Forum Discussion
KMAC46
6 years agoMember
TERRIFIED of Treatment
I’m not sure I can convey in writing how terrified I am I’m not sure there is a word to describe it the worry I feel is debilitating, I already suffer from anxiety and this is just exasperating it, i was diagnosed about a month ago and have had a Lumpectomy with good results margins were clear and lymph nodes were clear, my cancer is triple negative and they are still wanting me to have chemo and radiation. The plan is 12 weekly doses of chemo then about 15-20 treatments of radiation along with Herceptin every 3 weeks for a year. I am supposed to go to Hospital on Tuesday for Echocardiogram, Port Insertion and my first chemo.
Everday for the last two weeks I have woken up at 6am in what I think is a panic attack I have tingles all over my body and shaking and I don’t want to get out of bed I’m at a point where I don’t think I’m going to be able to get myself to the hospital on Tuesday, and on top of all this I live in Melbourne so we have COVID to deal with which means no one can come to hospital with me I have to do this alone.
I am terrified of having the port put in and the thought of it being in my body for so long is terrifying to me I am also completely terrified of the chemo and all the worry it will cause me between treatments having to monitor temperature etc etc will be so stressful for me.
I have tried conveying this to various people (Doctors, Family, Psycologist) and all they say is you have to do this and take one step at a time, I feel like no one is really grasping how terrified I am and no one is helping me with the mental side of this, am I the only one that feels this way please HELP me as I don’t think I can mentally survive this and am seriously considering not going on Tuesday.
I am terrified of having the port put in and the thought of it being in my body for so long is terrifying to me I am also completely terrified of the chemo and all the worry it will cause me between treatments having to monitor temperature etc etc will be so stressful for me.
I have tried conveying this to various people (Doctors, Family, Psycologist) and all they say is you have to do this and take one step at a time, I feel like no one is really grasping how terrified I am and no one is helping me with the mental side of this, am I the only one that feels this way please HELP me as I don’t think I can mentally survive this and am seriously considering not going on Tuesday.
49 Replies
- KMAC46MemberThanks @primek your right I’m actually triple positive I had it the wrong way around
- primekMemberI had a port put in and it was much less stressful than having them find a vein each time.
If your having Herceptin then you probably are not triple negative but her2 positive, which there is wonderful treatment for. Without treatment it can spread rapidly.
I once worked in oncology and I was incredibly anxious and scared before my treatment. It was easier than I thought and really side effects are later when you are home with people you will feel safe with.
You can do this.
You are stronger than you think.
X - AfraserMemberAgree with @Blossom1961 about Epworth, my treatment was at Epworth Freemasons and was excellent.
- KMAC46MemberThanks @Blossom1961 that’s great to hear
- Blossom1961Member@KMAC46 Epworth is brilliant. The motto is, if a patient has a concern, then so do we (or something to that effect) I have been to Box Hill Epworth and Geelong Epworth. Their standard of care is higher than anywhere else I have ever been.
- KMAC46MemberThanks @Sister that is exactly how I feel about the port it creeps me out to think about it being in my arm and I’m not thrilled about the procedure to get it put in either I’m just trying to make the best decision for myself. I am talking to a psychologist that specializes in cancer but have only had one appointment so far I have another one on Monday, I have also sent a email to my oncologist nurse to let them know I’m concerned about having to be by myself so hopefully they will assist me
- SisterMemberOkay @KMAC46 First of all I want to say that you've made a stand by voicing your anxiety. Secondly, being terrified is not unusual. I joked (sort of) to my surgeon that the balcony doors of my room were locked so that no-one could escape at the last minute. I was shaking so much in the theatre that while the anaesthetist was working on one arm, the surgeon was holding my other hand. Add to that your existing anxiety and it's no surprise you're feeling like that. Regarding the port, I had one, hated it being there (it gave me the creeps for a long time) but am so grateful that it was as it made chemo so much better and left me with veins. It's a bit strange but you do get used to it.
It sounds like you are doing what you can but you need help to get through this. I understand that with the restrictions you can't have a support person with you but I think it is important for you to speak to a cancer-focused psychologist or counsellor, preferably attached to the hospital and see if you can have someone from the hospital with you during procedures. I think that your doctors need to know this is more than just being a bit scared and that you need to be assisted through it. - AllyJayMemberHi KMAC46....I was diagnosed in 2016 and had 4 X AC chemo, followed by 12 X Taxol and Herceptin for a year before surgery. The surgery was double mastectomy with node clearance on the left and sentinal node on the right. Due to other pre existing medical conditions, including the fact that I'd been on blood thinners for almost 20 years with the subsequent scarring to my veins by weekly or fortnightly blood tests, a port was put in. I am now four years post chemo, and still have my port. It has been a godsend for me and all I have to do is have it accessed and flushed, then Heparin blocked every six to eight weeks. I have an extreme needle phobia and am reduced to tears for the finger prick test for blood glucose levels, but have absolutely no problem with this regular procedure, or back before for the chemo. A pushing sensation, and it's in. After the hep lock, the nurse disengages the apparatus with a click, presses a cotton wool swab on for about a minute, slaps on a square band aid type dressing and off I go. I thought I'd just share my experience as regards the port side of things. Big hug...Ally.
- kazbMemberhi @KMAC46 I am at (still have balance of Herceptin treatments to go) Holmesglen Private in Moorabbin, so that is where my experience is. The port was raised by my doctor, but my choice was not to have, and see how it went, but my veins have held up no problems, the nurses were all extremely skilled at inserting canulas each week. I only had 1 node removed so did have the option of using that arm if the need arose, but hasn't so far, and have managed to keep it all to the one main arm.Perhaps someone who has had a port may be able to give you their experience of it?
- KMAC46MemberHi @kazb I’m going to Epworth Private in Richmond you said you didn’t have a port how did you go with your veins? Did your doctors want you to have a port and you decided against it or did they not suggest it at all?