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T-Bird's avatar
T-Bird
Member
11 years ago

The story so far

This year is going to be a write-off for me. Two weeks into the year I found a lump in my breast which led to an ultrasound, mammogram and biopsies to be diagnosed with breast cancer just over one month later.

During this time I honestly thought it wasn’t going to be anything serious, I thought I’d already had my fair share of illnesses. I survived a life threatening illness in my early 20’s and during the last quarter of 2014 I had a scare with liver tumours which turned out to be benign.

Following the breast cancer diagnosis was a whirlwind of specialist appointments, CT scans, MRIs, more biopsies and awkward ultrasounds. Two weeks and four days after the diagnosis I had my mastectomy on my left breast. Although I had already decided I wanted a double mastectomy to reduce the risk of the cancer returning, this couldn’t happen at the same time as final ultrasound results from my right breast didn’t reach my surgeon in time. There was concern for the right breast at one point but it turned out to be clear.

Reconstruction will occur at the time of the other breast being removed later down the track. I was advised that if radiotherapy or chemotherapy is needed, it’s best not to have any implants or ‘expander bags’ put in as radiotherapy can cause scarring and skin tightening. Therefore a better result would be achieved if the reconstruction was performed after radiotherapy and/or chemotherapy.

I came home from hospital on Wednesday, 11 March after being in for 2 nights and really haven’t been in much pain at all. The only discomfort has been from the unsightly drain that is hanging from where my left breast used to be. The breast care nurse was kind enough to give me a lovely rainbow coloured cloth bag to “disguise” it with although I feel like I should be off to Mardi Gras. I have instead been hiding it in one of my handbags. I was longing for the K-mart guy to ask to check my bag the other day but typical, the one day that I want them to they’re not there!

At my post-surgery appointment with my surgeon my husband and I were told the cancer had been fully removed and had not travelled into any of the lymph nodes. There were four taken out for biopsy in total, three from the first level (where the cancer would spread to first) and one from the second level (where the cancer is likely to spread to next).

Now I’m just waiting to see the oncologist next week to find out if chemotherapy is needed. My surgeon has warned that sometimes chemotherapy is recommended as a precaution especially to patients at a young age (36 is still young!) and to make sure that no cancer cells had become free and were travelling throughout the body. I’m hoping I won’t need chemotherapy but if I do I know that I need to do what I have to do to stay on this earth and keep healthy. I have also requested ‘cold capping’ at the Mater Hospital to reduce the risk of losing most of my hair. I know that might seem vain but it’s probably one of the biggest and scariest things about this whole experience that I’m not looking forward to. On the other hand I’ve got a new set of cans to look forward to, until then I’m just a bit more aerodynamic on my bike.

5 Replies

  • Wow, that is an incredible recovery Angela! What an inspiration. You should be very proud. Thank you for sharing.
  • I too had my left breast removed .i had the drains got an infection .had chemo ,radiation the lot .all back in 2012.I wasn't as lucky it spread to my bones even though I was on 12month check ups .MY point in writing is to say I'm back at work part time and still alive ,which at the time I didn't think I would be around with stage 4 cancer ...don't give up
  • Hi T-bird

    You sound like you know where you're at with everything and coping well. There is a fair amount of waiting too.

    Best wishes

    Meg

  • Hi T-Bird - it's a tough road to travel - don't you just love the 'bag'? And funny about the KMart guy. Hopefully drains are out now? Hideous things but it's all temporary...even chemo if it's required. I had 4 doses and lost my hair (actually shaved it off on day 3 and managed to raise $2000 which I donated to the Mater and Wesley Choices). I wore a wig and as much as I didn't like it, it made me feel more feminine at work ohh and my prosthesis. Again, it's all just for a short time in the scheme of things. My hair has grown back better (and darker - my hairdresser had something to do with that) and I'm quite enjoying playing with different styles - just goes to show that sometimes there can be a positive through the process. Good luck with the onco appt and great news that you had clear nodes

    Take care Alex xx

  • Hello T bird,

    You are still very young at 36.  I'm 43 and was diagnosed at 42 last October .  I still feel youg, although the chemo is knocking me around.  I had a left mastectomy. I too had a pretty bag to hide my drain drain tubes.  Also I didn't get expanders put in for the same reason you mentioned.  Hopefully I'll get the expanders soon after chemo finishes, on my way to new boobs and looking and feeling female again.  I was thinking earlier today as I lie in bed with such bone pain from the taxol chemo that I've turned into an asexual " it".  No hair, one boob, constipated, tears and possibly no ovaries ( Still thinking that one over).  Don't feel  like a female at all!!  T bird your ability to make this funny is fantastic.  I really hope you don't loose it throughout your journey.  You made me laugh.  Please keep posting your story as I'm sure your sense of humour will make a lot of ladies smile.  Wishing you speedy travel with your new aerodynamic style.

    Take care,

    mandy