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KathSe's avatar
KathSe
Member
9 years ago

treatment nearly completed

Hi Everyone,

I was diiagnosed with a 9mm Triole neg in July(stage 1 grade2)( which was completely excised with good margins and sentinel nodes clear.  MRI of breast and abdo clear before treatment and Liver CT showen cysts only.  I have completed 4 cycles of AC and I complete my last cycle of 12 paxitaxol on Wed. and Im terrified.  I have aches in my shoulder and back which come and go but i still have excellent range of movement but Im really scared that they may have missed something.  I have an olf rotator cuff injusry from a disclocation and i think that the taxol is aggravating it but im still really scared.  Iwill cope with what I have to but I just want a break for a while.  I am supposed to start rads on 30th.  Im try to take 1 day at a time but im really scared that I wont get a break.  Ive been try to keep myself occupied but are I keep worry about bone mets whilst on chemo and thayt tehy may have missed something.  Other than that I feel well and the paxitaxol hasnt been too bad at all.  Any Triple negs out there that can offer advice?

cheers

kath

18 Replies

  • Me too then Melinda. I'll get on that for sure! Quite despondent and looking for answers and inspiration today. 
  • I'm going to throw Turmeric in my mix I think :) its a natural anti inflammatory DiBee so helps enormously with pain. x Melinda
  • Hi Rita, I'm curious how the turmeric has helped you. I'm 4 treatments into Taxol and have headaches, aches and pains.
  • Hi, I can understand that you are worried it's hard not to be when you are dealing with cancer. I personally get alot of joint pain since treatment and all my scans have come back clear. Our bodies go through so much through chemo that it affects so much. A couple of months ago I had a PET scan and one of the comments was that my bone marrow was regenerating and that was 6 months after chemo finished. I have been taking tumeric tabs for the last month and it's helped me alot. 
    I wish you the very best
    Rita xo
  • Hi Kath,  the fear of the damn thing returning is always with us.  I'm a Triple neg. stage 1, grade 3, lumpectomy ( 2nd surgery required to gain clear margins) lymph glands clear. My treatment was the same as yours which I handled ok ( except for damn shangles) I had one month of Radiothreaphy. Also went ok.  So I finished active treatment last July. As you have probably read everyone is different so my probs doesn't mean you will experience the same. My main probs is my gut.  I feel like I have something stuck in my left ribs cage (BC on right side) it was painful at first but with the help of medication is now just annoying, I have had a colonoscopy and the one down the throat ( can't think of the name) anyways turned out I had silent reflux which has damaged the area  (I was prescribed during chemo,  nexium but didn't take it because I never experienced heart burn, so I thought) .  Also have been told I am lactose intolerant and have diverticulitis  (nothing to do with chemo) maybe my age. I'm keeping active, yoga ( please try it as it's brilliant), I walk 5 days a week, swim( well walk up and down the pool) and have an exercise program which I do twice a week.  
    Just now I'm experience pains under both arms and in my back and neck, I spoke to the BC nurse today and said it sounded normal following treatment. I get very tired in the arvo and try to have a short rest everyday. 
    So Kath guess it all takes time. One day at a time is the best way to go. Look after yourself and be kind to yourself. Don't expect too much.
    i hope this helps a little.  The ladies on here are so sweet and caring. I don't post very often but read the posts which helps so much.
    you may hate this saying but stay strong and determined. 
    Love Anne-Marie

  • Everyone fears the spread regardless of the pathology. All we can do is focus on the positives.

    - Clear surgical margins 
    - Small stage 1 tumour
    - Clear lymph nodes
    - Clear scans
    - Shoulder pain that comes and goes in an old injury...metastases pain don't go

    It is normal to have the fear. We have to talk to ourselves though to stop with those thoughts and celebrate the end of chemo treatment. It gets better. Kath x


  • Hi Kath, my diagnosis was similar with a triple neg but my tumour was a little bigger at 1.8cm. I had a lumpectomy, 8 sentinel nodes removed (all clear, clear margins) followed by chemo. I had further surgery later but that was for a different reason.

    Is your shoulder pain on the side that your chemo was administered? I only ask because chemo really stuffed up the veins in my arm and I ended up with tendonitis and now a frozen shoulder. Really painful for a long time before the shoulder actually froze - I had excellent range of movement for a long time but now very limited. And because I compensated for it, I have pain in my back as well. Alternatively, this can also happen on the side of surgery, especially when lymph nodes are removed. I would try and see a physio as soon as you can and if this is the case, see if they can loosen up that whole area before it freezes. Early intervention is key if it is the early stages of a frozen shoulder.

    The thought of course crossed my mind that maybe the cancer had spread. I think it is only natural to be anxious about this. But this was dismissed by all doctors - clear nodes and margins, a clear bone scan before my treatment. But I still had an ultrasound and xray to see what was going on. The fact that you have an old rotator cuff injury is interesting and again, to me, points towards an early frozen shoulder developing. I would try and see a physio as soon as you can and give them the full story.

    Best of luck

    Sherril

  • Hi @KathSeward,
    I am not triple negative but I can understand (like most of us I am sure) your anxiety. You have a lot that IS in your favour though.  Early stage and Grade 2 is good news. Chemo is very effective against Triple Negative breast cancer and that is also a good thing to remember. 

    I started radiotherapy 3 weeks after chemo finished and while I was a bit like you and concerned with no break between, it was also reassuring that such consistent treatment would lead to a better result against any stray cancer cells. It is exhausting but the first couple of weeks of radio are not too tiring and I think the tiredness only really hit me when I actually finished. We had also moved house the last week of radiotherapy so that added to my tiredness I guess.

    It will be 4 years from diagnosis for me in May this year. It does get easier once you find your rythym in life again. I have made changes that help me to feel I am still actively doing something to lessen the chance of recurrence. I lead a much healthier lifestyle than before. Exercise really helps me to feel less anxious.  I make a little time most days to do something just for me. Sometimes it helps to talk to someone who can understand how you are feeling. Coming on here can help or even finding a counsellor to talk with. The Cancer Council have a very good phone counselling service that many of us have found helpful. 

    Wishing you all the best for your radiotherapy. You are nearly through treatment and then you will be able to make steps towards a new life after bc. A life you are in charge of once more. After a while that will feel very good. Take care. Deanne xxx