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ScorpionQueen's avatar
9 years ago

Washing the grey out of my life....

Day 17 - after double mastectomy

Ok.... I have felt myself slowly slipping down into the abyss... I dig my claws in and hang on.... Inch by inch I wiggle my way back up.. I sit on the edge looking down...

I have felt 'down in the dumps' before but I have never been fully consumed by depression..... But I have many friends and family that have and still do... I have nursed them through it, tip toed around them ever so carefully, helped when I could , all without really getting what it's about ... Well I think I may have some idea now of how easy it is to get pulled down and although I haven't yet, stay there...

This experience has played games with my mind all along.... I'm living in a mine field, except I am the bomb, waiting for the pressure trigger to be deployed...each day is different but the same...

Being cooped up hasn't helped my cause either, don't get me wrong, getting to sit around watching TV and going pretty much nothing else can be just what you need, but it's been months now. I have only had a few short weeks in that time where I can say I actually felt well... Then another treatment is upon me...... that taunting finger pushes me closer to the edge again...

I look at my scars and I have mixed emotions... I am proud of them, they're proof I'm a force to be reckoned with, a fighter....on the other hand I feel like Frankenstein, the jagged lines and buckled skin a reminder that I was at the mercy of an evil entity.... These scars carry the reality of what has happened to me .... And it's bloody hard to ignore.

My mind is at war.... My heart is pleading... 'stop!' Everyday I wake, I feel the pain, the aches throughout my body... I make my mind numb itself like parts of my body are....I smile and push through....I'm fine..

Today I got up, stood under the warm shower, carefully dried myself... Be quiet mind.....looked at myself in the mirror and decided that I will start backing away from the edge... I've re opened my art page for orders....started to focus on getting back to work, even if it's for a day.... Start to slowly take back my life ...

I refuse to let you win....

5 Replies

  • It is such a difficult journey with so many bumps along the road. Depression can also be part of this awful bloody disease. Let your health professionals know how you are feeling and definitely see if you can see an oncology psychologist. I am still seeing one 12 months down the track of treatment. It is amazing how things come up even now. I had a lumpectomy and have lost about a fifth of my breast. Today I had a heart scan done and the lady doing it asked me to undress my top half completely. I was surprised at how uncomfortable I felt. Normally it wouldn't worry me but today I was just so aware of my scars and my misshapen breast. Goodness knows why. You will get through bit not unscathed. We become war weary. Take care. Karen xox

  • I TOTALLY know what you mean ! I'm still all taped up and in extreme pain from my surgeries a few weeks ago.

    Every time I have to change my wound dressing, I get confronted by my scars and blobs (which are suppose to be my breasts). And to add insult to injury, I have to massage and moisturize daily.

    Sounds like we are in a similar space at the moment, it's all still raw for us. Chemo and surgery is major for the body and mind to deal with .

    My breast care nurse says it's completely normal. She told me not to put too much pressure on myself, as it will take some months to adjust to my new self.

    We are justified to cry about what a crappy journey this is. Because it is TOTALLY crap. And it has changed us for life. But it will get easier and we just have to keep focused on the future.

    As Dory says, 'just keep swimming'. -Finding Nemo ????

    I'm going to weekly meditation groups and make sure i walk everyday.

    Am sending positive energies xo ??

     

  • Hi ScorpionQueen,

    I hear you I want to encourage you that you are strong and you will come of this horrible treatment stronger than you already are... 

    Art Music all help with our mental well being. 

    I did double mastectomy 2012 then 9 months of chemo's that I took allergic reactions to etc then 6 weeks of Radiation .... I have struggled with being at that edge.... Ask for a Mental Health Plan to see a Psychologist who specializes in Oncology patients if you can that allows you up to 10 visits covered by Medicare. I found it has really helped me to be able to discuss the fears etc. It is ok to say I am not coping this is a F**k of a disease that really does affect us in all ways mental physically and emotionally then we add the treatments to that. 

    Hugs and kisses 

    I hear you cry for help <3

    Soldier Crab aka alice

     

  • Oh Hun.. Just hang in there...

    I know it is horrible being cooped uo indoors and segregated... I have been doing it since 20th May only and feel like it has been an eternity and cannot even behing to imahine after such a long period as the one you have had to dealn with.

    It is so understandble that you feel that way and so so so normal... I think that jf it was not bringing you down there would be something wrong with you - had it not made you depressed I would think you were in denial...

    I am just glad you are aware of it and how easy it is to slip and am glad that you are doing something about it. Art can be so powerfull to express how you feel and even just routine qork stuff to shake you out of the 'ordinary' day to day drudgery... 

    You are doing the right thing...

    And if coming out to Kogarah area again please shoot me off a message so if there is any way I can meet up with you guys and buy your lunch nearby on the lovely Brighton shore I would absolutely love it.

    There is the best ever Thai place just across the road from the beach and you cannot imagine what having a nice stroll by the beach as well can do for recharging the batteries...

    Just hang in there ... 

    ????????????????

    Hugs

    Jel

  • Thanks for being so raw and honest, its such an encouragement. My heart breaks for each lovely lady that has shared in this journey, I will be thinking of you and want to encourage you to keep moving forward.

    Leila xx