Forum Discussion

HappySoul's avatar
HappySoul
Member
5 years ago

Vulnerability

Hi all,
I'm almost finished my radiotherapy treatment, 17 sessions done and only 3 to go.. hooray! So relieved and happy to be near the end. You would think by now I would be getting used to the routine wouldn't you but hmm anyway..

At my original planning appointment in the CT I couldn't shake the feeling of vulnerability I felt. Eventually I became overwhelmed and I ended up crying (not sobbing, just tears kept pouring out of my eyes) which made it very difficult to do my deep inspiratory breathing as I couldn't breath through my nose! I think it was the combination of being naked and exposed from the waist up & having my arms fixed above me whilst several people were very close to my boobs, touching, measuring etc. I've never felt this at any of my other appointments or treatments - I was even fine in the MRI scanner. I have always been a very private person so I guess this is a major part of it.

For the most part, I have been able to just get on with things each radiotherapy session since, and at least they are faster than the planning appointment. However, today after the RTs  left the room they took much longer to start the machine & I was left lying there for what seemed like ages with no-one telling me what was going on. Then when it was finally all done & they came back in, one of them started giving me advice about my breathing and said that I seemed to be moving my back too much (although no-one had said this throughout the session). He did this all whilst not having told me they were finished so I was still lying there in that naked vulnerable position, then he finally took the breathing monitor off my chest so I could cover myself up. I apologised to him then as I was leaving I could hear him talking about me to his colleague and how he'd re-explained how I should breathe.

So, to cut a long story short I've spent the afternoon being very emotional about the whole experience again.. annoyed that I still don't seem to be breathing correctly and feeling unable to shake the feeling of vulnerability even after all this time of exposing my breasts. I know I have so much to be grateful for - I'm so lucky to still have my own breasts, plus radiotherapy is one of the 'easier' treatments but I just cant wait till its all over, thankfully I'm nearly there.
  • It is okay to feel vulnerable at any stage. I remember going for my mammo on my still existing boob and the radiologist told me I didn’t need a gown as she had seen it all before. I felt very uncomfortable as I still wasn’t used to my flat side. They often forget that it isn’t about THEM, it is about us. Next time don’t apologise, you were not in the wrong. Sending a big hug your way.
  • Totally understand I finished radiation 2 weeks ago, that breathing did my head in ! 
    Some days it was easy, some days hard, some technicians were helpful and happy with my breathing, others less so..... and I’m a private person too, so having peoples faces up close to my boob was very confronting! I tried shut my eyes and thought of a beach or something.
    I think lots of things make us emotional at the moment..Don’t be hard on yourself, and definitely don’t apologise.   
    You’re nearly there, you aren’t alone in your feelings, you got this! 
    Hugs, Caz 
  • Thanks @Blossom1961, for your kind words, I think that's all I really need right now - a big hug - but its hard to get one with all this social distancing! So nice to get an online one though, so thank you
    @Caz1 I'm glad I'm not the only one! The breathing thing sounds so normal but seems to be so variable., I've been meditating and its all about breathing into your belly, then I go to radio & its all about breathing into my chest & not my back & pretending to sniff roses & trying to hold it whilst not pinching your nose haha! It seems really strange. And it does seem that the technicians faces come very close doesn't it. Thanks so much for your pep talk. I feel 100 percent better today, think I just needed to let it all out. Only 2 sessions to go, yahoo!
  • @Jo_H YES!! I’m a meditater from way back. Thought it would be helpful but apparently not!! :o
    Must be the only downside to it!
  • Gosh, @Jo_H - I think you've probably finished off your Rads yesterday - 2 years to the day that I also finished mine - or do you have to go back on Tues/Wed for the final 2?!

    I was strangely emotional on my last day - I just couldn't stop blubbering!!  Snot running down my nose (as I was face down for my Rads!)  NOT a pretty sight!!

    Well done on getting thru this part of your treatmet - BIG HUGS coming your way! Your treated area will still be warm for some weeks to come, so make sure you keep your lotions up to the whole area!   

    Whereabouts are you based? Town/city?  If you add it to your profile, others may know of help groups that you may be able to access?

    Take care, enjoy your break between this & chatting with your Oncologist (if you need tablets)

    Happy Easter xx