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dodg113's avatar
dodg113
Member
6 years ago

what were the decisions you took if you have had a 2nd breast cancer?...where to now

Hi lovely BCNA members,I am wanting to hear from the really"lucky" ones of us that have had 2 breast cancers and what you decided to do moving forwards.
I had R DCIS rx w lumpectomy + radiotherapy in 2014 .
5yr scan - grade 1 Ca in opposite breast Left - decided on mastectomy + immediate reconstruction and now on tamoxifen with all its wonderful side effects.
I am considering prophylactic mastectomy on original side but am interested to hear what everyone else has done.

As my surgeon summed it up - either having major surgery with associated risks- which in my case may be as have nerve damage from radiotherapy  so permanent nerve pain on entire R chest wall, breast 
vs
living w fear of a 3rd recurrence ,increased anxiety around screening time, most likely biopsies etc as ++++ dense breasts and as just turned 50 so possibility of 30 yrs of screening etc etc.
  • Thanks everyone, appreciate sharing ur experience. Going to get L breast reconstruction finished in April and then almost 100% decided will do prophylactic on R. I  have been v lucky that both my BC have been v found v early so avoided chemo & mastectomy been much better than radiotherapy.mentally also wanting bit of control back in my life! Know still risk of recurrence but much less!! Will keep posting on breast reconstruction W photos of updates 
  • I had a recurrence after 10 years. BC version one in 2006 (Invasive lobular 50mm tumour) I had a bilateral mastectomy, AC chemo then took Tamoxifen for 5 years. I couldn't afford radiotherapy. BC V2 in 2016 I had a wide excision to remove the tumour in my armpit, 5 of 15 nodes corrupt. TC chemo, ovaries removed,  25 rounds of radiotherapy, and now taking Exemestane. 
    I have some pretty nasty nerve damage from the 2016 surgery, peripheral neuropathy from the TC and the Exemestane is a challenge.I can't see I had much choice if I wanted to survive. Of course, I'm running out of removable body parts, so more surgery isn't on the menu.
    Mentally, all this stuff is exhausting and there is a very strong chance that my disease will progress. I don't have anything in the way of scans with the exception of a few ultrasounds to check some of the multiple lumps and bumps in my armpit. 
    No CTs, blood tests or MRI. For me now, its a matter of waiting to see what will happen. Three years on, I'm back at work and I try not to think about it all too much. Mxx
  • @dodg113 Hi there! I had DCIS in left breast in 2011, Lumpectomy, radiation and tamoxifen for 4yrs. 2015 I had a recurrence in the same breast 2.5cm tumor IDC, I underwent chemo and Arimidex then switched to Aromasin. In Feb 2017 by recommendation from my Oncologist, I had a single mastectomy with immediate Diep Flap reconstruction.I just couldnt risk another recurrence. I had Genetic Testing and they agreed that it was negative and that a double mastectomy wasn't warranted. 

    I've just reached my 5 year clearance of my right breast. If anything happened to this one, I have no issues in another mastectomy and recon to match. I couldnt have an implant due to the radiation damage. For me? the surgery was a much better outcome as opposed to the damage that treatments have done. Hindsight is a wonderful thing, but then I also believe we make the right decisions at the right time for ourselves. 

    xx M
  • Sorry I think I posted the comment before finishing.  Many ladies have given their views in that post.