Forum Discussion

Leonie_Moore's avatar
15 years ago

Round Two

Hi All

Unfortunately yesterday I  received bad news re my recent surgery.  My fight begins again.  Nothing but nothing will stop me enjoying my xmas though.  I am to have ct scans, bone density prior to seeing the medical oncologist and radiation oncologist in early January.  The radiation oncologist won't be happy.  When I last saw him 4 years ago he told me "Bye, we don't want to see you again - we don't like returns"  I'll be in trouble!!!!  Thank goodness for my lovely family and friends and my extended "family" of BC survivors plus of course my BCNA friends.  I haven't had short hair for such a long time so something different to look forward to.....Still a little delicate from the diagnosis ......also knowing that my good friend has been diagnosed with secondarys is a blow as well.  Looks like my working days are now over earlier than I had planned!!!!!  The hardest part of being diagnosed is having to relay the information to loved ones....it breaks my heart to make people feel sad........ I am going to try and be even cheerier from this moment onXLeonie.

 

10 Replies

  • Thank you.  I now have my treatment plan in place.  I start radiation therapy on 14th Feb (25-28 sessions) in Brisbane then back to Rockhampton to start my chemo. (looks like 6 sessions - one every three weeks)   I will be finished by Mid September yeh!!!.  I am really looking forward to going to Taiwan for the 16th International Breast Cancer Convention in November so here's hoping.  I bought a wig today and some other headgear.  All prepared for my treatment.  We go back home this Sunday before coming back for radiation.  I am looking forward to being home again even if just for a short while.  Cheers XLeonie

  • Hi leonie, the girls have pretty much summed it up, just wanted to let you know that my best warmest thoughts are with you, big big hugs, just do what you have to do to get through this, thanks for keeping us U2date, and keeping up the humour. That book sounds terrific,. Blog your heart out XXXRos

  • HI all

    It's nice to know there are people out there who care.  Fortunately I come from a large family and they are wonderful .  I actually get tired from all the phone calls!!!!  Life goes on.  I have been busy with having tests done ie bone scan and fully body scan.  These have come back good.  So that was a nice present for Xmas after the initial THUMP.  The lymph node in my armpit that was affected was huge and had burst through so I am in for some heavy treatment STUFF.  My specialist commenced me on Arimidex immediately and stopped my Tamoxifin.  I have my appointments arranged to see the medical and radiation oncologists in Brisbane in late January.  Looks like my radiation will commence mid February and not sure about chemo yet until I see the Medical Oncologist on 25th January.   I haven't had time to think much about the impact of the treatment yet as I came down with a chest infection on Xmas Eve.   I am so.....lucky.  My husband and I are off to Gladstone (about 1.5 hours south) tomorrow to have a chest x-ray.  Can't go the usual 10minutes into town (Rockhampton) because we are cut off by flooding.  I'm sure you have seen it on the tv.  Anyway a change of scenery as we can't go too far and my husband can't get to work either.   Aren't they fun when they are bored?...... I have been busy drying mangoes and making rollups out of mangoes and pawpaws.  See there is always good stuff to do - don't know how I found time for working fulltime........ Mind you I haven't been too energetic because of the chest infection.  Books are good for relaxing and I have a couple of good ones on the go.  I stumbled on this one "Breast Cancer - taking control" by Professor John Boyages, MD Phd who is an oncologist and the founding director of the Westmead Breast Cancer Institute in Sydney.  It is very informative and just "what the doctor ordered" for me.  He mentions "My Journey Kit" and BCNA in this book and really promotes the resource so I thought I would return the favour.  It is a very good book.  I will keep giving updates and also will keep up my "duties" online as best I can. XLeonie  PS Shirl, I am like you and find it hard to "say a little" - We could write a book!!!! 

  • Hi there, after being off line for a little while I come back to find you have been misbehaving!!!!

    When are you off to have all of your scans etc and has a definate date been set for you to see the oncologists?  Maybe you should pop in to see your local hairdresser and get a short fashionable bob .... for summer of course!!!  That will take them by surprise ... tell them you can be responsible for your own hair-do thank-you very much.

    I can't say I know what you are going through because I don't ..... I do know however that you will give it your best shot  and fight a good fight but you don't have to be the toughest kid on the block.

    Call in for a chat whenever you feel like it, and make sure you give us an update on your results and treatment plans.  You know we are a nosey lot and wil give you no peace until we know everything!!!!

    I know that you want to stay strong  and cheery so those near and dear to you won't be sad but don't rob them of their own emotions. YOU are THEIR loved one and you are all on this new scary journey together.  Let them in - don't shut them out!!!

    ......so says the wise one as she reaches for the tissues!!!

    Look after yourself sweetheart .... Shirl xxxxx

  • Hi there, after being off line for a little while I come back to find you have been misbehaving!!!!

    When are you off to have all of your scans etc and has a definate date been set for you to see the oncologists?  Maybe you should pop in to see your local hairdresser and get a short fashionable bob .... for summer of course!!!  That will take them by surprise ... tell them you can be responsible for your own hair-do thank-you very much.

    I can't say I know what you are going through because I don't ..... I do know however that you will give it your best shot  and fight a good fight but you don't have to be the toughest kid on the block.

    Call in for a chat whenever you feel like it, and make sure you give us an update on your results and treatment plans.  You know we are a nosey lot and wil give you no peace until we know everything!!!!

    I know that you want to stay strong  and cheery so those near and dear to you won't be sad but don't rob them of their own emotions. YOU are THEIR loved one and you are all on this new scary journey together.  Let them in - don't shut them out!!!

    ......so says the wise one as she reaches for the tissues!!!

    Look after yourself sweetheart .... Shirl xxxxx

  • Lovely to hear from you Megan.  I;m doing okay.  So much to organise then all the decisions of treatment.  My poor husband is struggling - he said he probably relaxed a bit about BC - should have stayed on guard.  I just keep focusing on the good stuff of life and putting the cr......in the background.  I have passed this view onto my closest loved ones as well.  (Let's us enjoy life more)  Thanks again for responding - it is lovely to log on and have mail......  Keep up your lovely smililingXLeonie

  • Lovely to hear from you Megan.  I;m doing okay.  So much to organise then all the decisions of treatment.  My poor husband is struggling - he said he probably relaxed a bit about BC - should have stayed on guard.  I just keep focusing on the good stuff of life and putting the cr......in the background.  I have passed this view onto my closest loved ones as well.  (Let's us enjoy life more)  Thanks again for responding - it is lovely to log on and have mail......  Keep up your lovely smililingXLeonie

  • oh  Leonie Im so sorry to hear this, if u need anything im only a click away....  but ur a strong women and u have amazing support,  make sure u use it we are not super heros all the time :)

    megs xx

  • oh  Leonie Im so sorry to hear this, if u need anything im only a click away....  but ur a strong women and u have amazing support,  make sure u use it we are not super heros all the time :)

    megs xx