Forum Discussion

leannegauci's avatar
10 years ago

Roller coaster ride!

Had my first surgery ever!

All went well and when I met my surgeon the next Monday, I was told I had the perfect little cancer, that was a perfect target. My margins were clear and it hadn't spread to the lymphnodes. Awesome. Maybe I wouldn't need as much treatment, but I was wrong.

I would need chemo, Herceptin infusions and radiation, as well as Tamoxifen for the next 5-10 years- WT? Appointments were set up for the next few days to meet my chemo oncologist and radiology oncologist- who would have thought that at 39 years of age I'd be meeting these people. Only the week before I had seen an IVF specialist to start the baby roller coaster going...oh well that has come to a grinding halt. But on the positive side, I did go through a fast tracked IVF over the next 3 weeks before my chemo started to to freeze some fertilized eggs to try and give me the best possible chance of conceiving down the track. Not a great outcome, out of 10 eggs collected, only 1 embryo could be frozen. But I guess you only need one though, don't you! Gotta stay positive! Apparently using Zolodex to put me into a temporary menopause will help to protect my ovaries. God help my poor partner, more mood swings to deal with!

While IVF was going on, all those other scans were taking place. More firsts for me. CT scans, bone density scans and Heart scans because of the infusions I'd be taking. I hear there's something called scanxiety and boy did I have it...what if it's somewhere else? I was more nervous about the scans, than the surgery. At least the surgery got the little bugger out! Luckily the scans were all clear (well except perhaps for the sneaky little cells that might not show up).

I had 3 weeks off work while all of this was going on and wanted to get back to a normal routine. Funnily enough I think family, friends and colleagues have found this harder than me to an extent. I think people think the worst. I got told that some colleagues had commented I looked so well, it must have happened quick. What? I'm not dying people! I'm surviving an illness ( please don't think I am underestimating cancer- I lost my dad a few years back to this dreaded disease, but it's how I need to cope with it) And this is crap, but I can honestly say I have never thought about as more than a glitch, an inconvenience, in my life at the moment (and I suppose for a long time considering I'll be taking Tamoxifen for years and of course all the ongoing scans). I am annoyed and upset we've had to cancel an overseas trip we'd been planning for the last year to celebrate mine and my partner's 40th birthdays, but hey, it's just postponed!!

Honestly, I had no time to reflect on the actual enormity of all this at this stage. In less than a month all of this had happened and I would soon be starting chemo (12 rounds) and herceptin infusions (every three weeks for a year). This will then be followed by 6 weeks of radiation. If I'm lucky and all goes to plan, my last radiation will be due Christmas Day, but since they don't open then, it will be scheduled for the following work day- my 40th birthday! Happy birthday me, it might not be the OS trip, but I'll get to say I survived this shite and walk away with a bottle of cream! I am anticipating a couple of bottles of Moët may also be consumed!

And in the words of my breast surgeon, 'Don't panic until we tell you to panic' and that's exactly what I plan to do!

 

6 Replies

  • Hi Leanne,

    Glad to hear surgery is done and margins are clear.  You have a fantastic outcome in this disease, yes it's a huge detour in what we have all planned in our lives. I've had surgeries and chemo and now embarking on the radiotherapy stage of treatment.  I view it like the light at the end of a tunnel.  Of course there's hormone therapy treatment for me too and later on down the track a reconstructed boob for my 50th! I can relate to the comments about 'looking so healthy'.  Most people don't realise that we don't tend to look sick anyway with bc, it's the treatment that makes us look sick.

    This is a crappy roller coaster ride, some days are worse than others.  Hopefully the good days outnumber the bad during your treatment. I enjoyed getting out to walk and feeling the winter sun on my face, even when I was queasy.

    REmmember to come back on here as there's always someone to talk to. You're never alone in this

    Karen xx

  • Hi Leanne, I to have started chemo Taxol and 12 months of Herceptin 5 weeks ago, so far only sided effects are reflux and my hair getting very thin. At first when I was  told I could loose my hair I was upset but now when I see so many patients  at chemo and Dr surgery it doesn't seem such a big deal anymore. I finish chemo Nov 12 and start my radiation planning on the same day. My wonderful husband will be spending his birthday sitting with me while I have chemo and then go to planning for radium, we had planned a holiday to Darwin leaving last Tuesday. We spent Tuesday at Dr appointments instead. Hubby keeps telling me that there is always next year. I know what you mean about people saying how good you look and it must have happened quickly. I am still getting used to the comment as some people expect you to lying around and not getting on with life. For me I need normality in my life and I am staying positive as I have a wonderful family and close friend encouraging m . One thing I have noticed that you find out who your friends are in times like these, the reactions of some have been unbelievable not always for the good. Look Good Feel Better it is a fantastic fun day. My daughter took me to one and it was fun being with other cancer patients, being told how to look after your skin, learning how to put on makeup and trying on wigs and headwear. There was lots of laughter which they say is god for the soul.

    I wish you all the best with your journey, remember this is just a little bump on the road and this site is the best place to go for encouragement.

    Sending you cyber hugs  Leanne 

  • Hello Leanne,

    Yes, I found the first month to be astonishing. It felt like a blizzard of tests and new information. Then it settled down.

    Then I settled in to 6 months of chemo (finished in June) and 6 weeks of radiation (finished in August). Taking each day, taking best possible care of myself and accepting all help. I avoided the worst of the possible side effects and survived a thousand expected and unexpected events.

    Part way through chemo I figured I needed a post-treatment reward to look forward to. So next week we're off to spend a week in Kakadu.

    I hope that every day brings you the resilience and support to find little treasures even on the darker days. It's lovely to hear you talk about the champagne, European trip, and maybe even children in your future.

    Good luck. Check in from time to time and tell us how you're going!

    Love and hugs

    Gillian

  • Anonymous's avatar
    Anonymous

    Hi Leanne, and welcome to the network. It is a roller coaster ride, and one that we are all on, or have been on. Take a deep breath, and just take it one appointment at a time, as that is easier to manage, and it won't be as daunting. Keep those plans that have been put on hold, as they will eventuate. You are starting with a really positive attitude. Breast cancer is one of the most treatable cancers, so anticipate a good outcome. Sounds like you have good support around you, so keep on plugging away. Sending you a big cuddle, ????

  • Hi Leanne, wise person your surgeon! Glad to hear the surgery went well. You do have a long road ahead (I also had chemo, rads, Herceptin and Tamoxifen) but the outcomes are very good for so many of us, and you can look forward to popping that champagne on your 40th! 

    I think its hard too on those around us - we're so caught up in the whirlwind of appointments, scans, surgeries and treatments that it can feel very unreal for us but very worrying and confusing for those who love and care for us and I often found I was the one trying to comfort others about my illness!

    When do you start your chemo and Herceptin? Hope it all goes as well as possible, and don't be shy about letting your oncologist know about any side effects you may have as they can usually find something to help. Also, keep posting as there are many here who have travelled this road and happy to help and support you. Best wishes, Jane xx 

     

  • Wow what a roller coaster this is I am in similar situation lump in breast first mammogram then called back for a second and within 3 weeks was diagnosed with BC.  Within another week was in hospital for it to be removed and my first surgery as well.  Was more scared about the Bone Scan and the CT Scan than anything else.  Everything has come back clear but also triple negative so six lots of chemo 3 weeks apart and then Radio for 4 weeks.  First Chemo was last week and to me this is not nearly as bad as the waiting for results hope you have the my journey kit it is invaluable and this web site offers great support it has certainly helped me along the way.  My last Chemo is 30 December so planning on a big New Years Eve and like you my friends, work colleagues and in laws all found it harder to deal with than I did,.  Stay positive and remember one day and one step at a time.  Good luck with it all you will be fine.  Sending you hugs  Fiona