Forum Discussion

Never_Give_Up's avatar
Never_Give_Up
Member
15 years ago

Rollercoaster ride

I am not sure how a blog works never ever looked at one - have heard others talk of blogs - not sure how to do any ot it - so learning we go.  Have read the network posting guidelines

I have had diagnosis on 18 April 2011 of breast cancer in my right breast (previous left breast lump and radiation treatment in 2006 - extremely lucky with a small cancer.)  Different this time (my breast and lymp nodes removed) as bigger and different cancer this time - how do you understand all the information?  Love the idea of sharing with others who understand - Had a bone scan today and my first appointment with oncologist yesterday - as you can imagine lots of information in the last six weeks - so am going really well even though it has been such a rollercoaster - I constantly remember and think about all of the women who have survived this illness - including my mum and aunts - there is no better inspiration than other women - I feel strong and know I have a hard road ahead but feel - positive feelings and thoughts will be my focus

N.G,U.

5 Replies

  • Never_Give_Up's avatar
    Never_Give_Up
    Member
    15 years ago

    Thanks Louise

    I am amazed at how much others have been thru - you sound like you have had it all.  As I have said - other women have got thru this and I constantly remember that.  I had my period this week and can you believe it I felt emotional about this maybe being my last period - I am 48 and have no signs of menopause yet - so funny how little things can seem so big.  Intend to rest today - and maybe turn that phone off - as it has been ringing constantly for weeks - I am going out with friends on Friday nite - (should be tired around 9ish for sure) - but I will go and have some fun before all the treatment and crap ahead - Thanks for writing to me - I will get better at this as I learn and am happy I have joined - I will add a photo soon (when I work it out) Thanks Lousie and have a great day.

    Gail

  • louiseg's avatar
    louiseg
    Member
    15 years ago

    Hi Never Give Up,

    I have also had BC for the second time - my first in 2003 at the age of 35 (high grade DCIS, mastectomy and reconstruction but no radiation or chemo) and the second last year at the age of 42 in the other breast (Invasive ductal carcinoma, oestrogen +ve, progesterone +ve, chemo, mastectomy and reconstruction).  Like Tonya, I am now on Tamoxifen for the next five years.

    You really feel like you are on a rollercoaster and can't see the end when you first start out on this journey....all of the doctors appointments, scans (I felt like a pin cushion!) etc and the unknown of what is ahead is so daunting.  As you said though, keeping positive is SO important.  I think we are all a lot tougher than we think and I am a huge believer in mind over matter.  I really think that if you keep positive it helps you to heal quicker and cope with the ups and downs so much better.

    We are all here for you and if you need any advice or just a shoulder to cry on or an ear to whinge into, come by and have a chat.

    Louise x

     

  • Never_Give_Up's avatar
    Never_Give_Up
    Member
    15 years ago

    thx moira and yes I have ordered the kit on line so will be glad to get the appointments etc in some sort of order -  If at all possible! - no appointments tomorrow - so this is good for a rest from it all - plan to actually rest tomorrow before the weekend comes and the kids home from school.  Thx for a great welcome.

    Gail

  • Never_Give_Up's avatar
    Never_Give_Up
    Member
    15 years ago

    thanks so much - wow - communication is just amazing - yes funny how you do eventually move on and foret the drill - the goal posts constantly move though when its back - 6 weeks ago I was thinking - if I get a lump only that would be good - such a personal decision to have a breast removed - so scary - keeping positive though! thanks for welcoming me to the blog world - very exciting I think

     

  • TonyaM's avatar
    TonyaM
    Member
    15 years ago

    Hi,

    Like you,I got breast cancer a second time last year.My first bout was in 2003 and had a lumpectomy,full node clearance,followed by radiation.Well 7 years on it came back in the same breast,same spot(unlucky 8%)so had to have a mastectomy followed by chemo.last year.I am now on Tamoxifen and getting on with life.I think chemo was the hardest treatment of all-physically and emotionally.Losing your hair has a huge impact on your life and is very underestimated.It takes so long for it to grow back so that even though you are over chemo you still look like a cancer patient for ages. In some ways getting cancer again was quite a shock.You think you've beaten it and moved on but then you have to start all over again.This is a great site to vent your feelings and to chat with nice ladies in the same boat so blog away!

                                         Tonya