to gel implants but surgeon says she wont do that way), and I read on here about the love and support everyone gets from their family and friends, but I can honestly say  I am still waiting for my first bit of comfort from anyone.

I know husbands live in denial, and kids may not understsnd the gravity but narda, not a word  and as for friends well completed silence .

I have been a nurse since I was 17 years old and worked in gp rooms for the last 18 years and believe I am a good person that always show sempathy and compassion to all my patients and friends, it seems whenever medial advice was needed it was always ring Narelle she will know or help, but now I am high and dry.

The one friend I know would of stood by me unfortunately passed away suddenly 15 months ago leaving behind to young children, visiting her grave helps  but isnt the same as having someone to vindicate your worries or concerns.

Anyway hope I havent brought anyone down, just needed to put it out there I guess that even though I work with doctors and they are great dont get me wrong, it is so easy to feel so alone.

Thanks to all that take the time to read Narelle

7 Replies

  • Ha! I just realised I was post op when I wrote this!  May have been a leetle anaesthetised still!!!

  • Aaaaah my love, I'm so sorry to hear you are doing so tough, as you may have read I am also a nurse. A frigging cancer nurse for gods sake! I could give my own chemo! Anyway the girls here are fabulous and I love each and everyone of them (even though I've never met any of them!) we are sisters in arms and have a common thread that creates something like no other. Quite a group we are! I hope you have access to a breast care nurse and a local boobie support group. As nurses, mothers, wives, women we are used to giving. It's time now to learn how to take some support. That in itself can be tough. Sending you positive boob vibes!! Lots of love and strength Danielle x
  • God Narelle, I can't even imagine how you are facing this without the support of friends and family. My husband, children and friends are what got me throught. I was called back after a routine mammogram in November, diagnosed in early Decmeber, booked in to a surgeon two weeks later and had left breast removed on 6th jan, followed by a second op three weeks later to deal with a seroma, and I have just last week finished 5 weeks radiation. It was all so sudden I think I am still in shock and wondering what the hell happened to me. To think of having to dwell on the issue for so long - I don;t know how I would have coped. I hope your husband has become more supportive, mine suprised me - perhaps yours will too. I wish you well with your op and your results.

    Cheers, Vicki

  • Hi Narelle

    I think our family and friends don't know how to react a lot of the time.  They don't want to be in our faces and therefore may be giving you space.  I was diagnosed 3 months ago and just started chemo.  I also believe that because we still look well, people think we are doing just fine, when it is mentally that breast cancer initially impacts on you. Don't be afraid to ask them for a catch up and while it doesn't seem fair, it might just need you reaching out for your friends to be there for you.

    I saw a surgeon 2 weeks after diagnosis but it still took 5 weeks for surgery.  Try to stay positive.  Feel free to add me as a contact or private message me.

    Tammy x

  • Hi Narelle,

    I know how you feel , i have just finished my last chemo treatment on monday and since my surgery back in dec 11 , my 2 really good freinds have only come to see me once after my mastectomy  and not at all during my chemo which has been really hard, it would have been nice to have some company when i was feeling down and unwell but you know its all always me that everyone calls when they have a problem and yes I am the strong one as i am always told.I am so dissapointed in them , yes we all have familys and work but when i see them on facebook with plenty of time for other outings it upsets me ,yes we do live 1and half hours away from each other by car, but we have always seen each other on a regular basis.

    I have actually had more support from people that i am less close too ! sometimes in life you need to rethink who your real  freinds are, sorry hope i am not sounding to negative it is my third day after chemo .

    take care xxx

  • So sorry to hear that family and friends aren't giving you the support you need. Perhaps they see you as still fit and healthy.The seriousness of it all may sink in when they see you after your op.It's terrible that you've had to wait so long for your surgery.It's the waiting and the unknown that does your head in with this bc journey.Blog back here for support-you won't feel so alone.We are either going through treatments or have been through it. I am just 2 years on now from my bc diagnosis(2nd one)or 9yrs on from my first.It's great to have family support but your pink sisters here truly understand what you are going through.Take care and keep in touch with us.

                                          Tonya xx

  • So sorry to hear that family and friends aren't giving you the support you need. Perhaps they see you as still fit and healthy.The seriousness of it all may sink in when they see you after your op.It's terrible that you've had to wait so long for your surgery.It's the waiting and the unknown that does your head in with this bc journey.Blog back here for support-you won't feel so alone.We are either going through treatments or have been through it. I am just 2 years on now from my bc diagnosis(2nd one)or 9yrs on from my first.It's great to have family support but your pink sisters here truly understand what you are going through.Take care and keep in touch with us.

                                          Tonya xx