secondaries symptoms??

I can relate to hot flushes.  Mine started when I was on my last chemo almost 3 years ago.  Every 2 hours, day and night.  I could set my clock by them.  In the last few months they have settled a bit and now I sleep for 3 to 4 hours when I first go to bed but then I am awake almost every hour on the hour after that.  I walk first thing every morning for 30 minutes which I think may have helped.  I know it has helped with my aches and pains from taking Femara.  Sometimes I get very frustrated at not being able to get a good night sleep but I think I just have to be content with what sleep I do get knowing that it has gotten a bit better with time.

 

I guess you'll have to stop Tamoxifen before your surgery.That's probably what's causing your hot flushes.Yes,the doona dance is a pain.I now take a very low dose antidepressant called Endep 10mg and that has really helped with hot flushes and sleep.Sometimes it all settles down after a few months of taking Tamoxifen but if it doesn't then talk to your doctor.

                               Tonya xx

In my experience and talking to other Stage 4 women, bone mets tend to go to the spine first, so it is likely that the pain you are experiencing is due to treatment. Do you have back/hip pain as well? I was on AI's (Arimidex and Aromasin) for a while, then oral chemotherapy (Xeloda) and now I'm on Tamoxifen. Found I could control the bone aches from the AI's with Krill Oil. Check with your Oncologist / Surgeon first as it clashes with some chemos and it also acts in the same way as a blood thinner, so not before your mastectomy!

Can't help with the hot fluses, but agree with your pain comment.

With love

Joy K

thanks for the reply, night flushes are a bit like having a newborn baby again!!! Broken sleep and daytime tiredness!

I would never have thought there was so much pain elsewhere involved with breast cancer!!

 

sandy

Hi Sandy,

I can relate to the hot flushes and leg aches very well. I started Tamoxifen on the 12th and have had leg aches ever since. They seem to be more muscular than bone but I can't be 100% sure. Hot flushes combined with the Perth heat makes for a lovely combination - NOT! Most of my nights have been broken and I find I'm awake very early so I tend to get up - sometimes as early as 5.30!

Sorry I can't help with the bone question but I can only hope that it's muscular rather than bone. My pain is only when I move. I don't seem to get it lying in bed. Not sure if this helps. I finished chemo on the 6th so I'm not sure whether this is related to the chemo either. I start radiotherapy on Tues and see my onocologist on Fri when I start my 3 weekly herceptin so I'll ask him about the leg aches.

Good luck with your scan results and keep us informed. You will be fine and it is ok to feel scared and apprehensive. It's all part of the BC journey.

Take care. Will be thinking of you,

Alison

Hi Sandy,

I can relate to the hot flushes and leg aches very well. I started Tamoxifen on the 12th and have had leg aches ever since. They seem to be more muscular than bone but I can't be 100% sure. Hot flushes combined with the Perth heat makes for a lovely combination - NOT! Most of my nights have been broken and I find I'm awake very early so I tend to get up - sometimes as early as 5.30!

Sorry I can't help with the bone question but I can only hope that it's muscular rather than bone. My pain is only when I move. I don't seem to get it lying in bed. Not sure if this helps. I finished chemo on the 6th so I'm not sure whether this is related to the chemo either. I start radiotherapy on Tues and see my onocologist on Fri when I start my 3 weekly herceptin so I'll ask him about the leg aches.

Good luck with your scan results and keep us informed. You will be fine and it is ok to feel scared and apprehensive. It's all part of the BC journey.

Take care. Will be thinking of you,

Alison