Forum Discussion

TracyT's avatar
TracyT
Member
10 years ago

Second opinion

Hi, I am wondering if anyone sought a second opinion prior to starting hormone treatment? I have recently had a bilateral mastectomy after reoccurring breast cancer (ER/PR positive, HER2 negative) and have been prescribed Goserelin injections and Exemestane. I have waited a month for my doctor to refer me to Mount Hospital for a second opinion but I was told on Friday by the specialist at Mount Hospital that they don't give second opinions! Can anyone recommend a good medical oncologist (private or public) that will give me a second opinion? Thanks :) 

4 Replies

  • Tracy - I'm on the Goserelin injections (Zoladex) monthly for 2 years - rather I wasn't but I take comfort in that it is doing what it is meant to do - shut down the ovaries.

    Hope you find peace in your decision.

    take care xx

  • I have spoken to my Gyno who is also a Reproductive Endocrinologyst and has a lot of experience in this area...

    I have gone to him independently off the BC specialists and treatment as wanted his view on the process and will make sure he is involved in whatever happens when we get to the post radiation stage as that is when my hormone treatment kicks in.

    Name is Prof John Eden and he is one of the best in the country (is based in Sydney) and I kust tell you that while he is incredibly anti meds nornally and preferrs to have hormonal imbalances etc treated by diet and supplements before he will resort to drugs he has told me in no uncertain terms that for my biopsy resukts as my cancer was incredibly hormone responsive he does not want menavoiding hormone suppresants. He also feel for me they will be an issue as i have always reacted badly to any hormone altering drugs. Still he feels they will most likely be a must...

    Only alternative, as far as he is concerned, is removing the ovaries and even then he feels not taking the hormone suppresants is placing me at a very increased risk of BC recurrence.

    Obviously tests will be repeated closer to when I need to go on those drugs and decisions will be made then. 

    Also - everyone is different so no two women could have the same advice apply to then so what aoplies to your situation would be completely different andnbased on your biopsy results as well as your endocrine results...

    Best of luck with tour decision

    Jel.

  • I've been told I will have to go on estrogen lowering drugs for 5 years after my chemo, ops and radiation therapy. I can tell you I am not happy about this as the drugs (can't remember the name of them) but apparently they can cause all sorts of side affects. I have consulted a natropath and she has given me natural estrogen lowering drops to take everyday. I will be getting my Medical oncologist to test my estrogen levels to see if it is working and if it is I won't be taking their drugs.

  • Hi Tracy not sure where you are can your gp help you out. You should always get a second opinion if you are unsure, Not sure why they wouldn't give you a second opinion