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mme's avatar
mme
Member
15 years ago

tamoxifen

hi,

I started taking tamxoifen in Novermber 2010 after finnishing my chemo, and was wondering if any one could tell me if thay are having any sideeffects, as iam. 

10 Replies

  • Hi,

    First time I actually been on this site, its very helpful. :-)

  • Probably abit of both.Low mood is a side effect of Tamoxifen and I definitely had that after a few weeks of starting it. It's a year since diagnosis for me too.I've just booked my mammogram for next week and am already getting the jitters.It's to be expected.After my  first bout of b cancer(7yrs ago)it took me about 18mths to feel more optimistic so it's still abit raw for you.

                                            Tonya xx

  • Wow Leonie, chemo is an extreme way to go in order to have a reprieve from Arimidex!

                                    Tonya xx

  • thankyou for your replys on tamoxifen they were very helpful

          mme

  • thankyou for your replys on tamoxifen they were very helpful

          mme

  • thankyou Tonya,

    it was good to hear that the Genox brand are more tolerated, as thats what I am taking, at the moment I get hot flushes at night,and my bones ach in the morrning. I also feel a little down dont know if thats due to the tables or that I comming up to one year since my surgey.

                                                            mme

     

  • I was on Tamoxifen for 3 years and had no side effects except break through bleeding on occasions.  This had to be investigated each time (bit expensive) as theren is a risk of uterine cancer . Make sure that you have a caring gynecologist to keep an eye on you.   I told myself that I wasn't going to have any side effects and it worked for me.  Yes there were the night sweats but I had them before the drug so just carried on.  But we are all different.  When I had to change over to Arimidex due to another diagnosis, I hated it.  Mood swings, itching, weight gain etc.  I am having a little reprieve now though whilst under chemotherapy.  Can't say I am looking forward to recommencing it. XLeonie

  • I was on Tamoxifen for 3 years and had no side effects except break through bleeding on occasions.  This had to be investigated each time (bit expensive) as theren is a risk of uterine cancer . Make sure that you have a caring gynecologist to keep an eye on you.   I told myself that I wasn't going to have any side effects and it worked for me.  Yes there were the night sweats but I had them before the drug so just carried on.  But we are all different.  When I had to change over to Arimidex due to another diagnosis, I hated it.  Mood swings, itching, weight gain etc.  I am having a little reprieve now though whilst under chemotherapy.  Can't say I am looking forward to recommencing it. XLeonie

  • I've been on Tamoxifen since February.  I've had constipation since then.  Also, when I wake up in the morning my fingers are stiff and painful - like someone has pulled each one of them out of their joints.  It's a weird feeling but doesn't last long and disappears once I get out of bed and move around. 

    Chemo put me into menopause and I started off having dozens of hot flushes each day.  It got better when I finished chemo in November 2010, it's now down to a dozen a day, but  I wasn't looking forward to my hot flushes getting worse when I started Tamoxifen.  But so far so good.  I think I'm getting cold flushes too, if there's such a thing.

    All the best,

    Helen.

  • Hi mme,

    I started Tamoxifen last August.My hot flushes got worse.I became irritable, abit depressed and had trouble sleeping at night. After a few months my doctor put me on a very low dose antidepressant(Endep 10mg)which really helped with all those symptoms. I stick with the Genox brand as once I had a different brand and it gave me a rash and a terrible headache.Even my doctor said that Genox seems to be more tolerated.I'm still getting the odd hot flush when I have a hot drink or change temperatures/environments suddenly.But by and large it is agreeing with me.It tends not to if you are pre menopausal.

                                          Tonya